Restless Legs Syndrome (RLS) Discussion Board

Hi Smileycarr79 - welcome to the board. I was about your age when everything started to spin out of control with me and the WED/RLS. I am so sorry that you are in this position. I taught, for a while, also, and I know how hard it is when you are in such a place. Have you heard of augmentation? I wou...

Ann, what an awful year you've had. It is encouraging that you are almost there and I wish so much that this progress continues. How on earth did you cope. Steve, I can hardly believe that it is 4 years since that awful time when you were so badly treated. I wish you well as the anniversary comes a...

My whole family has symptoms primarily in our thighs - we often use the "karate chop" method of beating on the muscles with our hands. Seems that this would do that much more effectively.

Hi tea4one - I haven't seen anything about it. I have no idea if I actually have delayed sleep phase or if something about WED/RLS makes it seem this way. Whichever it is, that has been my life for as long as I can remember. From reading under the covers in grade school to a bedtime of 5 AM in colle...

I spent the last year mourning, grieving, and being depressed on top of the weight of the chronic illness stuff - it's been pretty miserable, Ann, so sorry to hear that you last year has been bad. I have had troubles the last few months as well and hopefully can get through next weekend since it wi...

Thank you Views.... Yes so much chronic illness. So debilitating. I've only been on the AD for one week and can only hope for the best. I had no idea you were poorly and so glad you are on the mend. I do hope it works, Betty. It hurts my heart to think of you feeling like that. For me, it was a cum...

Wow, this is all great to know & am so hopeful he’ll prescribe opioids for the withdrawal alone, not sure what plan is after roprinol cause I’ve tried gabapentin & side effects were too much on my mental health, etc-those class of drugs are not good for me. I sent my dr articles you sent. I haven’t...

To find the pain point that send sensation pain ,bring your knee up to your chest pulling with your hands when you get the sensation is it coming from your lower leg if so rub hard above ankle bone if it's painful rub with some pain gel or cream this should help if it doesn't Acupoint 🤔 If it's you...

shinderlider wrote: ↑

Sat Dec 16, 2023 11:05 pm

Well, I made what is hopefully the last step to be ropinirole free: dose cut from 2mg to 1mg. At the present, keeping the gabapentin dose at 300mg twice a day, knowing it can be increased if necessary. It has not always been easy but I am pleased that I am almost finished.

Wonderful!

*gsurpur* I also wonder sometimes, what is normal. What would I be like without rls and without being stuffed full of medications. However it is some of those medications that somewhat control my rls. Coping with chronic medical conditions can be very debilitating and it is easy to become depressed...

gsurpur wrote: ↑

Sat Dec 16, 2023 10:51 pm

Hi, My sleep specialist prescribed me this device as I live in California, unfortunately my insurance denied it.
To buy on our own, its $6000.00 including the accessories. I do not know why my request was denied!

OUCH! That is a lot of money. How frustrating that they denied it.

Hi Ali - What a difficult journey you've had - great that the tumor was benign. Welcome to the board and I hope you find the help you need here. As I understand it, most WED/RLS experts recommend decreasing ropinerole .5 mg every 3-7 days to prevent DAWS. Even if you wanted to be very careful, you c...

Ann, I am in the process of determining if I am a good candidate and following the Medicare rules which require at least six months of a supervised diet. It will be at least June before a decision is made. In the meantime, I continue my weaning off ropinirole (getting ready to move from 2mg down to...

HI Sue - did you go ahead with it?

My sister has mild symptoms - she had surgery a few years ago and never mentioned her symptoms being worse. Of course, I don't remember what she had done.

Similar symptom progression: from classic need-to-move twitchiness to, twenty plus years later, sudden energy build-up—bordering on a cramp—in my hip joints releasing within seconds a powerful spastic kick. Happens in only one hip at time but left hip more often than right because I suspect osteoar...