Search found 2385 matches

by debbluebird
Sun Jan 28, 2024 7:13 am
Forum: General Topics: RLS
Topic: What’s the end game?
Replies: 7
Views: 913

Re: What’s the end game?

I'm 73, female. I've had RLS since 1990. So, 33 years. Mine has been severe for about 17 years day and night. I have short term memory loss due to sleep deprivation. I had to retire at age 60 because of that. I'm an RN. I've tried about 20+ meds. The DA worked for about 8 years with occasional RLS, ...
by debbluebird
Sun Jan 28, 2024 6:52 am
Forum: General Topics: RLS
Topic: RLS and Hypertension
Replies: 8
Views: 1411

Re: RLS and Hypertension

I have a wrist B/P monitor. It works great. Easy to use. Not too expensive. Regarding high BP at night. I have severe sleep apnea as well as severe RLS. Recently my cpap machine broke. 3 months before I got a replacement due to several set backs. Anyway, I noticed that my BP goes up at night because...
by debbluebird
Fri Dec 22, 2023 9:08 pm
Forum: Help for Relationships
Topic: Sleeping Arrangements
Replies: 28
Views: 30492

Re: Sleeping Arrangements

We gave up and we have separate rooms. We do gather in his bed before we go to sleep to watch tv, etc. He is a very light sleeper and every time I got up, he'd wake up.
by debbluebird
Fri Oct 13, 2023 10:54 pm
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 16256

Re: Spinal Cord & DRG Stimulator Trial

Thank you so much for responding. That helps me a lot in understanding what to expect. I was not aware that your RLS was caused by pinched nerves/back issues. Your RLS has been somewhat harder to treat, correct? Do you think that is because the pathology is different - not neurological. Mine is def...
by debbluebird
Tue Oct 10, 2023 6:54 pm
Forum: General Topics: RLS
Topic: Diet
Replies: 19
Views: 15787

Re: Diet

My RLS continues to be improved. I had a flare up in Aug, but it's gone now. My RLS ended after my last back injection. It's been 12 weeks this Thursday, since my last injection. I'm going to wait awhile to see what happens, to see whether RLS comes back. Before the weight loss, I'd still have some ...
by debbluebird
Tue Oct 10, 2023 6:44 pm
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 16256

Re: Spinal Cord & DRG Stimulator Trial

First, I did a trial. The leads were placed externally. It was for a week. A battery was attached. I wore it with a belt they provided. The trial was to see if it would help with my RLS. It did, so I agreed with the surgery. The Doctor who did it, this was one of his specialties. He had done many of...
by debbluebird
Sun Oct 01, 2023 10:43 pm
Forum: Prescription Medications
Topic: Anti-inflammatory medications
Replies: 5
Views: 5982

Re: Anti-inflammatory medications

I would like recommendations for anything anti-inflammatory besides NSAIDS.
by debbluebird
Sat Sep 23, 2023 8:59 pm
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 16256

Re: Spinal Cord & DRG Stimulator Trial

I don't know. They knew I we getting it for my RLS.
by debbluebird
Sat Sep 23, 2023 8:58 pm
Forum: Prescription Medications
Topic: methadone vs buprenorphine/naloxone
Replies: 7
Views: 3468

Re: methadone vs buprenorphine/naloxone

I used to take methadone and gabapentin. They would no longer prescribe methadone. I now take buprenorphine and gabapentin and I'm actually doing better.
by debbluebird
Sat Sep 23, 2023 8:55 pm
Forum: Prescription Medications
Topic: What Comes After Methadone?
Replies: 23
Views: 12869

Re: What Comes After Methadone?

I tried to keep my methadone dose at 10 mg and added gabapentin. It worked for me for awhile. Then I had to switch to buprenorphine because they wouldn't prescribe methadone. I'm doing much better.
by debbluebird
Fri Sep 22, 2023 7:53 am
Forum: Physical Treatments
Topic: Spinal Cord & DRG Stimulator Trial
Replies: 21
Views: 16256

Re: Spinal Cord & DRG Stimulator Trial

I have it set for my RLS. I noticed that there is a line. If I have it set too high, then my RLS starts up. With the help of my Rep, we fined tuned the amount of stimulation. In addition, I take meds too. That being said, if I didn't have RLS, then I would focus more on my back pain.
by debbluebird
Sun Aug 27, 2023 2:47 pm
Forum: Prescription Medications
Topic: Waking up with a racing heartbeat and trouble falling back asleep
Replies: 7
Views: 4490

Re: Waking up with a racing heartbeat and trouble falling back asleep

You might want to talk to your primary Doctor about your racing heart rate
by debbluebird
Fri Aug 04, 2023 2:10 pm
Forum: Prescription Medications
Topic: Oxycodone side effects
Replies: 3
Views: 3855

Re: Oxycodone side effects

I have been very successful with buprenorphine. I've taken everything else. This works. No horrible side affects for me. Good luck.
by debbluebird
Wed Jul 19, 2023 6:50 pm
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 850
Views: 242147

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Are you taking it early enough? I take 1 mg at 2:30 and 1 mg at 5:30. I don't have any issues with insomnia for now. Good luck
by debbluebird
Wed Jun 21, 2023 12:15 am
Forum: Prescription Medications
Topic: What Comes After Methadone?
Replies: 23
Views: 12869

Re: What Comes After Methadone?

I took methadone 10 mg for 9 years. I had nausea for about 1.5 months and then it went away. I now take buprenorphine 1 mg. twice a day. I started out with just about an 1/8th of a 2 mg film. I slowly increased the dose, to try to prevent side effects, but still had some nausea at first, but it didn...