Restless Legs Syndrome (RLS) Discussion Board

Hos, I have a question for you and maybe it is somewhere here but I haven't read everything. I was just in the voice chat room and saw your nic and right now I have ears but no mic. Can you type in the voice chat room or just talk only?? If you can only talk then I will have to wait until I get back...

Hi Pat and Susan, So glad to hear from both of you. Pat you are right we do love FL and have been working with a realitor. A lot of things have to happened before we get from point A to point B but we will see. I know the weather will be better for my back. Susan so glad you are up and running again...

Thanks Moonlight, I have never heard of those meds before but I am glad you are off of the one. They think my son has or is bipolar. He had ADD as a child and took meds for that but he can only go to the VA hospital and he doesn't like waiting so he is doing nothing. So far my rls has been good for ...

Hi Moon, I have been reading all the post and I am still not sure what you went off, but I think it was the diazepem. I have never heard of that before but I have not been on looking on the meds list lately. I am so glad you got off what it was that was making things worse. I don't have pain with my...

Hi Charlene, So good to hear from you, and if you notice I have been posting all week. We are on vacation in Florida for the month of May and at night I just started to read the boards again. When you said you had bout that lasted about 3 hrs, that is a long time. When I did have mine it would last ...

Would one cup in the morning hurt just to get the fix of caffiene? Or maybe try caffiene free coffee just to get the taste of coffee or diet 7-up and add lime juice. I have my 2 cups in the morning and then try to stay away from caffiene for the rest of the day. If we go out to eat I get water with ...

I just happened to see this post and started reading because I take mirapex and have for over a year now. Before that I was on requip and had to get off of it but have been on neurontin since fall of 2002. When I started taking the mirapex my RLS stopped and have not come back. Like I have said I ta...

Hos, I tried giving up coffee cold turkey 1 time and I had a headache for 2 weeks. As soon as I drank the coffee my headache went away. I only drink 2 mugs in the morning but it's enough to work but not mess with the RLS. Smoking is the hardest thing to give up but I have done that many different ti...

Hos, Thank you so much for all the info on down loading the chat room. I tried one time before on my computer and my settings were too high so I didn't get it or I had it and didn't know it. Now I am on the lap top and I down loaded the chat room and still wasn't sure if I had it right. Asked hubby ...

Hi Kitty, So glad you came back, I have been gone for awhile also and right away I get feed back. I have had RLS all my life and I will be 72 in June. When I was little everyone just told me to sit still and what do you have ants in your pants? And the dr's use to laugh at me. Things are different n...

Hi Moonlight, Don't think we have met before but I have been taking clomazepam to help me sleep and mirapex and neurontin for my RLS. I also take Oxycodone for back pain from surgery but I have never had pain with my RLS. One day I hope to get off the pain med and just take the neurontin and mirapex...

Jan, Thanks for the reply. Yes I do remember you and that you also had rods and screws in your back. I have a container at home with all the rods and screws they have taken out of me but what I have now will always be there. You know when they do the T area it's different. But yes I am getting aroun...

Betty, I hope what you are doing now works for you. I would think oranges would play a part in making you feel bad. Dr's always seem to take their time getting back to you when you are have problems. But at least they know about RLS now, back when I was young they just laughed at me. And so I walked...

Yes you did Ann and then I posted in here so you are not forgetting anything. But I think I have been gone too long because it seems not too many people remember me. Oh well I guess I have to post more and start chatting again. Jeannie

Hi Betty, I don't think we have met because I have been away from the boards for awhile. But I have had RLS all my life so I know what those sleepless nights are like. I was taking requip for awhile and it seemed to work fine but then I needed more and more until it put me into augmentation so bad. ...