Restless Legs Syndrome (RLS) Discussion Board

UPDATE: I am posting this hoping to provide others with information about my experience in an attempt to come off 1.5 mg of a dopamine agonist (pramipexole). Below is a summary of my 21 day journey. Two months prior, I reduced to 1.0 mg of pramipexole, increased my gabapentin to 600 mg and took a da...

UPDATE: Since many of you responded with comments and advice, I thought I would post an update to my situation. Based on what I heard it became apparent I needed to do the following: 1) find a new doc and 2) get off the Pramipexole. The first objective seems easy but its not. Where I live, if a Neur...

Thanks Badnights. I just had my appointment with my doctor this morning. Although I did not read your post until this afternoon, oddly enough I would say I followed your advice almost exactly. I brought with me the article by the IRLSSG "White Paper Summary of Recommendations..." 2015, sev...

I have an appointment with my neurologist on Tuesday morning. On Monday I plan to visit the office to obtain my medical records which will hopefully show appointment dates, levels of prescribed medication and dates the medication level was increased. At the meeting I would like to have documentation...

Thanks for your replies. It helps me get a better understanding of what is ahead of me and possible directions to take. Back to my first question, do you think if my neurologist for the past 12 years is listed on the rls.org site as a healthcare provider (one of only three for my state) there is mor...

I am new to the RLS Foundation but not to the disease. I am writing on the Board hoping to find some advice and guidance from those of you with more experience. I will try to be brief, here's my story.... I have had RLS since I was a teenager and I am now 53. I have always been against taking medica...