Search found 133 matches

by pamndorr
Thu Mar 28, 2013 8:28 pm
Forum: General Topics: RLS
Topic: What would you do?
Replies: 20
Views: 2656

Re: What would you do?

Ha Polar Bear..now you made me laugh. Thanks!! I must admit I am a HUGE fan of the old movies and musicals. I would rather watch those then half the stuff on tv these days..but for some reason everybody seems to enjoy Sponge Bob Square Pants..go figure!! I will say that I have no idea who Peppa Pig ...
by pamndorr
Thu Mar 28, 2013 6:05 pm
Forum: General Topics: RLS
Topic: What would you do?
Replies: 20
Views: 2656

Re: What would you do?

Awww thanks...I hope to one day get back to walking without pain and the fear of falling. I thought when I had the knee replacement that would help but so far that knee is still not very steady and the other knee needs to be done when that one heals. I feel like an old car that starts falling apart ...
by pamndorr
Thu Mar 28, 2013 1:42 pm
Forum: Prescription Medications
Topic: neurontin
Replies: 28
Views: 5672

Re: neurontin

You are welcome..you are not nuts or weak...just somebody that has to take crappy drugs to live.
by pamndorr
Thu Mar 28, 2013 1:39 pm
Forum: General Topics: RLS
Topic: What would you do?
Replies: 20
Views: 2656

Re: What would you do?

Thanks rthom...I am trying to pull myself together here. I used to take off to the woods with my dogs when I was having bad days...I feel at peace out there. But since the knee replacement I don't get around all that well so I havent been out there in quite some time. If I could just get out there a...
by pamndorr
Thu Mar 28, 2013 1:29 pm
Forum: General Topics: RLS
Topic: What would you do?
Replies: 20
Views: 2656

Re: What would you do?

Thanks Polar Bear...I figure people on here do not ever intrude in my life or speak out of turn. I am on here because I need help and support and this is where I get most of it. I also hope in some small way I am helping others through this nightmare of a life. As for anti-depressants I have been on...
by pamndorr
Thu Mar 28, 2013 12:54 pm
Forum: Prescription Medications
Topic: neurontin
Replies: 28
Views: 5672

Re: neurontin

If I remember correctly I was on Gabapentin and was able to titrate up to 300 mg 3 times a day and that was it. As the dose increased so did the side effects. Besides the leg cramps from hell I was also having night mares when I could finally go to sleep. I was so depressed that I didn't even know w...
by pamndorr
Thu Mar 28, 2013 10:25 am
Forum: Everything Else...just no RLS!
Topic: My Sister
Replies: 6
Views: 2477

Re: My Sister

I am so sorry for your loss. I say go ahead and cry..you lost an important part of your life and it only makes sense that you are crying. I just try to go minute by minute after losing somebody I love..pretty soon those minutes turn to hours then days and weeks. Just remember to take care of yoursel...
by pamndorr
Thu Mar 28, 2013 10:05 am
Forum: General Topics: RLS
Topic: What would you do?
Replies: 20
Views: 2656

Re: What would you do?

Thank you ViewsAskew...I hadn't thought about talking to a nurse. I will do that. I am just so tired of feeling like I am being difficult to work with. I just don't want to waste anymore time then neccessary trying to find a doctor that understands and who wants a challenge. I am also thinking about...
by pamndorr
Wed Mar 27, 2013 4:42 pm
Forum: Prescription Medications
Topic: Neupro Patch
Replies: 162
Views: 26161

Re: Neupro Patch

Just a heads up on this patch...when it says do not use hot water with it on....they are right. I took a hot shower and hadn't taken it off from the previous day and it started burning right away and in the short amount of time it was on it left a burn mark where the patch was at...all red and swoll...
by pamndorr
Wed Mar 27, 2013 4:27 pm
Forum: General Topics: RLS
Topic: What would you do?
Replies: 20
Views: 2656

Re: What would you do?

Thanks..I called the sleep Dr and spoke to the receptionist and explained to her about the appointment with the wrong doctor. She said the reason was because all other doctors were booked out even further. I told her what I had read in the reviews about him and asked her to be honest and tell me how...
by pamndorr
Wed Mar 27, 2013 12:10 pm
Forum: General Topics: RLS
Topic: What would you do?
Replies: 20
Views: 2656

What would you do?

I have to make a decision...soon. I started to see a new primary. I have seen him one time and he referred me to a sleep doctor who happens to be a pulmonologist also. Not sure why the polumunologist but whatever. My problem is that this primary referred me to one doctor. I asked him at the time if ...
by pamndorr
Wed Mar 27, 2013 9:45 am
Forum: Prescription Medications
Topic: drug holidays
Replies: 30
Views: 5449

Re: drug holidays

I was reading about everybody's sleep habits while on these drugs and the sleep like the dead caught my attention. When I go to bed I go to sleep within minutes after hitting the pillow. I sleep like the dead for about 3 hours then I wake up and am out of bed and up for the day. A sleep study I had ...
by pamndorr
Wed Mar 27, 2013 9:18 am
Forum: Prescription Medications
Topic: neurontin
Replies: 28
Views: 5672

Re: neurontin

I would get the worse leg cramps when I was on neurotin...the ones that knock you to the floor and you can't move for what seemed like hours...and I gained a lot of weight on it too.
by pamndorr
Wed Mar 27, 2013 9:11 am
Forum: Prescription Medications
Topic: Dopamine Agonists and Alzheimers
Replies: 13
Views: 1841

Re: Dopamine Agonists and Alzheimers

This is interesting. I have been on the Dopamine drugs for 7-8 years now and have noticed in the last few years that my memory is not good. I had one Dr say she thought I had early Alzheimer's and suggested I go for physiological testing. I told her many times I thought it was from the high doses of...
by pamndorr
Tue Mar 26, 2013 9:20 am
Forum: Prescription Medications
Topic: neurontin
Replies: 28
Views: 5672

Re: neurontin

I didn't do well with neurontin....no jaw pain but had other crappy side effects with it. I started referring to it as rottin neurontin. I will not try it again...tried that and gabapentin and both caused more trouble then help.