Restless Legs Syndrome (RLS) Discussion Board

Probably you should indeed add vitamin D to the regimen. I know I need it too. Iron and D are my non-prescribed additives, plus a careful (not-quite-stable) balance of narcotic, dopamine agonist, and sleeping pill. Orgasm helps immensely, but only for a very short time. (I carefully make a distincti...

Nice summary, Tracy!

you're right doety, clonmazepam is not a drug of choice for RLS any more. But neither would it normally be taken away from anyone if it's working for that person. It's got a 40-hr half life, so almost two days later it's only half gone. I don't understand why everyone taking it doesn't turn into a z...

Words keep me awake. If I listen to music, I find myself listening to the words and can't sleep, unless they're in a language I can't understand. Even then, I wake up on the high frequency notes. Nowadays tho (since having bad WED), I can sometimes fall asleep listening to hard rock. I went thru a p...

That's a great trick, and I've used it myself! Sometimes I forget how such seemingly simple things might help people. Most people who suffer from this condition would be helped by those kinds of things. Another one is wall squats, which works the thigh muscles more, but it's easier to do when you're...

fullwell has just joined us

wow, polar bear, that was the best answer ever! jul2973, I agree with both the others. I would think, the state you're in, if you think you can hold out, maybe it's best to do so. But I will also caution you that you might not notice when your quality of life has deteriorated enough to justify meds,...

Good on you! I hope to god it works!!! But maybe what you're looking at is this: the infusion plus your meds will make you functional. I know you hope for completely better, no meds, but if that fails to materialize (I still hope to god it does!!), then you might nevertheless be way better off than ...

Helen, you should pursue the iron issue; maybe it's time for another infusion, and probably you should use oral ferrous sulfate supplements between infusions. I am not about to advise you to take a supplement without getting your levels checked first, but you know your own body and can choose a safe...

for those who might not know (like me), Synthroid is a brand name for levothyroxine.
"Levothyroxine... is a synthetic form of the thyroid hormone thyroxine, ....used to treat thyroid hormone deficiency, and occasionally to prevent the recurrence of thyroid cancer." wikipedia

Yes, that's a great quote, isn't it?

That's fantastic! Augmentation is a horrible thing, I'm glad to see your baseline RLS/WED can be controlled by such a simple regimen.
Have you tried no coffee? I go back and forth on that one. Sometimes it seems to have an immediate bad effect, but other times I seem to drink it with impunity.

It certainly is interesting. I wonder if something about the cancer was exacerbating the RLS, and now it's gone?

This is interesting also becuase of the way I describe RLS to people who ask. One of the things I say: it's as if my boundaries are diffuse, my arm does not end here (at my skin) but somewhere here (I pause to feel it, medicated or not, and I can I feel the edge of my arm -diffusing from flesh into ...

If anyone gets close to this space around me, it's as if they've touched me. The concept of an aura of distressed personal space is very useful. If someone is in that space, I am unwillingly energized to alertness. A little different than how you experience it, but similar. The only known working s...