Restless Legs Syndrome (RLS) Discussion Board

I found adding dipyridamole to my combination of meds had a very beneficial impact on my general sense of well-being and of feeling rested and ‘myself’ during the day. This has persisted even though I discontinued dipyridamole after about 10 months. In general I would observe though that rls is a ve...

It does require some trial and error as it’s obviously optimal to take the minimum dose. It can be quite individual also. I would start low - one tablet about 30 mins before bed - and gradually work up. With rls it is better to address symptoms before they emerge. So once you know the dose that work...

In addition to sometimes taking a while to kick in 50mg of pregabalin is a relatively low dose. 150mg is not unusual. I would second getting serum ferritin test and commencing supplementation if it is less than 100 (make sure to get the actual figure - not just that you are ‘normal’).

I read a post on healthunlocked recently of someone who found that menthol crystals mixed into an acqueous cream and applied to the legs helped their RLS a lot. In the hope-springs-eternal mode, my amazon order of menthol crystals is winging its way to me as I type. I applied Vicks to the soles of m...

So sorry to read of your worsened symptoms, Beth. I hope it turns out to be stress related for which at least there is an obvious (if not always easily achievable) solution. Also watch out for sleep deprivation - I think this can exacerbate RLS symptoms (in a cruel irony and easier to identify than ...

I returned to pramipexole (mirapex) 18 months after withdrawing from a very high dose following augmentation. I stick to 0.088mg per day. At first I used it only 5 out of 7 days but now I take it every day and I take breaks every so often (one is due shortly which I am dreading). I supplement it wit...

Hi QyX, There are a couple of strains mentioned in the incredibly long thread about cannabis started by NatWest. She mentions medical mass and also sensi star. I have also heard strawberry cough recommended. I am still searching for a strain that helps my RLS but haven't managed to source any of the...

I suspect that what Dr. Paruthi is referencing is that, in a most cruel irony, lack of sleep actually exacerbates RLS. I have seen this referred to elsewhere also and it is certainly my experience. After I withdrew from pramipexole following augmentation, I went into a spiral of no sleep and terribl...

I have a relaxis pad. The results are very mixed and I would say probably not worth the money. It works well for my symptoms if I go to bed during the day and the legs start but at night time it rarely has a positive effect and sometimes it actually makes the legs worse. It is sort of soothing thoug...

I think I read a post somewhere by a man who used an anal suppository of lidocaine each evening and it helped his rls a lot. I haven't tried it ... yet - things are relatively controlled at the moment and it would require a certain level of discomfort to hoist me over the disinclination to take medi...

Polar Bear, I think you should feel very proud of yourself for biting the bullet and going for it. You have achieved an amazing reduction in a relatively short period of time. Even though the withdrawal is so hard, the sense of taking back control from the drugs is an enormous compensation. Having b...

Sounds like an amazing trip. I have a relaxis pad. For some unfathomable reason it works on my rls if I go for a nap during the day but not at night. In fact, sometimes at night time I think it actually aggravates my rls. I do find it soothing sometimes to run it if I wake up in the middle of the ni...

Red wine is an invariable trigger with me. I hardly ever drink it any more as it always causes a bad night.

Sorry to hear about your bad nights, Betty, but very glad to read that you have virtually halved your dose of ropinerole. That is amazing. Go you!

That is wonderful news, Holland. Am absolutely delighted for you. It makes me feel more positive about my own situation as I am pretty convinced my rls responds to improved iron levels. It looks like I would have to travel to another country to get an Injectafer transfusion but would be worth it. I ...