Restless Legs Syndrome (RLS) Discussion Board

Thanks all!!

Yet more weirdness in my disease...Per Dr Salas, I started taking 10mg all at one time. POP!! It works, for 24-25 straight hours!! Straight consistent relief. I am in shock. This has worked for four days in a row. I don't know what to think....But I'll take it! My symptoms wax and wane, but have nev...

Chaus2 & Orrel I believe I read that we can donate our brains to the cause (after death hopefully...WED has occupied enough of my brain during this lifetime!!). I plan to donate as many organs as possible before cremation but it would be awesome if my brain could be used for WED research as well...

It's just a little twitchy if I don't move it around. Just as I'm dropping off to sleep. But same sensation as my arms and legs

Please don't give up Kris!! Keep searching for a doctor who will work with you....there are some out there and I hope you find one soon. I also have symptoms from head to toe (including, sometimes, my mouth??? It randomly start twitching like my arms/legs haha).

We are all rooting for you...

Wow, Steve. Just wow. Scary.....

That is it exactly. The first month, I took 5mg at lunch and 2.5mg at dinner. Sometimes I took 2.5 more at night, sometimes not. During the second month, that is when I have felt that 12.5 would be perfect. Some days, symptoms kick in hard and fast (that would be a 15mg day). Most days, I start feel...

Interestingly enough, I will be seeing Dr Salas at Hopkins, the first doc to suggest Methadone but I got too hung up on the name and we agreed to use Percocet. I switched to Dr Guylani for three + years, now am going back to Dr Salas and she is dragging her feet about agreeing to 15mg/day. But in go...

I am on the cancellation list!! My fear is that since I am switching docs in the practice (mine is leaving Hopkins to go to NIH) that the new doc thinks I am "drug seeking". Which I am, but not in an addict way

So happy for you!!! Please let us know how it goes Shelby1!!

It has been a month on methadone! I am having a bad week. I am prescribed 10mg per day but need 12.5-15 most days. I called my doc to ask if I could increase the dose. The nurse called back and said: nope, not until you see her. No appointments available until MAY!! So I have been all over the map, ...

Methadone is the BEST DRUG EVER INVENTED!!! I take 5mg twice a day. I'm not gonna lie, I still have mild symptoms (and woke myself up with some major leg jerking last night, might have been periodic limb whatever-whatever) but methadone gives steady constant relief. There are no "ups and downs&...

Nice perspective Ann! We all need to hear the voice of reason once in awhile and as you say, the obsessions take control and beating ourselves up because of this particular side effect is pointless (we don't beat ourselves up because we get nauseous, or itchy, or sleepy, or hyperalert...but throw fo...

Still good, been seven days. Nausea is gone. A bit of itching, but I have dry winter skin anyway. Lots of sweating, but I think I'm in the menopause thing. It is SUCH a relief to have a steady consistent answer to my WED!! I usually take 5mg at noon and 2.5 mg in the evening. Once or twice, I have t...

I am so happy for you!!! That is just amazing