Restless Legs Syndrome (RLS) Discussion Board

Our bodies are complex systems and there can be so many variables. Methadone is the preferred approach in the US for a variety of reasons, but it has its own set of problems and that long half life can make withdrawal very tedious. But, Oxy can be abused when someone is in the 7-8 percent of us that...

So sorry about the COVID!

Looking forward to more updates about this.

Hi Steve, thanks for the suggestion! I was able to make an appointment with a doctor Avinash Aggarwal at the Quality Care Canter University of Pittsburgh Medical Center, as that is the closest center to my location but it is still out of my state. I am concerned about how the medication would be pr...

I hope you do!

I am not a huge fan of the straight memory foam, either. I have a part latex now- it's pretty firm, but definitely better than memory foam.

Ugh - sounds miserable.

There is a post about it elsewhere - search on the word using the search feature (top right) and you should find it.

I wish I had an answer, Deb. What have you been doing? I have never used it.

Let us know how it continues to work for you, Rick. And, hope your body is handling the chemo and radiation OK.

It is SO frustrating. I find mine needs to be at least 200 for any significant reduction (about 50%). But, it took me years to get someone to do that and I STILL struggle with the doctors and hematologists.

I started to ask the very first question above and figured that the poster had no idea why the doc said that. I REALLY want to know if there are any studies...I surely haven't seen any! I bet a lot of it is just personal experience. Which shouldn't be discarded lightly. Even though I fully agree th...

I wish I had some suggestions - hopefully someone else will. That is a long time to be awake - I imagine you'd really like to reduce that!

I have another update to my long slow taper off Ropinirole: at the 4 month mark, I am down to 1/3 of my original dose (0.5mg out of 1.5mg). Am also taking Gabapentin 400mg. I drop down every 19 days or so, and things are going pretty well! Most nights are very manageable-especially compared to last...

I was told my doctor that going straight from augmented Pramipaxole to opioids may require escalating does of opioids and/or more opioids to control symptoms. The rationale is that the by not taking a drug holiday the dopamine system never has a chance to return to baseline. When I hear this sort o...

I was told my doctor that going straight from augmented Pramipaxole to opioids may require escalating does of opioids and/or more opioids to control symptoms. The rationale is that the by not taking a drug holiday the dopamine system never has a chance to return to baseline. Hmmm - that is interest...

I'm sorry for the late reply, but I've had a lot going on and can finally get back on here and wanted to update you on the methadone. Turns out I did sleep well with the methadone and it did well for preventing the rls to act up, but I had to fight to stay awake all day and would find myself fallin...