Search found 59 matches

by SLEEPY ANGEL
Sat Mar 11, 2017 3:00 pm
Forum: Just Joined?
Topic: New person from Maryland
Replies: 19
Views: 4140

Re: New person from Maryland

Rustsmith--- Thank you for the suggestion of looking into the diets for epilepsy patients.
Sounds like a possibility for me.
by SLEEPY ANGEL
Sat Mar 11, 2017 2:28 pm
Forum: Prescription Medications
Topic: Legs feeling very heavy
Replies: 6
Views: 1367

Re: Legs feeling very heavy

dgarmaise--- Wish I had a clue as to what is going on with you! Heavy legs doesn't sound too comfortable! I have not been on the medications you have mentioned, so can't guess if they wold make me feel that the legs are "heavy"... Have you mentioned that feeling to your Dr/Neurologist? Do ...
by SLEEPY ANGEL
Fri Mar 10, 2017 3:59 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: ferratin
Replies: 72
Views: 21283

Re: ferratin

peanut1--- I just happened to read your Feb 23 post where you mentioned research that is being done on helping PTSD and even other problems... wondering why there couldn't be some help for OUR rls sufferers. I believe it has to be that the squeaky wheel gets the oil. Not enough people even KNOW we a...
by SLEEPY ANGEL
Fri Mar 10, 2017 3:34 pm
Forum: Just Joined?
Topic: New person from Maryland
Replies: 19
Views: 4140

Re: New person from Maryland

badnights---

Hmm... I think I'll google the Wahls diet for MS and see if I could possibly tolerate it; even tho. I like Veggies, I'm not sure I'd love 9 cups per day! I eat about 3-4 C per day now, so would have to AT LEAST double that. Thanks for that suggestion.
by SLEEPY ANGEL
Fri Mar 10, 2017 3:22 pm
Forum: Prescription Medications
Topic: RLS; Now Stable
Replies: 23
Views: 3823

Re: RLS; Now Stable

IThinkImInTorture--- It sounds to me hat you are experiencing Augmentation, rather similar to what I have been experiencing. I have to keep busy and on my feet as late afternoon is upon me; if I'm lazy and sitting on the couch, the symptoms will hit by 5 PM. So I start taking small bits of my Requip...
by SLEEPY ANGEL
Wed Mar 08, 2017 11:08 pm
Forum: Just Joined?
Topic: New person from Maryland
Replies: 19
Views: 4140

Re: New person from Maryland

Yankiwi
and
legsbestill...
Thank you both for comments Re constipation from taking Iron tablets. I think I drink plenty of water; I also think I have a slow system : even prunes don't do a thing for me whereas many folks swear by that! I'm counting on the Metamucil and that's sort-of what's working.
by SLEEPY ANGEL
Tue Mar 07, 2017 7:53 pm
Forum: General Topics: RLS
Topic: What Severe RLS is Like
Replies: 331
Views: 44670

Re: What Severe RLS is Like

EeFall--- It's so sad to hear you remark about how your Mom still didn't get it...still didn't realize this is a serious disease--- "Even my 86 year old mother made a comment the other day that implied it was all in my head, I wish to god that it was as maybe there would be a cure". I don'...
by SLEEPY ANGEL
Tue Mar 07, 2017 7:17 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 158
Views: 141200

Re: Is your DA causing augmentation?

Badnights---
Thank you for the link, which gets me to a good deal of info. It will take me some time to digest it all, but I will get through it and ponder/decide what to pass on to my Neurologist. Again, thanks!
by SLEEPY ANGEL
Mon Mar 06, 2017 10:10 pm
Forum: Just Joined?
Topic: New person from Maryland
Replies: 19
Views: 4140

Re: New person from Maryland

legsbestill---- I have a question about oral Iron ... I am only taking a 45 mg tablet once/day and don't know what level that has produced in my system, but I do get constipated with that amount. If you made a concerted effort to get your iron up from about 29 to 79, how did you avoid constipation? ...
by SLEEPY ANGEL
Mon Mar 06, 2017 5:21 pm
Forum: General Topics: RLS
Topic: What Severe RLS is Like
Replies: 331
Views: 44670

Re: What Severe RLS is Like

Polar Bear--- How fortunate to have a boss who wants to be helpful! At home I have places a wooden bench that is about 18 inches high on top of my desk where my laptop sits.... It's not too ba for the ability to stand up as I use my laptop, so I can wiggle and shift from one foot to the other, ETC. ...
by SLEEPY ANGEL
Mon Mar 06, 2017 1:12 pm
Forum: Just Joined?
Topic: New person from Maryland
Replies: 19
Views: 4140

Re: New person from Maryland

jerilyn--- Welcome! This is the best place to be getting a look at other sufferers' experiences. I have no idea what my iron level has been, but my medication experience has been as follows : I only began in Aug. of 2016 to use Ropinirole, and after 4-5 months I figured out that what was happening w...
by SLEEPY ANGEL
Mon Mar 06, 2017 12:45 pm
Forum: General Topics: RLS
Topic: What Severe RLS is Like
Replies: 331
Views: 44670

Re: What Severe RLS is Like

jerilyn ....You have so clearly put into words what this disease is like, and exactly why I'm so grateful that it didn't start for ME until I had retired (quit because of the awful boss). I KNOW employers just don't "get it" so it becomes a real challenge to get your work done if the boss ...
by SLEEPY ANGEL
Sun Mar 05, 2017 11:47 pm
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 16257

Re: Infusion Update

For ViewsAskew--- I really feel for you, trying and trying to find the correct and BEST schedule with your Meds,! and it seems that, for many of us, things only go well for a short time and then everything needs to be re-evaluated. You were such a dear when I reached out to begin my search for suppo...
by SLEEPY ANGEL
Sun Mar 05, 2017 10:07 pm
Forum: General Topics: RLS
Topic: What Severe RLS is Like
Replies: 331
Views: 44670

Re: What Severe RLS is Like

For EeFall--- I've been retired for more than 15 years, but my retirement REALLY wasn't for health reasons (unless you want to say I would've gone insane if I continued with that boss!!!)... But I am thankful the RLS didn't start while I was working; I don't know how I wold have handled it since it ...
by SLEEPY ANGEL
Wed Mar 01, 2017 10:40 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Low Dose Naltrexone for RLS
Replies: 10
Views: 3829

Re: Low Dose Naltrexone for RLS

For goldy--- I am going to make a note of this Naltrexone to ask my Neurologist about it... for future possibilities we might consider. My concern is that heavy duty pain killers (usually opiates) are not tolerated well by my tummy! I barf every meal. I had an accident when I was 27 years old using ...