Search found 7442 matches

by Polar Bear
Thu Mar 07, 2024 5:47 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 873

Re: Where do I go from here?

Well... You got rid of your rls symptoms with .5mg ropinerole and found some peace. When desperate we feel we'd do anything. Ropinerole actually works better if taken before (perhaps an hour) the time symptoms would be expected rather than when they are active. If done this way is it possible that t...
by Polar Bear
Thu Mar 07, 2024 11:43 am
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 34
Views: 1543

Re: Reversing Restless Leg Syndrome

I hope you have a seamless switch from the Gabapentin to the Pregabaline. Good luck on your journey.
by Polar Bear
Thu Mar 07, 2024 11:37 am
Forum: Just Joined?
Topic: March 2024
Replies: 24
Views: 955

Welcome to Paula Westerlund

7 March 2024 Welcome today to PaulaWesterlund who is 88 and very sleep deprived, hence dragging in the daytime. Thinking now she is experiencing augmentation, since the restlessness begins 5 minutes after laying down at night after taking 50mgs. of ropinerole. So has to get up and become a Nightwalk...
by Polar Bear
Wed Mar 06, 2024 5:09 am
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 494

Re: Methadone causing Sleep Apnea?

I only ever sleep on my right side. A neck condition prevents otherwise. I was diagnosed with sleep apnea about 4 years ago.
As regards moisture, I have no idea. I don't use water with my cpap and my apneas are very low. At diagnosis they were 20 and using the cpap are around 1.
by Polar Bear
Tue Mar 05, 2024 6:57 pm
Forum: Just Joined?
Topic: March 2024
Replies: 24
Views: 955

Welcome to KALB0333

Tuesday 5 March 2023

Welcome today to

KALB0333 who wants to keep up to date with current research and funding and individual experiences. To share information. To share opinions.

We hope you find this site useful and interesting. If you have any questions please make a post and ask.
by Polar Bear
Tue Mar 05, 2024 10:33 am
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 34
Views: 1543

Re: Reversing Restless Leg Syndrome

If I understand you correctly - On day 15 you plan on dropping from 2mg to 1mg requip. That's a 50% drop.

I did it very differently and took 10 months to wean off 5mg requip by very small drops, using a pill cutter, and with the support of pregabalin and cocodamol.
by Polar Bear
Mon Mar 04, 2024 8:18 pm
Forum: Just Joined?
Topic: Head roll
Replies: 24
Views: 703

Re: Head roll

Slightly different..... In June last year I had a dreadful headache at the base of my skull. It got worse over a couple of days. One evening I rang the out of hours duty doctor and he told me to going to ER. My husband took me. By this time my hair was soaking wet and I had towels with me to keep mo...
by Polar Bear
Mon Mar 04, 2024 11:37 am
Forum: Just Joined?
Topic: Head roll
Replies: 24
Views: 703

Re: Head roll

It's awful that you went undiagnosed for all that time.

So many doctors are not good at treating RLS. We must always do our best to educate ourselves and be able to discuss our condition, discuss the merits of different medications. Some doctors are wonderful and a treasure, others not so much.
by Polar Bear
Mon Mar 04, 2024 11:26 am
Forum: Just Joined?
Topic: March 2024
Replies: 24
Views: 955

Welcome to LeeT

Monday 4 March 2024 Welcome today to LeeT whose RLS started at around 50 years of age.. Did not know what it was until later. Big impact is on LeeT's sleep. To sleep through the night 2 nights a month it is remarkable. Lack of sleep is the biggest impact on LeeT's life now. Sleep is indeed what driv...
by Polar Bear
Sun Mar 03, 2024 10:51 am
Forum: Just Joined?
Topic: March 2024
Replies: 24
Views: 955

Welcome to Victoriag

3rd March 2024 Welcome today to Victoriag who says.... What life? Day and night... constantly exhausted. at the lowest point she has ever been. Ropinerole made her violently sick, pramipexol and madopar she suffered augmentation. Pregabalin didn't touch her. Currently taking gabapentin but no sign o...
by Polar Bear
Sat Mar 02, 2024 1:23 pm
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 494

Re: Methadone causing Sleep Apnea?

I meant that you should have it checked out as to why your sleep apnea is so bad even though you are using the cpap. If it was me I'd be thinking something needs adjusted/changed so I'd know if I could comfortably continue with the methadone, or not. Only my own thoughts. I have no medical training ...
by Polar Bear
Sat Mar 02, 2024 3:11 am
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 494

Re: Methadone causing Sleep Apnea?

My sleep test showed that I had a level of 20 apneas and now that I use the cpap it averages 0.5.
I can recall the waking up gasping for air and feeling for what seemed a long time that I couldn't get a breath. It was very alarming.
You need to have it checked out.
by Polar Bear
Fri Mar 01, 2024 5:27 pm
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 494

Re: Methadone causing Sleep Apnea?

I am a 74F and an rls sufferer of 40 years. My treatment is not methadone but is max doses of cocodamol and pregabalin. I also reckon I have about 90% relief. I have sleep apnea diagnosed 4 years ago. The cpap machine is wonderful. I don't know if the cocodamol plays any part in the sleep apneas but...
by Polar Bear
Thu Feb 29, 2024 5:15 pm
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 34
Views: 1543

Re: Reversing Restless Leg Syndrome

Everyone should be wary of promises of cures for RLS , especially where money is involved.
by Polar Bear
Thu Feb 29, 2024 12:32 pm
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 34
Views: 1543

Re: Reversing Restless Leg Syndrome

Well done. I hope you will be discussing a treatment plan going forward following your reductions.