Restless Legs Syndrome (RLS) Discussion Board

Ann, you have a right to be peeved! It seems like you should be getting something positive out of this, right? I'm sorry you and Fidget had such bad nights. We really should consider finding a way to get the chat thing going. Maybe getting some things off our minds could help with the frustration (a...

On a lighter note, as I was leaving my *@#$ doctor's appointment, someone mentioned that I might want to check my car because there was a car on fire in the parking garage. Who should be parked directly next to the car on fire? Why me, of course! I almost laughed at the fact that piled on top of the...

Thanks so much for your support. Additionally difficulty in that the way the doctor prescribed me the Mirapex is very expensive. He said I could up my dose as fast as a I like, but will likely experience severe side effects. If I get a month's suppy in this highes dose, it is around $85. If I get a ...

Warning! - long update on my visit ahead.I just got back from the specialist and, as predicted by some veterans, I am a bit disappointed. The doctor apparently knew about RLS, but had never seen anyone with augmentation from Requip. He put me on Mirapex. I asked if there wasn’t a chance that the Mir...

You poor dear. You are among people who understand. In fact, I find myself at my own wit's end at the moment. However, that's why this site is here. It seems to me (and I am pretty new to all of this), that folks carry each other when the burden gets too heavy, and then we return the favor when we a...

Emily,
Dr. B.'s e-mail is somno@earthlink.net. I e-mailed him a question a couple of weeks ago and he responded quickly and kindly. Good luck, honey.

Ann, I really appreciate your help on this. Just 16 hours to go! I'm trying to keep caution in mind, but I'm also very nearly nuts about now, so I can't seem to help getting my hopes up. Today, for the first time since I've been off the Requip (about 2 weeks), I had about 3 hours without symptoms. T...

Thanks, Anne! I think I can do that. Next time I think it might be helpful, maybe I can be a big girl and post the link myself. Check it out, Ruth, and let us know if it raises any questions!

Thanks, Anne! My symptoms are continuing to worsen after about 2 weeks off the drugs. Thanks for the info that I might need a break from the DAs altogether. Also, thank you for the word from Dr. B. that some people continue to have their symptoms worsen following augmentation. I was beginning to won...

Ruth, my dear, it sounds like you might be one of us. I offer you a sad, but enthusiastic welcome, because I want you to feel welcome here, but wouldn't wish this on anyone. You should head to the doctor for an evaluation. It sounds like you not only have RLS, but might also have Periodic Limb Movem...

I hate to add my fussing to the end of such kind and encouraging words, but today is my day to want to pull my hair out. I have gone off all meds prior to my meeting with the neurologist so that I will be able to be evaluated "clean." The Requip was causing problems anyway, but I also quit my antide...

This is my first time to look past the "RLS-General Topics" part of this discussion board, so I am again amazed at how there are other people who understand how I feel. There have definitely been times when I have been jealous of my husband (who is the kindest, most supportvie person in the world) w...

I'm not sure if this is where this should go, but I wanted everyone to know that the book about RLS that has been recently published is quite helpful. Restless Legs Syndrome : Relief and Hope for Sleepless Victims of a Hidden Epidemic by Robert Yoakum is up-to-date, informative, incorporates the wor...

I know I'm behind, but finally got around to making my donation yesterday. I probably would not have done it without the info and encouragement you guys have provided. When I told my husband about the donation, I said, "And the reason I gave this donation is..." and he interrupted saying, "The reaso...

I have recently begun the new book entitled "Restless Legs Syndrome" (Yoakum, Robert H. Restless legs syndrome : relief and hope for sleepless victims of a hidden epidemic" New York : Simon & Schuster, c2006.) It has been recently published and has a very understandable, plain-spoken approach to...