Search found 1284 matches
- Thu Aug 12, 2021 9:05 pm
- Forum: Just Joined?
- Topic: How do you see posts in order from most recent?
- Replies: 2
- Views: 2692
Re: How do you see posts in order from most recent?
Go to the menu at the top left of the page, click on "Quick links" and pick what you want. They appear in date order for me when I do that.
- Thu Aug 12, 2021 8:45 pm
- Forum: Prescription Medications
- Topic: Dose for Iron Infusions - Injectafer
- Replies: 5
- Views: 1989
Re: Dose for Iron Infusions - Injectafer
The International Restless Legs Syndrome Study group (IRLSSG) guidelines list the USA dose on page 31 as 750mg then repeated 5-7 days later (1500mg total). https://reader.elsevier.com/reader/sd/pii/S1389945717315599?token=51A42754AC1E81983A97DC03B09EEDE070E1BDC7B8778C62A2D2C872DCB3856092183DAC861C50...
- Mon Aug 09, 2021 1:52 pm
- Forum: Augmentation
- Topic: Ropin-a-ROLLIN over me like a semi truck
- Replies: 31
- Views: 18687
Re: Ropin-a-ROLLIN over me like a semi truck
I have been slowly tapering off Ropinirole... The cannabis just isn't cutting it. I am going to write the doc tomorrow to see if they think Tramadol would help. I don't know how much longer I can hold out as I just feel really low and hopeless. Oh I am lucky, the doc did give me FMLA for 6 weeks on...
- Sat Aug 07, 2021 12:41 pm
- Forum: Prescription Medications
- Topic: Iron infusion question
- Replies: 2
- Views: 1813
Re: Iron infusion question
There is a lot of variation, however, for most people, it takes a few weeks for the iron to have a noticable effect. The first set of IV iron infusions last the shortest time, 6 months or so is common, however, again, there is lots of variation. Subsequent infusion sets last longer, usually about a ...
- Wed Aug 04, 2021 12:33 am
- Forum: Augmentation
- Topic: Medication?
- Replies: 7
- Views: 8711
Re: Medication?
Any references on the iron? My sleep specialist, one of the most well known on RLS, says the data just isn't there and advised against it as my lab parameters are all normal. RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have their symptoms markedly reduced or even eliminat...
- Sun Aug 01, 2021 9:43 pm
- Forum: Augmentation
- Topic: Iron Infusion - decreasing dopamine agonist
- Replies: 5
- Views: 10208
Re: Iron Infusion - decreasing dopamine agonist
I'm in the same situation as the OP, but having augmented on Neupro instead of requip. My infusion duo starts August 9th. I also currently take 600mg of gabapentin. When I start to wean off of my 6mg Neupro (perhaps 4 weeks after my 2nd infusion), should I increase my gabapentin concurrently? Micha...
- Sat Jul 31, 2021 2:00 pm
- Forum: Just Joined?
- Topic: RLS behind knee caps New to forum
- Replies: 13
- Views: 6380
Re: RLS behind knee caps New to forum
Jennifer, I agree with Betty. The 0,375mg of Mirapex is a high dose. The recommended starting dose is 0,125mg.
- Sat Jul 31, 2021 12:53 am
- Forum: Just Joined?
- Topic: RLS behind knee caps New to forum
- Replies: 13
- Views: 6380
Re: RLS behind knee caps New to forum
Hi Jennifer. I'm glad you found us, but sorry you are having problems. My first thought on reading your post is that you probably should get a second opinion about the RLS diagnosis. I say this partially because you say you don't have urge-to-move. But urge-to-move is a required symptom for the diag...
- Wed Jul 28, 2021 2:21 pm
- Forum: Just Joined?
- Topic: New Member - MHochner24
- Replies: 6
- Views: 4242
Re: New Member - MHochner24
Hi MHochner24. Welcome, and I'm sorry you are having problems. I'm sure you have RLS if your neurologist and Dr Buchfuhrer say you do, Dr. B is one of the world authorities on RLS. As far as additional tests, there is no test for RLS, the diagnosis is made on the basis of your symptoms and examinati...
- Wed Jul 28, 2021 1:50 am
- Forum: Prescription Medications
- Topic: Fentanyl patches for RLS
- Replies: 22
- Views: 10677
Re: Fentanyl patches for RLS
I wonder if fentanyl is actually better for RLS patients genereally than other opioids. I suspect it has been used only very rarely for RLS, so not much experience.
- Tue Jul 20, 2021 2:24 pm
- Forum: Prescription Medications
- Topic: My Story and Dilemma
- Replies: 30
- Views: 6038
- Mon Jul 19, 2021 7:25 pm
- Forum: Prescription Medications
- Topic: My Story and Dilemma
- Replies: 30
- Views: 6038
Re: My Story and Dilemma
Another perplexing issue for me is inflammation and ferrous blood concentration. From what I've read the more inflammation one has ferrous levels rise. This makes me wonder if my "natural" ferrous levels are very low. The last measured ferrous was 87. However, this was measured hours after eating b...
- Mon Jul 19, 2021 12:22 am
- Forum: Prescription Medications
- Topic: My Story and Dilemma
- Replies: 30
- Views: 6038
Re: My Story and Dilemma
I'm trying to get my head around the mechanism for iron infusions and why they work. Basically, iron absorption from the gut is body regulated, so ingested iron is limited with its absorption into the blood. Conversely, iron infusions add iron directly to the blood stream, and the hope is that with...
- Sat Jul 17, 2021 11:07 pm
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 421320
Re: Published Research - General Sleep and RLS (WED)
Conclusions Dipyridamole has significant therapeutic effects on both sensory and motor symptoms of restless legs syndrome and on sleep. This is a very helpful development in RLS treatment. The authors include people who worked on the much more theoretical article published a couple of years ago out...
- Sat Jul 17, 2021 4:51 pm
- Forum: Prescription Medications
- Topic: My Story and Dilemma
- Replies: 30
- Views: 6038
Re: My Story and Dilemma
Both THC and Kratom are effective for treating RLS. THC doesn't do much for urge-to-move, but clearly helps lots of people sleep. Kratom has some opioid like effects, helps urge-to-move, doesn't help sleep as much. I and many others on this forum have and continue to use these. As far as safety... W...