Restless Legs Syndrome (RLS) Discussion Board

Wednesday, January 29

Welcome to

Crazy legs, who RLS causes loss of sleep low energy level during the day.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We would love to be able to help you out.

Tuesday, January 28 Welcome to Carol Edwards, who has had RLS for at least 10 years now. It stops her from getting to sleep and often continues thru the night. She can't do movies or anywhere she has to sit still. So, she needs answers. Carol, if you will post a note telling us what you do to manage...

Monday, January 27 Welcome to Garypic, who has been treated for RLS as far back as the late 80s and has tried most if not all the Meds in the pipeline with different degrees of improvement. His concern is the lack of knowledge that most doctors hold. It appears that they treat RLS as a one size fits...

Monday, January 27

Welcome to

SandyP, who is struggling with worsening RLS. She is looking for resources and support so she can manage her symptoms.

Please post a note telling us about what you are currently doing to manage your symptoms so that we can offer some suggestions for improvement.

XenMan, not all current research is focused on brain neurology although some of the biggest strides have come in this area. A year or two ago, Penn State published some work where they looked at venous blood flow in the legs. They found that RLS patients have higher flow under normal conditions but ...

Sunday, January 26 Welcome to debk67, who has suffered with RLS for 30 years and medication that used to work is no longer working. She is hoping to learn from other's experiences and contribute from her own. Please post a note and tell us about the medication that is no longer working. We can proba...

The idea of a connection between RLS and mast cells is intriguing to me. I have had various allergy problems ever since I was 4 yrs old. After reading through the info on MCAS, there is a good chance that I have it even though I have never been diagnosed with it. I take several of the meds used to t...

Sunday, January 26 Welcome to Debl1, whose RLS has affected her life in numerous ways; lack of sleep, embarrassing episodes in front of strangers (friends and family don't mind and try to help), taken her confidence which she needed to recover from two botched replacement operations. She is often fo...

Saturday, January 25 Welcome to Brendan, who is a 51 year old male in USA. He has been taking a DA (Ropinerole) for almost 20 years. From 47 to 51 years old, experiencing (severe) DA augmentation. In early 2020, he tried to get off DA completely (with no substitute) but his symptoms went absolutely ...

A bit of an update. I found out two days ago that the attorney for another previous patient filed a lawsuit against the psyc hospital while I was there. The lawsuit alleges criminal activity by the hospital's parent company. My attorney has been in contact with them and we will probably cooperate. T...

Friday, January 24 Welcome to jrexford35, who has struggled with RLS for years and is currently in a very bad pattern of RLS. jrexford has tried lots of different remedies, none of which work in the long term. Please post a note telling us about these remedies. There are long term solutions that we ...

Friday, January 24 Welcome to roger, who has been suffering from RLS for the past 25 years. He used to wake up and beat on his knees just to make it stop until he went to the doctor and found out about RLS. Even now the medicines don't always work. He feels as though at times he wants to remove my l...

Thursday, January 23 Welcome to cstephens.mhc, whose RLS has gotten steadily worse over the years and until recently was afraid of getting old. cstephens envisioned age 90, frail and standing in the evening. Not a pretty vision! Please post a note telling us what you do to manage your RLS and asking...

Thursday, January 23 Welcome to ktonetti, whose RLS has thrown off her sleep which throws off her entire day. She is afraid to go back to work because she fears that she will not have enough rest to perform well. Please post a note telling us what you are doing to manage your RLS. We can probably pr...

Wednesday, January 22 Welcome to Moosh66, who has Restless Arm Syndrome which is the same as the RLS but only in the arms. It interrupts Moosh's sleep and Moosh can't sit still. My previous doctor says that the "L" in RLS should stand for Limbs because it can happen just about anywhere in the body. ...