Search found 5605 matches

by Rustsmith
Fri Apr 05, 2024 7:28 pm
Forum: Prescription Medications
Topic: Ferritin levels and IV iron
Replies: 20
Views: 6824

Re: Ferritin levels and IV iron

Here is a publication that describes the types of iron used for infusions. Venofer is iron sucrose. Dr Earley at Johns Hopkins has done the largest part of the evaluation of IV iron treatments for RLS and he prefers iron carboxymaltose over the simpler iron sugars like sucrose. I don't remember if i...
by Rustsmith
Thu Apr 04, 2024 8:07 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 40
Views: 1005

Re: Where do I go from here?

That sounds like great news. I hope that the 20mg oxy ER works well for you for a very long time. And also good that you don't need to mess with pain management since they often don't understand conditions like RLS that are not classical pain situations where they can try other treatments to try to ...
by Rustsmith
Thu Apr 04, 2024 5:57 pm
Forum: Just Joined?
Topic: APRIL 2024 - New Members
Replies: 15
Views: 456

Welcome to snowluvr

Thursday, April 4 Welcome to snowluvr, whose RLS not only does this disrupt sleep patterns it affects motivation to accomplish projects. If his wife didn't sleep so soundly, his constant getting up and returning to bed would disrupt her sleeping as well. Is your doctor currently treating your RLS? H...
by Rustsmith
Thu Apr 04, 2024 5:53 pm
Forum: Just Joined?
Topic: APRIL 2024 - New Members
Replies: 15
Views: 456

Welcome to West_Coast

Thursday, April 4 Welcome to West_Coast, who was diagnosed and started on gabapentin 4 years ago, after reaching a point where nothing worked (massage, heat etc) and she was awake all night. Now she is chained to taking this medication every night, but even then she has regular problems with symptom...
by Rustsmith
Thu Apr 04, 2024 5:52 pm
Forum: Just Joined?
Topic: APRIL 2024 - New Members
Replies: 15
Views: 456

Welcome to West_Coast

Thursday, April 4 Welcome to West_Coast, who was diagnosed and started on gabapentin 4 years ago, after reaching a point where nothing worked (massage, heat etc) and she was awake all night. Now she is chained to taking this medication every night, but even then she has regular problems with symptom...
by Rustsmith
Thu Apr 04, 2024 1:10 am
Forum: Just Joined?
Topic: APRIL 2024 - New Members
Replies: 15
Views: 456

Welcome to Tompyro

Wednesday, April 3 Welcome to Tompyro, whose RLS is so impactful on his life. He says that it is unbelievable how many hours sleep he has lost during an episode. He takes Requip 1mg dose. His Dr. doesn’t want increase the dose. It seems that lately his arms are becoming involved after going to bed. ...
by Rustsmith
Wed Apr 03, 2024 10:10 pm
Forum: Just Joined?
Topic: APRIL 2024 - New Members
Replies: 15
Views: 456

APRIL 2024 - New Members

Wednesday, April 3 Welcome to jansessions, who is not sleeping. Sleep problems are a major issue for those of us with RLS, but there are treatments that are effective provided that your doctor doesn't try the normal insomnia meds. If you can post a message to let us know what RLS meds you are taking...
by Rustsmith
Tue Apr 02, 2024 3:02 am
Forum: Just Joined?
Topic: Head roll
Replies: 33
Views: 956

Re: Head roll

I don’t know how to put a link on here To post a link, you need to click the button that says "Full Editor and Preview", which adds a few icons above the white text area. To post a link, click on the two little linked chains near the right side (just to the left of the little flame), this will add ...
by Rustsmith
Sun Mar 31, 2024 4:16 pm
Forum: Just Joined?
Topic: March 2024
Replies: 28
Views: 1098

Welcome to Kathy demchuk

Sunday, March 31 Welcome to Kathy demchuk, whose RLS is causing no sleep! She cannot do any functions because if this. One of the first things that drives patients to seek help is sleep and not the movement part. Are you currently taking a medication? Has your doctor done blood tests to check your f...
by Rustsmith
Fri Mar 29, 2024 8:08 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation
Replies: 15
Views: 643

Re: Quotes from 2 Legendary RLS Researchers connecting RLS to Inflammation

Since this thread cannot seem to come to a conclusion and since Dr Weinstock is repeatedly cited as "one of the world's greatest exterts on RLS", I decided to use the same tools to investigate him that I would if I saw a citation in my own field of study from someone that I had never heard of before...
by Rustsmith
Wed Mar 27, 2024 4:07 pm
Forum: Just Joined?
Topic: Head roll
Replies: 33
Views: 956

Re: Head roll

My biggest challenges are convincing my Dr. how effective these meds have been but his concern will always be about creating an addict. The next time you see your doctor, provide a copy of this document which was written specifically to educate doctors like yours that opioids are appropriate for RL...
by Rustsmith
Wed Mar 27, 2024 3:58 pm
Forum: Just Joined?
Topic: New Member
Replies: 1
Views: 52

Re: New Member

Welcome to the group. If you read through a number of our discussions, you will see that many of us have failed the dopamine agonists through augmentation and that iron therapy and gabapentin/Horizant/Lyrica did not work for us. Most of these members are either taking oxycontin ER, methadone or bupr...
by Rustsmith
Wed Mar 27, 2024 12:40 am
Forum: Just Joined?
Topic: March 2024
Replies: 28
Views: 1098

Welcome to Swamiail

Tuesday, March 26 Welcome to Swamiail, who have been diagnosed with Peripheral Neuropathy and suffers from RLS every night. She also has leg cramping. It is ruining her life. Has your doctor prescribed either gabapentin or Lyrica for the neuropathy and/or RLS. Those meds generally help with both con...
by Rustsmith
Tue Mar 26, 2024 10:37 pm
Forum: Just Joined?
Topic: March 2024
Replies: 28
Views: 1098

Welcome to Ragnar

Tuesday, March 26 Welcome to Ragnar, who has chronic RLS that is getting worse as he gets older (64). It is becoming very disrupting as he has 2 - 3 days with RLS all night and even occurring during the day when it gets really bad. The options for medications are not very effective and he has tried ...
by Rustsmith
Tue Mar 26, 2024 12:22 am
Forum: Just Joined?
Topic: March 2024
Replies: 28
Views: 1098

Welcome to dmarney

Monday, March 25 Welcome to dmarney, who is going through DAWS. So life is a mess! There are two conditions that are frequently referred to as DAWS. The more common and less severe (but still extremely difficult) is withdrawal from any of the dopamine agonist meds, usually due to augmentation. This ...