Restless Legs Syndrome (RLS) Discussion Board

Saturday, February 1 Welcome to Edyb, who has had RLS for several years. It affects her hands and arms too. She takes Requip which only works moderately. She is lucky to get 4 hours of sleep. Please post a note telling us what dose of Requip you are taking so that we can offer you some suggestions t...

At one point my GP said that the max dose pretty much depends upon side effects, which are specific to the individual. But he joked that anyone who was trying to get high off of it could take over 3600mg at a time and that all they would get is a long nap.

Saturday, February 1 Welcome to gracelands618, who wants to learn more about meditations. Graceland's doctor doesn’t seem to know much. Unfortunately, ignorance of RLS is something that is common among doctors. Take a look at our forum on Physical Treatments and you may find something on meditation....

Saturday, February 1

Welcome to

jjdaly4127, who needs to be able to trade info on helping alleviate the pain of RLS.

Please post a note with some of the info that you would like to trade and we can begin that process.

His regular office is in Downey, CA (Los Angeles area). His phone number there is (562) 904-1101

Thursday, January 30 Welcome to golub, who has been suffering from RLS since at least 1999 and was finally diagnosed in 2016. golub has found the RLS organization extremely helpful and encouraging, but still has a few questions. Please post a note with your questions and if we cannot answer them, we...

Thursday, January 30 Welcome to hwinborne, who has lived with WED since age 19, more than 40 years. With age, other nagging ailments arise and it becomes more difficult to manage. So, hwinborne is looking for information and support. Please post a note telling us what you are doing to manage your WE...

Enigmaman, since your problem is PLMS and not RLS, do you think that it might be possible that when you stopped the patch that your PLMS returned to its old level and that your legs are tired because you have been kicking all night? In a 2.5 month period, you could have lost some of the muscle tone ...

Wednesday, January 29

Welcome to

Crazy legs, who RLS causes loss of sleep low energy level during the day.

Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We would love to be able to help you out.

Tuesday, January 28 Welcome to Carol Edwards, who has had RLS for at least 10 years now. It stops her from getting to sleep and often continues thru the night. She can't do movies or anywhere she has to sit still. So, she needs answers. Carol, if you will post a note telling us what you do to manage...

Monday, January 27 Welcome to Garypic, who has been treated for RLS as far back as the late 80s and has tried most if not all the Meds in the pipeline with different degrees of improvement. His concern is the lack of knowledge that most doctors hold. It appears that they treat RLS as a one size fits...

Monday, January 27

Welcome to

SandyP, who is struggling with worsening RLS. She is looking for resources and support so she can manage her symptoms.

Please post a note telling us about what you are currently doing to manage your symptoms so that we can offer some suggestions for improvement.

XenMan, not all current research is focused on brain neurology although some of the biggest strides have come in this area. A year or two ago, Penn State published some work where they looked at venous blood flow in the legs. They found that RLS patients have higher flow under normal conditions but ...

Sunday, January 26 Welcome to debk67, who has suffered with RLS for 30 years and medication that used to work is no longer working. She is hoping to learn from other's experiences and contribute from her own. Please post a note and tell us about the medication that is no longer working. We can proba...

The idea of a connection between RLS and mast cells is intriguing to me. I have had various allergy problems ever since I was 4 yrs old. After reading through the info on MCAS, there is a good chance that I have it even though I have never been diagnosed with it. I take several of the meds used to t...