Restless Legs Syndrome (RLS) Discussion Board

Hi Lori, and welcome. Lot's of people experience the sensations in places other than their legs. For me, it starts in my arms and then progresses to my legs, although usually what I feel in my legs is pain, and what I feel in my arms is the creepy crawlies. The bad news is that it's a progressive co...

Hi Jumpy, Yes, I have pain, and not the kind described by neuropathy. My pain is deep, aching pain that is in the same areas where I have the creepy crawly sensations. I think part of it is that PLMs that make the same muscles spasm over and over, but there is more to it than that. Fortunately for m...

Hos, I take them religiously, but they don't seem to help with the constipation. I've been taking the "Pearls" brand. I don't know why I keep taking them, LOL. My diet doctor asked me if the Vicodin makes me constipated, and I told her that I've always been stopped up, and that now, nothing moves th...

D4 - Are you taking something specifically to help you sleep? Ambien, Lunesta, Sonata, even melatonin... Vicodin doesn't make me the least bit sleepy, in fact has no effect on me other than to take away the pain and the other sensations. (Some people get euphoria from that?!) I usually take a Lunest...

Well, one of the ways I've coped with the RLS thing in the past is to get up in the middle of the night and deliver papers. I did that for 6 years. I've just never thought about there being genetic selection for people to become paper carriers, LOL. But for some people to be up at night protecting t...

You people are all so great. Things are calming down around here, for the time being, although I did have to do some "tough love" stuff with my daughter. I told her a couple times last week to schedule her dial-a-ride bus service to her college, and she "forgot." She hates making phone calls, so she...

After talking with doc today, I'm going to try the 600 mg neurontin with a vicodin or ultram to see how that goes. Perhaps wish I had started this with 300 mg. but maybe it wouldn't have made a difference anyway. Susan, for me, the neurontin appears to make a good impact on my PLM. I really would l...

A 100mg dose of Neurontin knocked me out for the night like a brick. That was good, but I couldn't wake up in the morning even though I took the Neurontin about 7:30pm and went to bed around 10:30. My husband was pretty annoyed with me because he had to force me to wake up every morning for work. H...

Susan- I have a vestibular deficiency as well -- and my experience with Neurontin hasn't been bad. Yes- I was extremely tired for the first week, and I DID feel drunk for a short while.... but the reduced leg kicking was worth all of that. I use neurontin in addition to my narcotic (like brandy is ...

My husband has a boss at work who has some kind of thing going on where he decided he needs more exercise or has a problem sitting still. They've been working on getting him a treadmill with a built-in computer stand. That way he can walk on his treadmill while doing his computer work. Apparently th...

Requip worked wonders the first night. I had no twitching, jerking, or creepy crawlies in my legs. It was like a miracle. I don't ever remember having my legs feel so relaxed. Unfortunately within 2 weeks I started getting pain after taking it. And the nausea and sinus stuffiness were pretty bad. By...

I have been on Clonazepam, 0.5mg, less than one month. It is working very well for my RLS. It has stopped the evening "attacks," and I'm getting six to seven hours of sleep. BUT...what I am now discovering is it's causing me to be irritable and depressed. I don't like myself this way, since I am us...

Thanks to all of you for the support. Sometimes life is just so hard. But we're getting help. And today was much better since her spring semester classes started today. She's pretty jazzed about her classes, and it will give her something to do that she enjoys. Plus she needs to do 30 hours of volun...

Just don't let yourself become a bystander. Remain pro-active, no matter how painful it may seem. Another resource you may look into versus the ER is looking up human health services for your county. That's where my doctor referred me to when I finally decided I needed to talk to someone about a ye...

Your daughter sounds alot like my son at that age; bright, talented, and depressed! He too would be abusive, make threats, brake things and generally lash out at us. I think that those kids who are so bright have it especially rough; their minds are way ahead of their emotions. It broke my heart - ...