Restless Legs Syndrome (RLS) Discussion Board

I think the medication issue is resolved at least for the time being. I decided that the 600mg Horizant, was not working as well as the 1800mg gabapentin. After going thru the hassle of getting the VA to prescribe it, I opted to go back to the gabapentin. It's been 3 weeks and I still have the occas...

Yes, Beth, I was taking 1200mg of Horizant when the VA decided I needed to try the gabapentin. The VA didn't like that I was on 1200 and now will only give me 600mg/day. Having been on the Horizant from the VA now for 24 days my confusion continues. Some things I've learned.... I've not been consumi...

Finally got Horizant from the VA. That process would have had me pulling my hair out....if I had any. They approved it and then a week or so later said they wanted me to try Lyrica. I told them I'd tried it and that fact was in the Neurologist's chart notes. They said to send the notes again. He did...

The VA sent more gabapentin after 'we' made a request for Horizant. I then began taking 2 gabapentin at 1800 and then 1 more at 2000. This dosage gave decent results some of the time but was ineffective some of the time. Hence, the second request to the VA which is still being 'considered' as of 4/1...

The neuro just sent a new RX and notes to the VA so we're waiting for their response. Fingers crossed.

Thanks for that info Steve! I just spoke with my neurologist's medical asst and she will pass on to him this latest 'critique' of gabapentin. It sounds like maybe the only thing I need to try is bumping up my 7PMdose from 1200 to 1800mg. Maybe that puts more of the gaba into my bloodstream and the o...

I had my hospital sleep study and it basically confirmed what I'd been told after the home sleep study....mild obstructive sleep apnea. The sleep study itself was a 'pain" and I don't care to go through it again. In the months leading up to the study I had been continually adjusting the MAD, gi...

I've not been here for a few months so thought I'd comment on my progress in a couple of areas. First off, re: the issues of sex & RLS.....I found that fairly often orgasm would relieve my RLS symptoms. It didn't always work but often enough that it was always my 'go to". This was during th...

Thanks Sleepdancer for your thoughts! Right or wrong, I've taken the plunge and have been fitted for the MAD. I expect to get the device in several weeks. Now that I'm back home and settled in, I'm trying to get back into a bedtime/sleep routine and trying to determine the ideal time to take my Hori...

I've been out of town and on a road trip since end of June. Now back home and into my 'routine'. I've not been following my 'sleep nazi's' rules....just too complicated for my transient lifestyle. On Horizant my rls symptoms have generally continued to be mild but have been more frequent while trave...

I've now been off the temazepam for about 2 weeks. I seem to have stabilized with the 1200mg of Horizant and this is what is now typical for me: I get up every morning to an alarm at 6 unless I wake earlier, sometime after 5. I'm active all day, take no naps and am in my recliner, after dinner, by 6...

Sorry Holland...didn't answer your question about drugs. Other than the Horizant and short term temazepam, I take ranitidine for gerd and simvastatin. Oh, and cialis daily. I'd not thought about rls being "notoriously variable". Knowing that I'm no longer concerned about it. I'll take the ...

Last night was a good following the 2 previous. Last night I took the temazepam at 2115, expecting doze and then hit the sack at 2200 as usual. Instead I fell asleep in my chair sometime after 2130, woke at 2245, went to bed and slept straight thru 'til 0415. That was nice! I've had some stress late...

I've now had almost 'perfect' sleep since starting the Horizant/Temazepam regimen nearly a month ago. The first 23 nights I had no rls movements and slept well for 5-8 hours. Sometimes I'd wake with an alarm and other times I'd wake a little earlier. Sometimes I slept straight thru but usually I had...

Thanks Beth! I hope you find a way to get that 6-8 hours unbroken.

Jim