Search found 14416 matches
- Wed Nov 03, 2004 6:05 pm
- Forum: Just Joined?
- Topic: Hello...Just found you!!!
- Replies: 11
- Views: 5246
Re: Sugar
Hi Ann (Hi Lyn), it's Jan You seem to be pretty intelligent and you seem to know quite a bit about how the nervous system works. Since RLS can be hereditary and some RLS patients eventually are diagnosed with fibromyalgia, do you supppose that fibro can also be inherited? Thanks for your answer in ...
- Wed Nov 03, 2004 4:52 am
- Forum: Physical Treatments
- Topic: "sewing machine legs" or bouncing legs while sitti
- Replies: 50
- Views: 31515
Count me in
I also do this, as did my grandmother and and does my mother. I only do it when the RLS is active, though. For me, it stops the need to move the legs and it stops the electricity feeling. When that doesn't work anymore, then I start walking.
Ann
Ann
- Tue Nov 02, 2004 5:03 am
- Forum: General Topics: RLS
- Topic: Quality of Life Staement Plea
- Replies: 39
- Views: 13413
Becat
Thanks again. I was on that page, but didn't see the link. Guess I was looking for a big heading that said REGISTER HERE!!!! I'm planning on registering in the morning. It will be great to meet you and any others that are there.
- Tue Nov 02, 2004 4:52 am
- Forum: General Topics: RLS
- Topic: Addictions and RLS. . .
- Replies: 2
- Views: 1995
Thanks for the link
Becat I appreciate the link. . .goes to show what a little searching on my own would have done . I'm surprised no one was that interested in the topic, especially as several people have indicated additions. Well, it's my guess that no one knows what they are really doing by playing with these neurot...
- Tue Nov 02, 2004 1:49 am
- Forum: General Topics: RLS
- Topic: Quality of Life Staement Plea
- Replies: 39
- Views: 13413
Registration?
I'd like to go to the conference - if I book a flight right now, it's not too expensive. But I can't see anywhere on this site to register!!! If anyone knows how, please let me know. I don't want to book my flight until I know that I can register.
Ann
Ann
- Mon Nov 01, 2004 11:17 pm
- Forum: General Topics: RLS
- Topic: Addictions and RLS. . .
- Replies: 2
- Views: 1995
Addictions and RLS. . .
I was reading the "My RLS Mountain" posts from the last couple of days and I started thinking (dangerous, I know!). I used to be a smoker and have struggled with weight since I was a child. I absolutely use food (specifically sugar and fat) the way someone else might use drugs or alcohol: to self-me...
- Mon Nov 01, 2004 7:41 pm
- Forum: Prescription Medications
- Topic: Wax and wane . . . or permanent?
- Replies: 9
- Views: 5499
Re: Cover up?
Hi Pete, thanks for the welcome. Glad to be here. I read your post and wanted to add some thoughts. Mirapex caused considerable augmentation for me. Then it caused rebound. Then it quit working on the PLMs, but still worked on the RLS. When I started tapering off (at .75 mg), the RLS was often 24/7 ...
- Mon Nov 01, 2004 7:08 pm
- Forum: Prescription Medications
- Topic: Wax and wane . . . or permanent?
- Replies: 9
- Views: 5499
Hi Lyn
Hi Lyn, thanks for the welcome. I had some difficulty with the Mirapex immediately. The first night I took it, and every other time I had to increase it, I had an entire night of lucid dreaming. Now, I know some people actually want to do this, but I am not one of them! I also had severe augmentatio...
- Mon Nov 01, 2004 6:37 pm
- Forum: Just Joined?
- Topic: Hello...Just found you!!!
- Replies: 11
- Views: 5246
Sugar?
I've heard several RLS sufferers say that when they cut out carbs and sugar they get better. So, since candida and sugar are linked, it would make sense. Related to that, I was wondering if there's a neurotranmitter link in some way. For me, sugar is like alcohol to an alcoholic. I've been using it ...
- Mon Nov 01, 2004 6:27 pm
- Forum: Physical Treatments
- Topic: RLS arm relief
- Replies: 6
- Views: 4860
My. . . .
Pete, the part about this working for you 70% of the time is wonderful. It's great to hear when someone can get some sleep by doing something. I was struck, though, with a sadness when I read it. It's incredible what we have to go through to find relief. I suppose I could have read into this the ten...
- Sun Oct 31, 2004 11:06 pm
- Forum: General Topics: RLS
- Topic: rls worse in left leg
- Replies: 15
- Views: 6486
Alternating
I find it alternates over time. For months, it would start every afternoon in my left leg (I get mine in my thigh, not foot or calf), but in the evening it could be either. Most of the time I have it in one or the other but not both. Sometimes it's bad in one and minor in the other, but usually not ...
- Sat Oct 30, 2004 5:12 pm
- Forum: Help for Relationships
- Topic: Spouses and others don't "get" what RLS is like...
- Replies: 30
- Views: 26569
Walking
I've often been frustrated when someone can't escape themselves for at least a moment to see something from another's perspective. In the case of RLS or other chronic disorders, I believe that what prevents it is probably fear. When we are afraid of losing something, we become more closed. Families,...
- Sat Oct 30, 2004 5:56 am
- Forum: Prescription Medications
- Topic: Wax and wane . . . or permanent?
- Replies: 9
- Views: 5499
Resolve
I haven't found the resolve to completely stop the Mirapex. Each time I've not taken it, I've gotten no sleep. I haven't tried Percodan, but have not had luck with diazepam, clonazepam, temazepam, or Vicoden. I've taken the max dosage of each of the benzos and while they work well when I am awake, t...
- Sat Oct 30, 2004 12:33 am
- Forum: Prescription Medications
- Topic: Wax and wane . . . or permanent?
- Replies: 9
- Views: 5499
Wax and wane . . . or permanent?
Many people with refractory RLS started with mild RLS. I did. In fact, it was the augmentation from treating the PLMs that caused my RLS to flare. Since I first started taking Mirapex 2 years ago, the stats I've seen have gone from 5 to 10% augmenatation to over 30%. Probably because more time has p...
- Fri Oct 29, 2004 6:43 am
- Forum: Just Joined?
- Topic: Questions
- Replies: 3
- Views: 2373
Re: questions
I took Mirapex for about 18 months before is stopped working; at that time increasing the dosage only increased the side effects! Because none of the drugs we take were actually developed for RLS or PLMD, it's often hit or miss. Drugs work, they don't work, then they work again, others make it worse...