Search found 108 matches
- Tue Jul 16, 2019 3:22 pm
- Forum: General Topics: RLS
- Topic: BID theory and ferritin levels
- Replies: 7
- Views: 1338
Re: BID theory and ferritin levels
... It wouldn't surprise me at all if there was a fairly large subgroup of patients with high ferritin but generally low iron... I think we need to get away from the idea of "generally low iron" and realize that, except in very limited circumstances, that for proper functioning different organs nee...
- Tue Jul 16, 2019 3:07 pm
- Forum: General Topics: RLS
- Topic: sleep deprivation
- Replies: 16
- Views: 3082
Re: sleep deprivation
i have trialed magnesium which helped a little but not significantly with sleep i did a cheeky thing - i copy and pasted stjohnh reply and sent it to my doc who has been suggested that me not sleeping is all psychological; he consulted his sleep specialist colleague who had no idea what stjohnh was ...
- Tue Jul 16, 2019 2:41 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Poll: Oral iron and ferritin levels
- Replies: 12
- Views: 1777
Re: Poll: Oral iron and ferritin levels
i trialed sagobion 2x/day for 3 months. my ferritin went up from 33 to 54.....
my rls got worse in the 3 months from pain and not sleeping. went straight for IV iron afterwards
my rls got worse in the 3 months from pain and not sleeping. went straight for IV iron afterwards
- Mon Jul 01, 2019 5:03 am
- Forum: General Topics: RLS
- Topic: Open question #1: Exercise and WED
- Replies: 17
- Views: 3836
Re: Open question #1: Exercise and WED
my idea of exercise and RLS is very simplistic. overdoing (depending on the state of your body) it causes depletion of iron --> triggers symptoms
certainly not as sophisticated as the above discussion which I'm enjoying (and trying to follow)
certainly not as sophisticated as the above discussion which I'm enjoying (and trying to follow)
- Mon Jul 01, 2019 4:47 am
- Forum: General Topics: RLS
- Topic: sleep deprivation
- Replies: 16
- Views: 3082
Re: sleep deprivation
thanks for all the explaination and sharing!
sorry that I have been off the boards for a while again hence delayed response
sorry that I have been off the boards for a while again hence delayed response
- Fri May 17, 2019 1:32 pm
- Forum: General Topics: RLS
- Topic: scary night time experience
- Replies: 7
- Views: 1527
scary night time experience
Hi all I'm wondering if anyone of you has had such an experience at night with your RLS. I'm quite spooked because I have no idea what is going on or if this is normal? Basically, my legs were trashing around uncontrollably in bed but I was very sedated and groggy. According to my husband, he had to...
- Tue May 14, 2019 5:19 pm
- Forum: General Topics: RLS
- Topic: sleep deprivation
- Replies: 16
- Views: 3082
Re: sleep deprivation
I suspect that the answer to that is yes, but I don't know for sure. However, there are other things that can disturb sleep, such as sleep apnea. When I first saw a sleep doctor and went through a sleep study, the results showed that I had two separate conditions. I have a form of sleep apenea spec...
- Sun May 05, 2019 7:48 pm
- Forum: General Topics: RLS
- Topic: The RLS/WED market
- Replies: 5
- Views: 1340
Re: The RLS/WED market
A somewhat chilling reminder that people hate Big Pharma for a reason... http://www.digitaljournal.com/pr/4215443. To these people, we're just a market. "Despite its increasing prevalence, the precise cause of RLS is not yet known. Nevertheless, with extensive investigations being conducted in the ...
- Fri Apr 26, 2019 12:22 pm
- Forum: General Topics: RLS
- Topic: sleep deprivation
- Replies: 16
- Views: 3082
Re: sleep deprivation
thanks so much for the replies. the information is really helpful for me to understand and normalise things a bit! from my doc's reaction, i was starting to wonder if this was (i.e. am I) even normal or possible.....given how much medication I'm taking. i'm so exhausted that it's really not funny at...
- Thu Apr 25, 2019 3:52 pm
- Forum: General Topics: RLS
- Topic: Very Tired
- Replies: 90
- Views: 8446
Re: Very Tired
My normal has changed again. I'm up now most nights. Before this I was able to go to sleep around 11 pm, but only sleeping 2 hrs, up, then 2 more hrs, up then 2 more hrs. The up time was about 30 min to an hr. Now my sleep Is still only for 2 hours. Then I'm up for a bit then another 2 hours. So my...
- Thu Apr 25, 2019 3:10 pm
- Forum: General Topics: RLS
- Topic: sleep deprivation
- Replies: 16
- Views: 3082
sleep deprivation
For RLS - is it possible for the legs to be better i.e. no twitching, pain etc but the sleep problems persist?
- Thu Apr 25, 2019 2:52 pm
- Forum: General Topics: RLS
- Topic: Very Tired
- Replies: 90
- Views: 8446
Re: Very Tired
Polar Bear wrote:
--- give yourself permission to not sleep, permission to be awake ----
.
thank you for this quote
- Sat Mar 17, 2018 12:49 pm
- Forum: General Topics: RLS
- Topic: work and sleep
- Replies: 7
- Views: 3463
Re: work and sleep
I tried it briefly - I thought I was going to die. OK, a bit of hyperbole, but still. It. Was. So. Hard. And, no way I should have been driving. It wasn't as bad when I was a professor - I only had to be on campus 8 hours (over two days) a week, so could work at home whenever. That gig ended, so I ...
- Thu Mar 15, 2018 4:25 pm
- Forum: Help for Relationships
- Topic: Sleeping Arrangements
- Replies: 28
- Views: 37047
Re: Sleeping Arrangements
legsbestill wrote:My husband also reports finding it difficult to sleep when I'm not in the bed. I wonder is it an age thing as he wasn't always like that.
i wonder about the age too....
- Thu Mar 15, 2018 3:08 pm
- Forum: Help for Relationships
- Topic: Sleeping Arrangements
- Replies: 28
- Views: 37047
Re: Sleeping Arrangements
My husband also insists I do not disturb him but it is sometimes easier to be on my own when the legs are bad. I do find his constant assurances reassuring and am more likely to stay in the bed with him because of them so I would second the others who said to keep telling him you like to have him t...