Restless Legs Syndrome (RLS) Discussion Board

yay! It's so great when there's relief.

I am just new at this, but if I get a prescription before my old one has completely run out, I immediately stash the old pills away and start on the new batch. At some point I should do like Zach and rotate them for freshness. I don't have much of a supply built up and I'm kicking my butt I didn't g...

You know, you've made me think. It certainly would be great to be in one place together (at times, anyway), all us RLSers. (Maybe that's what support groups are like.) But how terrible it would have been, to be this way before the internet! (some of you were, of course; luckily not me.) At least we ...

Interesting. Some people are convinced that toxins cause ALS and other neurological diseases too. Was the Al listed as an ingredient in your vitamin pills? How can you tell what your toothpaste tube is made of? Does Al vaporize at typical oven cooking temperatures - i.e. would you use it to line a d...

ann. hang in there. maybe a higher dose will be suggested. or combinations.

right now, i just want to get through a night without a 2-hour awake period. I hear you! Maybe you haven't augmented. Here are the criteria: ALL OF: initially positive response to treatment increase in symptom severity on at least 5 days of the last week no other reason for the increased severity P...

Ann pretty much explained it. Just one thing I should clarify: the only reason you would have to stop ropinirole completely and get it out of your system, then try it again, is if you were augmenting due a too-high dose of it. That means the dose was higher than your body could handle, which made yo...

You were only on the ropinirole 3 weeks was it? and you've been off about 1 week now...? Give it another week if you feel you must, but don't torture yourself for too long. Don't worry that your doc was hasty in the email, that just means he didn't know the answer right off the bat. You need to sit ...

Who can remember if it's sativa or indica marijuana which is good for RLS? One is good and the other makes it worse.

doety, have you gone back to your doctor? The reuip causes augmentation so it's out of the question to use. Right now you might still be withdrawing, if so time will improve things, but on the other hand this might be your baseline RLS. The methadone depresses your breathing so you can't raise the d...

If you follow the algorithm, the next step would be to try the other approved DA (pramipexole/Mirapex). Then if that doesn't work, move on to anticonvulsants (as Ann said, though, they're not much use for bad RLS except in combination with a DA or opiod), and finally opiods. However, following an al...

I have tried a number of different combinations of things. 10mg oxycodone by itself was nowhere near enough. I am now on nothing but 9 mg hydromorph contin and it's working. I sleep. I am still in the day. But it has only been a week so I am keeping my fingers crossed. 2.5 years ago, before I was fo...

When I was on Neurontin, it had the effect on me of stilling the creepy feelings but leaving the hypervigilance; so I would be wide awake, not kicking but exhausted. There is a component of hypervigilance which goes with the sensory disturbances in RLS, tho I've only seen it mentioned in one paper. ...

I know what you mean. I was so scared of the hydromorphone that I didn't sleep at all, almost, the first night. Then I relaxed about it and it was ok.

luck hope heart good