Search found 14402 matches

by ViewsAskew
Sun Dec 17, 2023 10:11 pm
Forum: Just Joined?
Topic: Find pain points
Replies: 1
Views: 6018

Re: Find pain points

To find the pain point that send sensation pain ,bring your knee up to your chest pulling with your hands when you get the sensation is it coming from your lower leg if so rub hard above ankle bone if it's painful rub with some pain gel or cream this should help if it doesn't Acupoint 🤔 If it's you...
by ViewsAskew
Sun Dec 17, 2023 10:09 pm
Forum: Augmentation
Topic: Transitioning
Replies: 37
Views: 45010

Re: Transitioning

shinderlider wrote:
Sat Dec 16, 2023 11:05 pm
Well, I made what is hopefully the last step to be ropinirole free: dose cut from 2mg to 1mg. At the present, keeping the gabapentin dose at 300mg twice a day, knowing it can be increased if necessary. It has not always been easy but I am pleased that I am almost finished.
Wonderful!
by ViewsAskew
Sun Dec 17, 2023 10:08 pm
Forum: Help for Relationships
Topic: What Relationships?
Replies: 54
Views: 63045

Re: What Relationships?

*gsurpur* I also wonder sometimes, what is normal. What would I be like without rls and without being stuffed full of medications. However it is some of those medications that somewhat control my rls. Coping with chronic medical conditions can be very debilitating and it is easy to become depressed...
by ViewsAskew
Sun Dec 17, 2023 10:01 pm
Forum: Physical Treatments
Topic: New device: NXT 100 ToMAC
Replies: 5
Views: 10676

Re: New device: NXT 100 ToMAC

gsurpur wrote:
Sat Dec 16, 2023 10:51 pm
Hi, My sleep specialist prescribed me this device as I live in California, unfortunately my insurance denied it.
To buy on our own, its $6000.00 including the accessories. I do not know why my request was denied!
OUCH! That is a lot of money. How frustrating that they denied it.
by ViewsAskew
Tue Dec 05, 2023 9:10 am
Forum: Just Joined?
Topic: Augmentation & DAWS
Replies: 16
Views: 29218

Re: Augmentation & DAWS

Hi Ali - What a difficult journey you've had - great that the tumor was benign. Welcome to the board and I hope you find the help you need here. As I understand it, most WED/RLS experts recommend decreasing ropinerole .5 mg every 3-7 days to prevent DAWS. Even if you wanted to be very careful, you c...
by ViewsAskew
Wed Nov 29, 2023 10:49 pm
Forum: General Topics: RLS
Topic: Bariatric Surgery
Replies: 6
Views: 10136

Re: Bariatric Surgery

Ann, I am in the process of determining if I am a good candidate and following the Medicare rules which require at least six months of a supervised diet. It will be at least June before a decision is made. In the meantime, I continue my weaning off ropinirole (getting ready to move from 2mg down to...
by ViewsAskew
Mon Nov 27, 2023 8:33 pm
Forum: General Topics: RLS
Topic: Bariatric Surgery
Replies: 6
Views: 10136

Re: Bariatric Surgery

HI Sue - did you go ahead with it?

My sister has mild symptoms - she had surgery a few years ago and never mentioned her symptoms being worse. Of course, I don't remember what she had done.
by ViewsAskew
Mon Nov 27, 2023 8:45 am
Forum: Prescription Medications
Topic: Continuous movement vs spasm
Replies: 4
Views: 5998

Re: Continuous movement vs spasm

Similar symptom progression: from classic need-to-move twitchiness to, twenty plus years later, sudden energy build-up—bordering on a cramp—in my hip joints releasing within seconds a powerful spastic kick. Happens in only one hip at time but left hip more often than right because I suspect osteoar...
by ViewsAskew
Mon Nov 27, 2023 8:33 am
Forum: Physical Treatments
Topic: Cured
Replies: 3
Views: 8759

Re: Cured

At age 51 my RLS is cured. I had a stone stuck in my billiary system-distal common bile duct. MRCP showed dilation in the billiary system. I had an ERCP to remove the stone. I can drink coffee and eat chocolate with zero RLS symptoms. As far as I can tell a stone can disrupt digestion which is why ...
by ViewsAskew
Mon Oct 16, 2023 5:14 pm
Forum: Augmentation
Topic: New-Asked to post about treatments
Replies: 55
Views: 61364

Re: New-Asked to post about treatments

I'm back after what seems like a very long forever. I started weaning off of ropinerole in about mid July 2023. I had a false start after trying to start the course without a long acting opioid like Oxycontin. No Oxycontin due to insurance denying coverage. About mid August, the plan was changed to...
by ViewsAskew
Mon Oct 16, 2023 5:07 pm
Forum: Prescription Medications
Topic: Emory not taking new pts?
Replies: 7
Views: 5660

Re: Emory not taking new pts?

How frustrating! I moved from one US state to another JUST so I could be by a good doctor. When he retires, quits, or reduces his practice, it will be terrifying.
by ViewsAskew
Thu Oct 12, 2023 7:19 pm
Forum: General Topics: RLS
Topic: Looking for RLS Doctor in Central New York
Replies: 10
Views: 7447

Re: Looking for RLS Doctor in Central New York

Was able to get an appointment with a recommended doctor on the RLS.org site, Dr. Durphy, who is a neurologist in movement disorders and specializes in RLS, and I was able to get in with her in May. I am hoping she follows the research of the other doctors on this site. What was the result, Macadwel?
by ViewsAskew
Thu Oct 12, 2023 4:58 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: REST AND RECHARGE SUPPLEMENT FOR RLS
Replies: 11
Views: 11253

Re: REST AND RECHARGE SUPPLEMENT FOR RLS

Polar Bear wrote:
Sat Sep 16, 2023 2:19 pm
Desperation makes us try anything no matter how weird or silly.
Happily I am now in a better place than in those the early days thanks to our Discussion Board.
So true.
by ViewsAskew
Wed Oct 11, 2023 6:01 am
Forum: Just Joined?
Topic: Just re-joined
Replies: 1
Views: 5049

Re: Just re-joined

Becan wrote:
Sat May 20, 2023 1:07 am
Hi
I just re-joined the discussion group but with a different user name (privacy issues). This group has been very helpful so I'm glad to be back.
We're glad you were able to get back, Becan.
by ViewsAskew
Thu Mar 09, 2023 8:27 am
Forum: Prescription Medications
Topic: ER opiates (oxy) vs methadone
Replies: 6
Views: 3309

Re: ER opiates (oxy) vs methadone

Our bodies are complex systems and there can be so many variables. Methadone is the preferred approach in the US for a variety of reasons, but it has its own set of problems and that long half life can make withdrawal very tedious. But, Oxy can be abused when someone is in the 7-8 percent of us that...