Restless Legs Syndrome (RLS) Discussion Board

Hey, I was just checking in on you. How are you feeling? Do you do Pilates by any chance? Edit: did I already send you some youtube links?

I am getting a second opinion first....I do think it's RLS. If my Rheumy tells me to go I will go because I just had another epidural and am on Requip and Neurontin and my back and arm feels like electricity. Requip is still stopping some of the sensations but not in all places. 100% in some places ...

. I don't know if there is an increased prevalence of WED in people with Ehlers-Danlos, or if I'm just lucky. Ehlers-Danlos is fairly rare, so there's probably not anything out there which intersects the two worlds. I do wonder what the defective collagen process uses more or less of than normal - ...

One of them wants me to go to a Neurologist.....my surgeon does not think I have RLS in my elbows and back muscles.
Please give me some direction.

Update: Mirapex is helping, so it is RLS.

Ditto Cornelia

BJHS stands for Benign Joint Hypermobility Syndrome (however some feel it is the same as EDS-3, you will see the terms JHS also)
MVP stands for Mitral Valve Prolaspe. I don't think it is related to BJHS but I think there is a prevelance in all EDS. Go to the Mayo Clinic website.
http://www.mayoclinic.com/health/ehlers ... N=symptoms

Thumbs up! Sweet relief; sweet dreams.

EDIT: You'll probably find this link interesting.


http://www.reumatologia-dr-bravo.cl/whe ... uspect.htm

Hey, I'm BJHS but some refer to it as type 3. I don't however but I feel your pain. Either way I hope you get a good Rheummy and make sure (since it IS Ehlers-Danlos to find out if they decided wheater MVP is or is not assoc. with the Type 3....I believe it is with Type 2. Do get checked and take ca...

[quote="ViewsAskew It's in all of our best interest to support the Foundation and this research in any way we can. [/quote] I just posted this link in another forum but felt it would be appropriate here as well. I would love the opportunity to go there for a thorough evaluation....looks like a ...

http://www.youtube.com/watch?v=q_rdGX8mqGM

PENN STATE (in this video the doctor speaks of their clinic...some of the evaluations they perform- perhaps free in certain instances).

Hope it passes (pun intended) quickly. Not a good way to start the weekend for sure.

DID Y'ALL ALREADY SEE THIS? m "August 4, 2011 — A new study is the first long-term prospective trial of dopamine agonist therapy in restless legs syndrome (RLS). The study, funded by UCB BioSciences and Schwarz Pharma, manufacturers of transdermal rotigotine, assessed the safety, tolerability, ...

Awwwwwwww, I like that one too.
(Maybe we can be starfish....sure feels like I have a lot of legs at time)

That's so cool! How did you get to do that? Funny 'bout the soap.