Restless Legs Syndrome (RLS) Discussion Board

Sunday, August 4 Welcome to KickyD, who has had RLS her whole life, but only diagnosed and treated 5 years ago. KickyD has noticed some side effects with Requip that KickyD would love to talk to others about. Please post a note describing your side effects. Requip can have some pretty nasty ones, so...

Saturday, August 3

Welcome to

jp101010, who wants to learn from others with RLS about their experience with treatment methods.

If you will post a short note with any questions that you have, we will be happy to share.

Friday, August 2 Welcome to hungryghost, whose partner has RLS and occasionally experiences severe sleep deprivation. She can be debilitated for days at a time. Hungryghost would like to learn more about how to support her. Please post a note telling us what, if anything, your partner is doing to ma...

The Journal of the AMA reported in the July issue that about 60% of doctors' offices that were surveyed under the guise that the caller was trying to find a GP to treat an aging mother who "by the way does it matter if she is taking an opioid for pain?" responded that they would not schedule an init...

I don't remember seeing any comments about alerting with gabapentin. For most of us it is the only thing other than THC that causes drowsiness.

Just after I typed my last entry, I got a call from the Foundation office. As I understand it, the advocacy project is involved with a set of new bills on the floor of Congress that relate to individuals who are legitimate users of opioids who are being denied access to medical care for just that re...

Update: I saw a neurologist whose office is in the next town, which is "only" about 50 miles away. What a refreshing change! She knew about RLS, but I don't think that she is totally up to speed with treatment(s). But she was happy to allow me to continue with my current RLS specialist and only hand...

Wednesday, July 31 Welcome to krockwell, whose RLS has been difficult to manage most of the time. krockwell doesn't get good sleep and that affects so many aspects of life. Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions to impr...

Wednesday, July 31 Welcome to Lisa*, whose RLS is so awful she cannot fall asleep. She went to bed at 10:30pm and was still suffering at 2:15. This is happening every night. She is nearly falling asleep driving because RLS is preventing her from getting enough sleep. She is becoming very depressed b...

Taco Bill, it is unfortunate that many of the portions of your story about doctors are things that most of us can relate to in our own past. Most of us have "fired" doctors or been fired by them and opioids are often part of the conversation. You will be in excellent hands with Dr B and Scripps is a...

Dial911, welcome to the board. The sensations that we experience with RLS are very difficult to describe since there are no other sensations that anyone else experiences that we can compare them to. The experience that we have also varies from person to person. Here is a link to the official diagnos...

Tuesday, July 30 Welcome to Dial911, who hasn't been diagnosed yet, but she is being driven nuts by these symptoms that seem to match with RLS, and she can't get an appointment with a neurologist for another couple of months. Her internist and physical therapist have tried some things, but nothing w...

Tuesday, July 30 Welcome to Lorry, who has suffered from RLS for many years. Lorry started taking Maripex a year ago. It helps but doesn't always stop all of the RLS sensations. So, Lorry would like to know how others are treating their symptoms. If you will post a note telling us about your dose of...

I came across a report published about 2 weeks ago in US News. They conducted a poll of about 100 GPs in Michigan. They asked if the doctor would accept their mother as a new patient and then added "oh, by the way, she is taking an opioid for pain. Is that a problem". Of the doctors contacted, 40% r...

Monday, July 29 Welcome to JKaylor03, who has RLS and it’s making JKaylor miserable. Not getting sleep is causing depression and bringing about anxiety. JKaylor is considering medication but want to reads about others experiences! There are a number of medication options, if you will post a note tel...