Search found 548 matches
- Tue Dec 27, 2022 12:41 pm
- Forum: Everything Else...just no RLS!
- Topic: Whacha readin?
- Replies: 85
- Views: 155998
Re: Whacha readin?
I don’t usually read psychological thrillers but loved “Every move you make” by Deborah Bee. Contemporary British fiction. Two sides to every story but only one is the truth. Another one I loved is “Dictionary of lost words” by Pip Williams. Esme, a small girl, spends her days in the Scriptorium whe...
- Tue Nov 22, 2022 3:55 am
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 435780
Re: Published Research - General Sleep and RLS (WED)
A possible reason for seasonal variation in RLS—at least for me—is that I sleep better in cooler weather and less well in warm or hot weather. If I'm waking up due to being hot in the night my RLS seems to be worse. That might not matter where summer air conditioning is popular but most Kiwis don't ...
- Mon Nov 14, 2022 2:34 am
- Forum: Just Joined?
- Topic: Weaning off Ropinirole
- Replies: 15
- Views: 10795
Re: Weaning off Ropinirole
I'm glad you found this site. Your primary also had no clue letting you take 4mg of Ropinerole. If you haven't augmented you would have been very close and that is a terrible place to be.
Good luck.
Good luck.
- Sun Oct 30, 2022 3:10 am
- Forum: Everything Else...just no RLS!
- Topic: Halloween. wwhhhooooo .....
- Replies: 5
- Views: 8282
Re: Halloween. wwhhhooooo .....
When I was a child I loved Halloween, it was my favourite holiday. Starting the day after we started planning our costumes for the following year. I'm an American expat living in New Zealand. Halloween is just starting to become entrenched but for my first few decades here it did not exist. I guess ...
- Fri Oct 28, 2022 4:32 am
- Forum: General Topics: RLS
- Topic: Article on Medical Gaslighting in the NYTimes
- Replies: 4
- Views: 8419
Re: Article on Medical Gaslighting in the NYTimes
Gas Light was originally a British stage play. There have been several movies including, the one I remember, Charles Boyer and Ingrid Bergman in Gaslight (1944). (No, I am not that old but used to watch old films.) It would be worth trying to find one on line, it is an excellent story. From Britanni...
- Thu Oct 27, 2022 3:41 am
- Forum: Physical Treatments
- Topic: MUSIC / FRISSON
- Replies: 11
- Views: 15200
Re: MUSIC / FRISSON
Maybe your wife would be willing to wear ear plugs.
My favourites are the silicon ones which remind me of a cross between bubble gum and candlewax.
I live on a river with rapids and in the summer when I need to sleep with the windows open I use them.
My favourites are the silicon ones which remind me of a cross between bubble gum and candlewax.
I live on a river with rapids and in the summer when I need to sleep with the windows open I use them.
- Fri Oct 21, 2022 10:12 pm
- Forum: Prescription Medications
- Topic: levothyroxine and RLS
- Replies: 7
- Views: 2854
Re: levothyroxine and RLS
I had my thyroid removed about 16 years ago and have had rls a lot longer. There's never been a problem with taking levothyroxine but because I take oral iron tablets I take my levothyroxine in the middle of the night so they do not confilct. I took ropinerole for many years, never taking a high dos...
- Sat Sep 10, 2022 8:39 am
- Forum: Prescription Medications
- Topic: Very Slow Taper off Ropinirole
- Replies: 12
- Views: 6337
Re: Very Slow Taper off Ropinirole
I augmented on ropinerole about 15 years ago. I was only up to .5mg (maybe even less) but had already augmented on sinemet so I knew what was happening thanks to this discussion board and was able to cut back. Finally about two weeks ago—after getting down to .125mg for maybe a year I totally got ri...
- Tue Aug 16, 2022 6:18 am
- Forum: Just Joined?
- Topic: New Member
- Replies: 6
- Views: 3484
Re: New Member
Hi Martin, You have been going through hell. I'm not an expert at all but it seems to me you need to be taking opiates. Experts on this board will be able to advise you but I just wanted to let you know that I really feel for you and your wife. I'm lucky I found rls.org decades ago when I started au...
- Mon Mar 14, 2022 1:05 am
- Forum: Prescription Medications
- Topic: Quality Care Centers
- Replies: 10
- Views: 2071
Re: Quality Care Centers
I take 120mg of codeine at night and also iron tablets so I am well acquainted with constipation. What alleviates it for me is Benefiber, a heaping tablespoon in hot water or tea three times a day. I prefer it to drugs but occasionally at lunch when I'm out I'll take a Coloxyl tablet which is socusa...
- Wed Jan 12, 2022 8:36 pm
- Forum: Prescription Medications
- Topic: Navigating care…do I go back on DAs?
- Replies: 18
- Views: 6318
Re: Navigating care…do I go back on DAs?
Please don’t be discouraged, be encouraged by all the information that has helped so many. I have learned so much and am well informed when I see my PCP. I’m still up for a third of the night in segments but I know coping with that and not increasing my medications is my choice and I know my options...
- Thu Dec 02, 2021 3:28 am
- Forum: General Topics: RLS
- Topic: My poor son also showing RLS symptoms
- Replies: 3
- Views: 3663
Re: My poor son also showing RLS symptoms
Hi Nerdiya,
So sorry about your little son. I wouldn't wish that on anyone much less a little child.
So sorry about your little son. I wouldn't wish that on anyone much less a little child.
- Sun Nov 14, 2021 12:04 am
- Forum: Physical Treatments
- Topic: Exercise and RLS
- Replies: 8
- Views: 13376
Re: Exercise and RLS
I stretch my calves up and down on a step and do downward dogs, all in the middle of the night as well as walking.
- Thu Nov 04, 2021 7:15 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Iron supplementation Timimg
- Replies: 7
- Views: 9142
Re: Iron supplementation Timimg
I understand the timing problem—with some meds needing to be taken with food, some on an empty stomach, some can't be taken together. It's a balancing act for sure. I even take my thyroid medicine in the middle of the night but with RLS that's no problem as I'm up several times throughout the night.
- Mon Nov 01, 2021 1:25 am
- Forum: Prescription Medications
- Topic: weight. gain
- Replies: 16
- Views: 5993
Re: weight. gain
Interesting article from Dr. Gabe Mirkin who I respect and admire.
https://www.drmirkin.com/nutrition/why- ... -work.html
I read recently that when someone loses a lot of weight (such as yo yo dieting) they lose fat and muscle. When weight is regained, it is just fat.
https://www.drmirkin.com/nutrition/why- ... -work.html
I read recently that when someone loses a lot of weight (such as yo yo dieting) they lose fat and muscle. When weight is regained, it is just fat.