Search found 14412 matches

by ViewsAskew
Tue Oct 25, 2022 8:52 am
Forum: General Topics: RLS
Topic: Device for tracking PLMs??
Replies: 3
Views: 5271

Re: Device for tracking PLMs??

As far as I know, the only truly accurate ones are medical grade and not accessible OTC.
by ViewsAskew
Sun Aug 21, 2022 7:57 am
Forum: Physical Treatments
Topic: A Study
Replies: 8
Views: 6764

Re: A Study

Dr B suggested I try it at my last visit. I washed out, lol - too severe. But I really did feel that for someone with moderate to mild symptoms it would have helped. It even did help some (I was on a trip with I had it - trying to decrease meds while in strange places, flying on a plane), but I had ...
by ViewsAskew
Sun Aug 21, 2022 7:48 am
Forum: General Topics: RLS
Topic: RLS Doc in Chicago?
Replies: 4
Views: 5653

Re: RLS Doc in Chicago?

I never found one - I saw about 30 or so. Moved to a state with a RLS Quality Care Center in it. Hope you find one. Valthinking - I saw Munsen's name a year or so before I left. I saw a neurologist in the Loop that was highly recommended instead and it was so horrible, I came home in tears. My husba...
by ViewsAskew
Sun Aug 21, 2022 7:44 am
Forum: Prescription Medications
Topic: Has anyone tried buprenorphine?
Replies: 54
Views: 10929

Re: Has anyone tried buprenorphine?

Ugh, Deb. This is terrible.
by ViewsAskew
Tue Aug 09, 2022 2:07 am
Forum: Prescription Medications
Topic: Has anyone tried buprenorphine?
Replies: 54
Views: 10929

Re: Has anyone tried buprenorphine?

debbluebird wrote:
Wed Aug 03, 2022 1:41 am
Do you think any of the OTC meds would work for itching ?
It does for me, Deb.
by ViewsAskew
Tue Aug 09, 2022 2:07 am
Forum: Physical Treatments
Topic: A home TENS unit that works! Ahhh!
Replies: 7
Views: 12931

Re: A home TENS unit that works! Ahhh!

RLKamm wrote:
Thu Jul 21, 2022 3:24 pm
Just got the tens unit and hooked it up as you did on the calf. What pulse width did you use and what pulse rate? Thanks Rlkamm
This post was so long ago, the person may not be on the forum any longer, unfortunately.
by ViewsAskew
Thu Jul 14, 2022 9:11 pm
Forum: General Topics: RLS
Topic: amitriptyline
Replies: 7
Views: 7357

Re: amitriptyline

That really sounds like augmentation to me. The longer you wait, the worse it gets. Tough call...
by ViewsAskew
Thu Jul 14, 2022 9:07 pm
Forum: Just Joined?
Topic: new here
Replies: 4
Views: 1751

Re: new here

Hi onboard,

No one that I no of currently is on dialysis. I have read how dialysis folks have this nasty disease about 80% of the time, though. Must be miserable.
by ViewsAskew
Tue Jun 21, 2022 7:44 am
Forum: Prescription Medications
Topic: Methodone
Replies: 23
Views: 6327

Re: Methodone

Hi Mac - Fatigue - only if I take too large of a dose. Recommendation is to take enough to keep symptoms at around 90% covered. That helps a lot. Insomnia - not insomnia, but alerting. It makes you awake when you want to be asleep. Taking it earlier often does help, as does taking it with something ...
by ViewsAskew
Tue Jun 14, 2022 3:54 am
Forum: Prescription Medications
Topic: Opioids, handling side effects, decreasing dosage; cannabis
Replies: 2
Views: 2437

Re: Opioids, handling side effects, decreasing dosage; cannabis

Hi - many of us here are on methadone. A few on Oxy. Hope someone has some advice for you.
by ViewsAskew
Fri Jun 10, 2022 10:58 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin Update
Replies: 14
Views: 26834

Re: Ferritin Update

TimG wrote:
Sat Apr 23, 2022 8:48 pm
I've been taking an oral iron supplement for about 7 years. I still get breakthrough RLS, but am lucky that the increased ferritin value has mitigated my RLS.
Wish this for everyone!
by ViewsAskew
Fri Jun 10, 2022 10:23 pm
Forum: General Topics: RLS
Topic: Anti-depressants
Replies: 4
Views: 5896

Re: Anti-depressants

There was a study at least ten years ago that showed the WORST case was about 18% were bothered, but the average was like 4 or 5%. Even if it were 1 in 5 or 1 in 6, I'd try it if I needed it!
by ViewsAskew
Fri Jun 10, 2022 10:21 pm
Forum: Prescription Medications
Topic: Covid Treatments
Replies: 9
Views: 3038

Re: Covid Treatments

My husband with asthma, too. We wear masks everywhere.
by ViewsAskew
Fri Jun 10, 2022 10:20 pm
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 98
Views: 72297

Re: Spinal Stimulator

FYI - Dr Buchfuhrer is testing a device (not a TENS, but a similar type thing) that targets a nerve near your knee. There is a study out from last year, I think, and the current study is testing it for reducing opioid use.
by ViewsAskew
Fri Jun 10, 2022 10:18 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 200
Views: 97215

Re: 1st post after 24 years of RLS

Has your doctor said you could try codeine contin? I wonder if a more potent opioid wouldn't be better, like hydromorph contin? I've had a filled Rx for a while I tried it once and it certainly stopped the RLS at the time. It seemed a bit too heavily sedating and most concerning it lasted about 20 ...