Restless Legs Syndrome (RLS) Discussion Board

13 February 2024 Welcome today to Monolight1 who wants to post on the forum and wants to see the others opinion. You will find lots of information and opinions as you read through the various Forums. If you want to make a post feel free to do so on a relevant thread or alternatively start your own t...

11 February 2024 Welcome today to JulieFlani who has loss of sleep to the point that it's affecting her health, mind and mood. This had been going on for years. Julie has tried Ropinerole which helped stop RLS but side affects were bad. After weaning off if drug..RLS is worse! Ropinerole is not now ...

10 February 2024 Welcome today to Gigi5151 who has lived with RLS all her life. It has become worse now that she is over 50. She is suffering. I wonder what medication you are taking (If any), are you taking requip or pramipexole and has it been regularly increased seeking relief which could mean au...

8 February 2024 Welcome today to pkstex who has suffered RLS with dystonia for 30+ years. It has dramatically constrained the ability to travel and volunteer. Please post and tell us how you and your doctor have been treating your symptoms. Do you know what your ferritin serum level is, this is impo...

8 February 2023 Welcome today to gsloper who has whole body RLS and needs all the help he can get RLS is pretty awful and whole body RLS is so difficulty to cope with. If you will make a post giving us details of how you have been managing your symptoms, what medications have or have not worked, we ...

8 February 2024 Welcome to epws who has had RLS for 30 years and has had an assortment of treatments(iron infusions for low ferritin levels, Gabapentin, Pregabilin) each has worked for a little bit- some longer than others. Recently had Botox in the calves and is curious to hear about others experie...

When you say your iron levels are around 100, make sure this is your Ferritin Serum level. When I tapered from 5mg Requip I did it much slower than most folk. It took me 10 months doing very minimal reductions at a time and I did it without difficulty. However, I also had the support of Pregabalin a...

I don't believe there is a miracle cure for RLS. I don't believe either that it can be reversed.... my opinion only. However, it may be possible to control the symptoms. Your dosages of Mirapex/pramipexol/requip have been way too high. When I was first started on Requip is around 2007 the leaflet in...

I don't believe there is a miracle cure for RLS. I don't believe either that it can be reversed.... my opinion only. However, it may be possible to control the symptoms. Your dosages of Mirapex/pramipexol/requip have been way too high. When I was first started on Requip is around 2007 the leaflet in...

A GP can be wonderful if you can educate them and they are willing to kearn. The link in my signature would be a good start for guidance. If you provide some information about your mum's treatment perhaps we could advise. Has she had her ferritin serum checked. It would be best to be up around 100. ...

It's excellent that this has continued to work for you.

4 February 2024 Welcome today to Khosro Hekmat who has been suffering from RLS for over 15 years. In the beginning, he was able to get the symptoms under control by doing stretching exercises before going to bed. He now has been taking Pramipexole 0.35 mg for 8 years and has also experienced augment...

4 February 2024. Welcome to judithearvizu who has severe RLS and can't sleep. Her husband is angry and drs aren't listening. Sleep issues are usually what drives an RLS sufferer to seek help. Many doctors don't know how to properly treat RLS. See the link in my signature which is useful to share wit...

I have no idea why this works so well for you. Sometimes there can be a placebo effect but this usually does not last. We often say here that what works for one does not necessarily work for another - usually referring to medication - but this moisturiser is working for you and long may it continue....

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