Search found 2603 matches

by SquirmingSusan
Sun Nov 12, 2017 3:50 am
Forum: General Topics: RLS
Topic: Issues feel insurmountable
Replies: 31
Views: 4893

Re: Issues feel insurmountable

It's almost impossible to lose weight when sleep-deprived, leggo. It messes with insulin, cortisol, and every other hormone system there is. The best you can do is eat healthy, manage stress, pet the dogs a lot, get some sunshine, and get exercise. I'm guessing water aerobics will help your pain som...
by SquirmingSusan
Sun Nov 12, 2017 3:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 3729

Re: Iron Patches

Actually I realized the patches are said to be nano particles. They seem to be scientifically impossible, since the weight of the patch is less than 1/10 of the claimed weight of the nutrients in them. When I asked them about it, they said it was due to their special dehydration process, and basical...
by SquirmingSusan
Sat Nov 11, 2017 4:37 am
Forum: Everything Else...just no RLS!
Topic: Moving Mayhem
Replies: 82
Views: 57279

Re: Moving Mayhem

Hurray! Enjoy all that sunshine and warmth, and having Dr. B close by! My neuro doesn't like it when I take my full methadone prescription, which is 2.5 5 mg. pills a day. When my ferritin is low, I need at least 3 whole tablets. When my ferritin is higher, I need 2 a day. Now I'm just taking kratom...
by SquirmingSusan
Fri Nov 10, 2017 3:27 am
Forum: Just Joined?
Topic: New to Site but not to RLS
Replies: 5
Views: 2305

Re: New to Site but not to RLS

That sounds terrible! I do have narcolepsy and have not heard of anyone developing it suddenly like that, but it's possible to develop secondary narcolepsy or idiopathic hypersomnia. For most of us, sleep issues started in the teens or early 20s. It didn't become obvious that I had narcolepsy, thoug...
by SquirmingSusan
Thu Nov 09, 2017 3:24 am
Forum: Prescription Medications
Topic: Suboxone mixed results
Replies: 7
Views: 1334

Re: Suboxone mixed results

Wow, that's terrible. I've wondered if anyone around here was on Suboxone for RLS. A few years ago I read information that it could be better than methadone for long-term use. Something about methadone causing depression and hormonal issues in the long run. Don't ask me to find that article again, t...
by SquirmingSusan
Tue Nov 07, 2017 7:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 3729

Re: Iron Patches

Here's another iron supplement I came across. Much less vitamin C. 6.5 mg per serving. Not sure I like "nano" anything, and their science is a bit questionable, but it looks interesting.

https://shoppe.listentoyourgut.com/angs ... -32-fl-oz/
by SquirmingSusan
Tue Nov 07, 2017 1:23 am
Forum: Everything Else...just no RLS!
Topic: Moving Mayhem
Replies: 82
Views: 57279

Re: Moving Mayhem

Oh Ann, you must be in the thick of it all right now! I read that one paragraph as the renters stole your stuff, too. Haha, glad they didn't! Lately I feel like I've donated more than most people own, just to have some space in the house. Then our daughter came to visit from Japan, where she lives n...
by SquirmingSusan
Mon Nov 06, 2017 11:46 pm
Forum: Physical Treatments
Topic: Power Plate
Replies: 28
Views: 8419

Re: Power Plate

Funny discussion! I would much rather skim a page of writing than watch a video about most things. And the times I do want to watch a video, I speed them up a bit. Fortunately YouTube and most other video sites have the option to change the speed to 1.25 or 1.5 speed. Also, I'm thinking that vibrati...
by SquirmingSusan
Mon Nov 06, 2017 11:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 3729

Re: Iron Patches

Well darn it, Ann! I take something like 6 grams of vitamin C a day. Odd they would put it in a patch; I thought vit C was to help iron absorption in the digestive tract.
by SquirmingSusan
Mon Nov 06, 2017 4:05 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron Patches
Replies: 14
Views: 3729

Iron Patches

Someone in a bariatric surgery group just posted about these vitamin patches. They have multivitamin patches that have 45 mg of iron, as well as iron-only patches. The get great reviews, and I'm going to give them a shot. I'm due for my check-in with the hematologist to have more iron infusions, but...
by SquirmingSusan
Wed Nov 01, 2017 4:21 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom berry compote
Replies: 30
Views: 8323

Re: Kratom berry compote

The whole "opioid epidemic" hysteria thing drives me crazy. Did any of you see the 60-Minutes segment or Washington Post article on how the pharma industry are driving the epidemic by diverting their drugs to the high addiction parts of the US? It is crazy to cut people off of meds like me...
by SquirmingSusan
Tue Oct 04, 2016 4:47 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: DEA Making Kratom a Schedule 1 Drug
Replies: 32
Views: 14689

Re: DEA Making Kratom a Schedule 1 Drug

After reading everyone's comments in the forum here, I ordered some white Bali kratom about a month ago from SoCal Herbal Remedies. I finally got around to boiling some up and trying it about a week ago. I've been taking methadone for many years, and recently my RLS has gotten to the point where the...
by SquirmingSusan
Sun Sep 04, 2016 2:34 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: ferratin
Replies: 72
Views: 21795

Re: ferritin

Peanut, you may want to question your doctor about the cholesterol thing, or get a second opinion. Thoughts have changed a lot about that issue in recent years, though eating organ meat every day may cause other issues. It seems like getting too much copper can be a problem with organ meat, but not ...
by SquirmingSusan
Sat Feb 07, 2015 4:06 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 96
Views: 29170

Re: Wahls diet for WED? Trying it.

There are different types of casein depending on the source. The larger cows, like Friesians and Holsteins produce milk with a1 beta casein, and that type of casein has been associated with health concerns and inflammation. The smaller cows, like Jerseys and Guernseys, as well as sheep and goats, pr...
by SquirmingSusan
Fri Feb 06, 2015 4:43 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nicotine helps me
Replies: 3
Views: 2878

Re: Nicotine helps me

Beth, narcolepsy is autoimmune, and the hypocretin neurons are completely destroyed. They do not come back. There is a huge difference between smoking cigarettes and using an e-cig or a nicotine patch. Smoking causes all kinds of problems that other forms of nicotine do not. Pharmaceutical companies...