Restless Legs Syndrome (RLS) Discussion Board

redshoes, I'm glad that you found us but sorry that you need to be here. Your neurologist took the step that many of them initially take following augmentation on your first dopamine agonist. Their thinking is that shifting to a longer acting dopamine agonist will alleviate some of the problems with...

Thursday, February 14 Welcome to helvio34, who has been suffering with RLS for a long time, in fact a lifetime, and has been using a lot of medical treatments. If you will post a note telling us about your symptoms and your current treatments, we may be able to provide some suggestions for improveme...

Wednesday, February 13 Welcome to redshoes, has had RLS for decades and has been on 2.5 ropinirole for over 15 yrs. Before medication, she would wake her husband by kicking. Terrible sleep. Even with medication, she avoids all evening activity, concerts, theater, performances, because of needing to ...

It maxed out my insurance monthly co-pay for the 15 months that I used it, before I augmented on it as well. The only benefit that I feel that I got out of it was that during the days that I had them on my shoulders, the patches were visible when I ran . The patch would invariably prompt a question ...

The opioids quickly address the RLS and PLMD, just like a dopamine agonist probably did when you first tried one. But opioids do not cause augmentation and most of us stay on the same low dose for years without any need to increase the dose. Opioids help with sleep for some and aggravate the situati...

Tuesday, February 11 Welcome to goberland, who had struggled with RLS for most of goberland's adult life. goberland is currently in the process of switching from one dopamine agonist medication to another. It is not going well and therefore is eager to get input from other RLS sufferers. Please post...

My life is pretty much over, and I can't stop thinking about just cutting to the chase. stockton2malone2, many if not most of us have been where you are today. There IS hope and a way out of this. First, are you still taking Alprazalom? One of the side effects of it is the mental state that you des...

Tuesday, February 11 Welcome to Didjit, who has had RLS since adolescence, 40+ years along with PLMD and REMD. Very little medication has any effect and then only partially treats it part of the time. The difficulty with sleep has ruined memory, limits energy, and as a result it undermines Didjit's ...

If you haven't already participated in the public comments to the US HHS task force for modifying the CDC opioid guidelines, please do so NOW!!! Every voice counts on this matter. Don't rely upon others. You can even have your comments signed as Anonymous. There are currently almost 1300 comments (b...

Monday, February 11

Welcome to

BruceWiebe47, who has RLS and wants to know about meds he is taking. And he can't sleep well.

If you will post a note telling us about the meds and asking any other questions that you have, we should be able to answer your questions.

Sunday, February 10 Welcome to MarianneK, whose RLS has been a difficulty for years but lately it’s been unbearable. She needs some relief and hopefully will find information here. You have come to the right place for information on RLS. If you will post a note telling us what you have been doing to...

That is one of the greatest challenges that we face when discussing RLS with our family, friends and doctors. Because there are no similar experiences, there simply are no words that convey what RLS feels like. If they have RLS, they know what it feels like and don't need to be told. If they don't, ...

Sunday, February 10

Welcome to

Knowmore, who is here to learn for family friend.

Please post a note asking whatever questions that you have so that we can hopefully provide the answers that you seek.

Does the Brain Iron Deficiency, and genetic predisposition findings rule out other chemical contributors, like bromine? I read that a variety of chemicals contribute to RLS; e.g. tannins, caffeine, etc. So it's a sincere question. Top First we need to remember that RLS is a relatively new condition...

zeefy, one of the settings for the software that runs the discussion board is that it decides that after no activity for 30 minutes while composing a note, that you must have left and forgot about your note. Because this issue has arisen before, I will change that setting to allow an hour of inactiv...