Restless Legs Syndrome (RLS) Discussion Board

Actually I have tried the opiods. Last summer 2010 when I was on my drug holiday I was on Methadone for 8 weeks. I was so sick during that time and I was a mess on it. After that we tried the fentanyl patch...I did ok on a very low dose and that didnt help the discomfort as soon as we put another pa...

GG...I havent been to a phycologist yet. The drs want me to go to a neurophycologist to be evaluated. They want to see if there is a reason for my memory loss and confusion all the time. I think it is from drug changes every month...but they want to make sure. I actually am calling to make an appoin...

The doctors want me to go to one of the specialty hospitals for evaluation. They suggested Mayo Clinic, Cleveland Clinic, Chicago Hospital, U of M or John Hopkins. One of the drs thinks I should go to one of the Mayo clinics...problem there is that the nearest Mayo clinic to me is in Rochester MN......

Had my monthly visit with sleep dr...took me off the Horizant since really wasn't making any difference. She started me on Baclofen to take with the Mirapex. She said it would help me to sleep plus help with lower leg pains that I have been getting. She is now thinking that I have more going on in m...

Wanted to thank you all for your input on the disabilty thing and let you know that I did go and talk with an attorney and he took my case. He said he has won WED cases in the past...he is getting my dr. reports and going over those to see what was said. He also said that this will take about a year...

I applied for disability and was denied. They say that although I can't do the job I have been doing for the past 8 years and I can't work full time..that there is work out there that I can do. I say to whoever made this decision to walk in my shoes for just one week and tell me if they think they c...

Has anybody been put on Horizant for RLS? My dr. started me on it about 3 weeks ago at 600mg a day along with my regular Mirapex 2.25mg spread throughout the day and Klonipin 1mg at night. She is trying to hold off augmentation or rebound..I get confused about those two things...we tried to switch f...

Had my first visit with my new doctor last week. She seems to know and understand Ekboms Disease and how differnet meds work with it and against it. She was real nice about changing all my meds, she left the decision up to me or I could continue to follow the drug regimine that Dr. Quimby had me on....

yes pain!!

Thank you everyone for the suggestions. I have written him a letter to thank him and tell him how much he has meant to me...it was by far one of the hardest letters I have ever written. I also think I am going to make a donation to RLS in his name...I think he would like that as much as anything els...

I figure the people here are the only ones that can understand how upset I am about losing the doctor that I am sure has saved my life and sanity this past year. The first day I met this man I walked out of his office in tears...I was so happy to finally find a dr. that knew something about this dis...

Thanks Beth and everybody for the input. I actually have been on all of the meds that you have mentioned in the last few years. Most of them don't do a thing to help and the ones that do make me sick. I have always had a hard time with different medications...bad side effects to most things. My dad ...

Wow....time seems to just disappear on me. I meant to be back here a long time ago and then I get distracted and before I know it another day is gone and I don't know where it went....must be lack of sleep. I got my sleep study results....I just don't sleep...at least not much. I had to stay hooked ...

Dr. office called yesterday to set appt. to go over sleep study....the nurse told me on the phone that I do not have sleep apnea or PLMD...but didnt say anything else...I am guessing it is my meds that keep me awake. I have an appt. April 1 to see Dr. She told me my ferritin level is now at 189...th...

Well it has been about 2 months since I finished the infusions. I guess they did help some....so it probably was a good idea to do them...at this point anything that will calm this down is worth a try. I had my ferritin levels checked again last week but havent heard anything back yet. I go tomorrow...