Search found 120 matches

by D4
Wed Apr 18, 2007 2:01 am
Forum: Prescription Medications
Topic: neurontin
Replies: 36
Views: 8014

...I have no short term memory- I couldn't even tell you what I cooked for dinner last night. I forget where I put things and I can't spell. I also have word-finding difficulty when speaking. It's embarrassing. I truly feel "dumbed down" by this medication. It's amazing what a medication can do to ...
by D4
Tue Apr 17, 2007 2:39 am
Forum: Physical Treatments
Topic: magnesium worked
Replies: 4
Views: 2758

I read years ago that calcium and magnesium were good for your bones (to help prevent osteoperosis), so I've been taking them in consistently for years spaced out through the day. It might be helping my bones, but it hasn't helped my RLS. However, just like any vitamin or mineral, if you happen to b...
by D4
Sun Apr 15, 2007 10:23 pm
Forum: Physical Treatments
Topic: Exercise
Replies: 14
Views: 6734

Re: Exercise

... My restless leg is starting earlier and earlier during the day. I'm not a doctor, but it sounds like you could be augmenting on Mirapex. That's when Mirapex/Requip/Sinemet stops helping you and you have RLS symptoms earlier and earlier. The solution is to get off it (you may have to taper down)...
by D4
Sun Apr 15, 2007 10:15 pm
Forum: Prescription Medications
Topic: neurontin
Replies: 36
Views: 8014

WOW! Everyone responds differently, but 100mg knocked me out like a brick starting with the first night. I stayed at that dosage for a few weeks and then asked to switch meds because I couldn't wake up and the twisted dreams were more than I could handle. (I am sensitive to meds though and typically...
by D4
Sun Apr 15, 2007 10:07 pm
Forum: Prescription Medications
Topic: Topamax/stupamax/crazymax
Replies: 7
Views: 2154

Ray, just a little information on getting into Mayo. My neurologist referred me, but then my records had to be faxed to Mayo so one of their doctors could review them. The Mayo neurology dept scheduling person said there is so much demand for their services, that they only want to see the worst case...
by D4
Sun Apr 15, 2007 7:23 pm
Forum: Prescription Medications
Topic: Topamax/stupamax/crazymax
Replies: 7
Views: 2154

D4- Sounds like we have something in common, too much sleep! I have a sneeky suspicion that I might be depressed and that's what's making me tired all the time but I've never had depression before so I'm not sure. I just know I'm tired ALL the time. What I'd give to have a life again...Can you keep...
by D4
Sun Apr 15, 2007 1:42 am
Forum: Prescription Medications
Topic: Topamax/stupamax/crazymax
Replies: 7
Views: 2154

Re: Topamax/stupamax/crazymax

... I feel like the village idiot and have no idea what happened to the last 3 months of my life. One of the weird things going on in my head (there are many when your on Topamax) is that I've been having suicidal thoughts when my RLS gets really bad. I've never had them before. I have NO plans to ...
by D4
Fri Apr 13, 2007 7:53 pm
Forum: Just Joined?
Topic: Cymbalta
Replies: 5
Views: 1745

Re: Cymbalta

I presently take Cymbalta for Depression. Is that good or bad for RLS, and weight gain Welcome to the group. On page 55 of Dr. Buchfurer's book, Restless Legs Syndrome, it lists Cymbalta as a drug that tends to worsen RLS. (By the way, I highly recommend that book. It is my RLS bible.) I found out ...
by D4
Thu Apr 12, 2007 11:41 pm
Forum: Just Joined?
Topic: Not totally crazy
Replies: 3
Views: 1361

Which doctor is prescribing all the drugs for this? I would think they'd give you specific instructions so that you're not deciding what to take each night. Many of these drugs warn that you have to ramp up and down off them instead of taking them just starting/stopping them. Of course, I'm not a do...
by D4
Wed Apr 11, 2007 1:16 am
Forum: General Topics: RLS
Topic: The new old doctor
Replies: 4
Views: 1369

Susan, I'm so happy for you!!! We encounter so many docs and others that "just don't get it", so when we finally find someone who does it's like a miracle! By the way, my neurologist gives me a Vicodin prescription for 30 days plus one refill. As far as the queendom, how about locating it somewhere ...
by D4
Tue Apr 10, 2007 3:20 pm
Forum: General Topics: RLS
Topic: can't sleep
Replies: 8
Views: 1914

RLS and PLMD was driving me crazy and the quality of my life was really depressing me. I went to a psychologist a few weeks ago and talking with him has helped my mental health enough to make it worthwhile. I'm seeing him in a couple days. He's helping me keep my sanity while my neurologist and I tr...
by D4
Tue Apr 10, 2007 2:41 am
Forum: Just Joined?
Topic: Have had RLS 4 ever Need some people to talk to
Replies: 3
Views: 1238

Re: Have had RLS 4 ever Need some people to talk to

My Neurologist said he didn't think it was serious enough to be put on meds cause my hubby had not gone to sleep in another room yet. That seems totally inappropriate of your neurologist to have said that! So that means if your hubby couldn't stand sleeping with you that your doctor would put you o...
by D4
Mon Apr 09, 2007 10:28 pm
Forum: General Topics: RLS
Topic: RLS LIFE: Drugs, Side Effects & Everything Else
Replies: 650
Views: 234708

Brenda, I'm so happy for both of you. :D
I hope the surgery goes well tomorrow.
by D4
Mon Apr 09, 2007 1:59 am
Forum: Everything Else...just no RLS!
Topic: Rash? what teh fudge ?
Replies: 3
Views: 1869

I've spent my whole life dealing with skin rashes. I am ultra-sensitive to anything my skin touches. I have topical allergies to LOTS of things even foods. You mentioned soaps, shampoos, but have you switched detergents and fabric softeners that you use when washing your clothes, sheets, and towels?...
by D4
Sun Apr 08, 2007 6:55 pm
Forum: General Topics: RLS
Topic: The Pain Clinic
Replies: 12
Views: 2239

The one thing about the schedule 2 narcotics is that, I believe, the doctor has to see you every month and hand you the prescription. There's no calling in refills. So, unless they are able to hand over your care to your local doc, I don't know how you'll get your scripts for methadone or even oxyc...