Restless Legs Syndrome (RLS) Discussion Board

I have not.

Any opioid can cause dental issues. For me, it's dry mouth. I already had a lot of issues, but it's definitely worse with methadone. I already needed full mouth implants and now am a bit concerned to get them.

https://pubmed.ncbi.nlm.nih.gov/27492482/

Wow, my state of mind was not good when I last posted about 10 days ago. I wrote I was on "dopamine 5mg", Methadone is what I meant. It's really not a good opioid for me. I'm using it as needed, 5mg at bedtime if I'm symptom free or have minimal symptoms. 10mg if the pain has gotten ahead of me. If...

I've had mine since I was a child, so definitely not me.

I'm currently on 10 mg oxy a day and recovering from my 2nd cancer operation (lobectomy). It's not quite enough but Doc won't go higher dose. He suggested I go on Requip. I believe I tried that before without result. Any thoughts? I don't want to stop the 10mg oxy. I hope the recovery is going well...

I'm in a state of having too many directions to turn to but not in the direction where I should be heading heading yet. I've met with my primary who I've seen the most over time but divided up for a few months while he was on leave and I was in a different hosp for Pulmonary emboli. Back now to my ...

I really thought I would be getting more replies. Oh well. It is what it is. I guess I will have to find another way. This will probably be my last post. I hear a lot of people describing their RLS symptoms as a creeping type feeling. That is not what happens to me. My symptoms are like my entire b...

I cannot stand ANYTHING to touch my legs - it immediately sets off symptoms. No leggings, no stockings, or my husband's body/hands. Nor can I stand dry skin. I can feel the dry skin, pulling and prickling as I try to go to sleep and that makes the sensations start. Since I was a teen, I've hydrated ...

Hi Tim63 - thank you for sharing your story. I have not heard of that related to WED/RLS. When I was a toddler through early school age, I moved all over the bed. I'd wake up with my head where my feet should be, and so on. No adult would sleep with me. Covers never stayed on the bed. That stopped w...

Ann, in one of the posts on here you talk about having a hard time not forgiving yourself for being on a DA for so long. Maybe it will make you feel better if you know that the horrific early experiences you had were what convinced me to stay far away from the DA's. I can't even tell you how many d...

There are a few people here who get their WED/RLS treated at pain clinics. Squirming Susan was one of them - unsure if they still do or not. And some of the Quality Care docs will work with your PCP or other doctor - that is likely the best of all worlds IF your doc will work with the Quality Care d...

I couldn't get it prescribed, either.

Hi all, Do you know if your insurance pays for this device, will they cut your medication back? Will they continue to pay for both? I would love to try and put in for this with my doctor but if it doesn't work would hate to lose my medications! Also, has anyone tried the TheraPulse that is similar ...

I was in the study - for a short time. It doesn't really work with severe symptoms, so I washed out. I wish I could say positive things, but my symptoms are barely covered by both methadone and pramipexole, at a dose that is pretty high.

It's been about a year - I wonder how these studies have gone? I looked up the apomorphine one and it says it isn't yet recruiting, but that cannot be, can it? Hmmmm. I found a couple other ones that are interesting, though. https://ctv.veeva.com/study/gut-microbiota-and-bacterial-translocation-in-r...