Search found 14416 matches
- Tue Feb 13, 2024 10:36 pm
- Forum: Just Joined?
- Topic: Head roll
- Replies: 33
- Views: 1755
Re: Head roll
Hi Tim63 - thank you for sharing your story. I have not heard of that related to WED/RLS. When I was a toddler through early school age, I moved all over the bed. I'd wake up with my head where my feet should be, and so on. No adult would sleep with me. Covers never stayed on the bed. That stopped w...
- Thu Feb 01, 2024 10:00 pm
- Forum: Augmentation
- Topic: Augmentation tied to stroke ?
- Replies: 26
- Views: 17284
Re: Augmentation tied to stroke ?
Ann, in one of the posts on here you talk about having a hard time not forgiving yourself for being on a DA for so long. Maybe it will make you feel better if you know that the horrific early experiences you had were what convinced me to stay far away from the DA's. I can't even tell you how many d...
- Sat Jan 20, 2024 3:46 am
- Forum: Augmentation
- Topic: New-Asked to post about treatments
- Replies: 55
- Views: 78378
Re: New-Asked to post about treatments
There are a few people here who get their WED/RLS treated at pain clinics. Squirming Susan was one of them - unsure if they still do or not. And some of the Quality Care docs will work with your PCP or other doctor - that is likely the best of all worlds IF your doc will work with the Quality Care d...
- Fri Jan 19, 2024 11:46 pm
- Forum: Prescription Medications
- Topic: Has Anyone Tried Dipiridyamole During Augmentation?
- Replies: 3
- Views: 3848
Re: Has Anyone Tried Dipiridyamole During Augmentation?
I couldn't get it prescribed, either.
- Fri Jan 19, 2024 11:44 pm
- Forum: Physical Treatments
- Topic: New device: NXT 100 ToMAC
- Replies: 5
- Views: 14345
Re: New device: NXT 100 ToMAC
Hi all, Do you know if your insurance pays for this device, will they cut your medication back? Will they continue to pay for both? I would love to try and put in for this with my doctor but if it doesn't work would hate to lose my medications! Also, has anyone tried the TheraPulse that is similar ...
- Thu Jan 04, 2024 1:12 am
- Forum: Prescription Medications
- Topic: Anyone Heard of Nedria Tomac Therapy?
- Replies: 5
- Views: 8319
Re: Anyone Heard of Nedria Tomac Therapy?
I was in the study - for a short time. It doesn't really work with severe symptoms, so I washed out. I wish I could say positive things, but my symptoms are barely covered by both methadone and pramipexole, at a dose that is pretty high.
- Fri Dec 22, 2023 8:04 am
- Forum: Prescription Medications
- Topic: A Study
- Replies: 1
- Views: 12943
Re: A Study
It's been about a year - I wonder how these studies have gone? I looked up the apomorphine one and it says it isn't yet recruiting, but that cannot be, can it? Hmmmm. I found a couple other ones that are interesting, though. https://ctv.veeva.com/study/gut-microbiota-and-bacterial-translocation-in-r...
- Fri Dec 22, 2023 7:48 am
- Forum: Just Joined?
- Topic: Struggling
- Replies: 1
- Views: 8632
Re: Struggling
Hi Smileycarr79 - welcome to the board. I was about your age when everything started to spin out of control with me and the WED/RLS. I am so sorry that you are in this position. I taught, for a while, also, and I know how hard it is when you are in such a place. Have you heard of augmentation? I wou...
- Fri Dec 22, 2023 7:36 am
- Forum: Help for Relationships
- Topic: What Relationships?
- Replies: 54
- Views: 74539
Re: What Relationships?
Ann, what an awful year you've had. It is encouraging that you are almost there and I wish so much that this progress continues. How on earth did you cope. Steve, I can hardly believe that it is 4 years since that awful time when you were so badly treated. I wish you well as the anniversary comes a...
- Fri Dec 22, 2023 7:31 am
- Forum: Physical Treatments
- Topic: Handheld Percussion Massage Gun
- Replies: 3
- Views: 6565
Re: Handheld Percussion Massage Gun
My whole family has symptoms primarily in our thighs - we often use the "karate chop" method of beating on the muscles with our hands. Seems that this would do that much more effectively.
- Fri Dec 22, 2023 7:29 am
- Forum: General Topics: RLS
- Topic: Delayed Sleep Phase: RLS, Opioides, prior DAs
- Replies: 1
- Views: 6600
Re: Delayed Sleep Phase: RLS, Opioides, prior DAs
Hi tea4one - I haven't seen anything about it. I have no idea if I actually have delayed sleep phase or if something about WED/RLS makes it seem this way. Whichever it is, that has been my life for as long as I can remember. From reading under the covers in grade school to a bedtime of 5 AM in colle...
- Mon Dec 18, 2023 5:54 am
- Forum: Help for Relationships
- Topic: What Relationships?
- Replies: 54
- Views: 74539
Re: What Relationships?
I spent the last year mourning, grieving, and being depressed on top of the weight of the chronic illness stuff - it's been pretty miserable, Ann, so sorry to hear that you last year has been bad. I have had troubles the last few months as well and hopefully can get through next weekend since it wi...
- Mon Dec 18, 2023 5:52 am
- Forum: Help for Relationships
- Topic: What Relationships?
- Replies: 54
- Views: 74539
Re: What Relationships?
Thank you Views.... Yes so much chronic illness. So debilitating. I've only been on the AD for one week and can only hope for the best. I had no idea you were poorly and so glad you are on the mend. I do hope it works, Betty. It hurts my heart to think of you feeling like that. For me, it was a cum...
- Sun Dec 17, 2023 10:13 pm
- Forum: Just Joined?
- Topic: Augmentation & DAWS
- Replies: 16
- Views: 35378
Re: Augmentation & DAWS
Wow, this is all great to know & am so hopeful he’ll prescribe opioids for the withdrawal alone, not sure what plan is after roprinol cause I’ve tried gabapentin & side effects were too much on my mental health, etc-those class of drugs are not good for me. I sent my dr articles you sent. I haven’t...
- Sun Dec 17, 2023 10:11 pm
- Forum: Just Joined?
- Topic: Find pain points
- Replies: 1
- Views: 7730
Re: Find pain points
To find the pain point that send sensation pain ,bring your knee up to your chest pulling with your hands when you get the sensation is it coming from your lower leg if so rub hard above ankle bone if it's painful rub with some pain gel or cream this should help if it doesn't Acupoint 🤔 If it's you...