Search found 12977 matches

by ViewsAskew
Mon Jan 31, 2005 3:16 am
Forum: General Topics: RLS/WED
Topic: Sad, weary, and let down
Replies: 63
Views: 14857

OK, I'm back to the funk. I thought I had a regimen that worked; well it did work for almost 3 weeks! Not meaning to whine, becasue the RLS has slowly been getting better since November. Getting off the high (for me) doses of Mirapex helped tremedously. But nothing I try will let me stop it complete...
by ViewsAskew
Sun Jan 30, 2005 6:07 am
Forum: General Topics: RLS/WED
Topic: Difficulty Using Forum
Replies: 8
Views: 2530

Bunny, here's what I did. I got here and signed in and then created a Favorites page in my browser for the main Index page. Each time I come here, I just click on the favorite from my browser menu and it takes me directly to the Index page. I don't even have to sign in again, because I never signed ...
by ViewsAskew
Sun Jan 30, 2005 6:04 am
Forum: General Topics: RLS/WED
Topic: advice on opposing arguments
Replies: 1
Views: 782

Vanessa, there is a thread in the New to RlS section: http://beta.restlesslegs.org/phpBB2/viewtopic.php?t=298. Try that. See if it helps.

Ann
by ViewsAskew
Sun Jan 30, 2005 6:02 am
Forum: Just Joined?
Topic: New here
Replies: 25
Views: 4623

Sherry, I get something that may be similar. . .I describe is as being bit by a horsefly or bee. It hits fast and hurts and itches simultaneously, then goes away pretty quick. A while back, they were lasting up to to a few minutes, but generally go away in a few seconds to 30 seconds. They are almos...
by ViewsAskew
Sat Jan 29, 2005 5:49 pm
Forum: General Topics: RLS/WED
Topic: Newbie Intro
Replies: 4
Views: 1146

Welcome, Jamie. Most of seem pretty happy here and that's the best testament I can think of! Getting the right diagnosis can be tricky, as you've found. Many of us (I'd guess the majority) were self-diagnosed. Having a neuro that knows what he or she is doing (or whatever doc treats your RLS or PLMD...
by ViewsAskew
Sat Jan 29, 2005 12:43 am
Forum: Just Joined?
Topic: hello there, answers at last!!!
Replies: 4
Views: 2021

ampresearch, in a way they do know why it happens. Just not all of it. But, the gist is that certain cells in our brains do not have enough receptors to uptake iron, so they are iron deficient. In this same area, cells are supposed to uptake dopamine. Since the cells are iron deficient, they don't w...
by ViewsAskew
Fri Jan 28, 2005 9:18 pm
Forum: Just Joined?
Topic: Hello fellow RSLers
Replies: 22
Views: 6918

Jan, Dearest, you have no need to apologize to me for anything, let alone because you were sick! Hope you are feeling better. Being here for all of us is something we appreciate, but your life comes first :) . Interesting that there is a warning not to use it for weight loss. I looked at it several ...
by ViewsAskew
Fri Jan 28, 2005 6:34 pm
Forum: Prescription Medications
Topic: IRON SUPPLEMENTS?????
Replies: 4
Views: 2322

I bought a watch that has multiple timers. It goes off, I take some meds. They also sell medication timers, too. I keep it simple: Iron when I wake up - first thing in my mouth. All vitamins after breakfast (I know throughout the day in divided doses may be better, but I won't remember). Then the ti...
by ViewsAskew
Fri Jan 28, 2005 6:30 pm
Forum: Just Joined?
Topic: Hello fellow RSLers
Replies: 22
Views: 6918

Not sure if Topamax is on the So Cal Support group site. I think I found out about it by doing searches or at the RLS conference. Ala, please look at the So Cal Support group site. There is a wealth of info about drugs for RLS. http://www.rlshelp.org. Elavil can make RLS worse. Sinemet is not recomm...
by ViewsAskew
Fri Jan 28, 2005 4:39 am
Forum: Just Joined?
Topic: Hello fellow RSLers
Replies: 22
Views: 6918

But, Jan, what I want to know is did it work on the RLS????? You were still taking the Mirapex, right? Why did the ****neuro take you off of it?

Desperately seeking new options,
Ann
by ViewsAskew
Thu Jan 27, 2005 11:52 pm
Forum: General Topics: RLS/WED
Topic: sleep thief, LIFE THIEF!!!!
Replies: 373
Views: 94401

Yep!

Hey, Lyndarae. At lower doses of Mirapex it doesn't happen to me, but when I take more, I get EXTREMELY cold at night. Each night I would need extra covers. As soon as I would wake, I would get really hot. Then I couldn't fall back asleep until I cooled down. I've always had the itching. I put lotio...
by ViewsAskew
Thu Jan 27, 2005 9:35 pm
Forum: Just Joined?
Topic: Hello fellow RSLers
Replies: 22
Views: 6918

Excellent, someone on Topamax! It's in the seizure class, like neurtontin, but I've never known someone on it (hope you don't mind that I'm thrilled that you're a guinea pig :P ). Keppra is another seisure drug that the docs at the RLS conference talked about, but I've not heard anyone post that the...
by ViewsAskew
Thu Jan 27, 2005 6:40 pm
Forum: Just Joined?
Topic: New here
Replies: 25
Views: 4623

Sherry, please accept my heartfelt condolences. I lost a step-son a few years ago (very suddenly) and I can't imagine what you went through. Just wanted to respond about the Parkinson's. There is NO connection between have RLS and getting Parkinson's. At the RLS conference, this came up and the docs...
by ViewsAskew
Thu Jan 27, 2005 3:34 pm
Forum: General Topics: RLS/WED
Topic: Arms fall asleep
Replies: 9
Views: 3256

I used to wake up with my arms and hands asleep all the time. It's very painful! I don't anymore, though. I sleep with one arm under my pillow and head; with my old mattress, there was too much pressure from my head and the mattress didn't give. With the new memory foam mattress, it doesn't happen a...
by ViewsAskew
Thu Jan 27, 2005 3:27 pm
Forum: Just Joined?
Topic: I'm new...
Replies: 11
Views: 3207

Hi Audrey - so sorry about the RLS being worse (and that you have it :evil: ). I'm not completely awake, but you mentioned Prozac. Many SSRIs can make RLS worse. You might get some feedback from others here; reading through the posts you'll also find lots of them about it. Wellbutrin seems to be one...

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