Search found 13077 matches

by ViewsAskew
Thu Mar 10, 2005 4:19 am
Forum: General Topics: RLS/WED
Topic: Too much press???
Replies: 72
Views: 12502

Jan, I don't know what to say. Trying to be happy when you're going through what you are is like trying to be a dog when you're a cat! Be what you are and honor those feelings, even if they are sad or angry or other things that we sometimes think aren't 'good.' Oh, I sure do wish it were that easy, ...
by ViewsAskew
Thu Mar 10, 2005 1:46 am
Forum: General Topics: RLS/WED
Topic: Appt with my nuro
Replies: 10
Views: 2114

Brady, what a shock to hear Martina's QofL, huh? I remember that PLMD was the begininning of the end of my previous long-term relationship (9 years total, in seperate beds after 3, having separate lives after 6). It's very hard on a relationship when you don't discuss it. . .or deal with it. . . You...
by ViewsAskew
Wed Mar 09, 2005 8:48 pm
Forum: Just Joined?
Topic: have i got rls
Replies: 7
Views: 1652

Ann, it sure can feel that way, can't it? It can be hard to remember that it's not in your head when you don't know for sure. But regardless of what they finally diagnose it as, something very real is causing it. It just may take some time to get it all sorted out. Hopefully your appointment with th...
by ViewsAskew
Wed Mar 09, 2005 3:43 pm
Forum: General Topics: RLS/WED
Topic: Too much press???
Replies: 72
Views: 12502

Corrie, Brady, Sara - so many good points, so insightful. Rest and relaxation being the enemy of RLS never occurred to me. It could be a good way help others understand why RLS can be so difficult to deal with. The point about working from a place of acceptance while being on the barricades is impor...
by ViewsAskew
Wed Mar 09, 2005 3:09 pm
Forum: Just Joined?
Topic: Finaly
Replies: 2
Views: 902

It is a good feeling to be able to name it, isn't it? Welcome to the site and hope you are enjoying all of the information and comraderie of this board. I'm grateful to have a place to go to learn so much and feel like I'm part of a family.

Ann
by ViewsAskew
Wed Mar 09, 2005 4:35 am
Forum: General Topics: RLS/WED
Topic: Too much press???
Replies: 72
Views: 12502

Jan, it's my turn to have tears in my eyes. Thanks for sharing that anger - I'd briefly forgotten mine and mayhaps have become too complacent. Corrie gently reminded me a month or so ago, but I was so glad not to be doing daily battle and to have someone doing a better job of listening that all I di...
by ViewsAskew
Tue Mar 08, 2005 9:11 pm
Forum: Just Joined?
Topic: acupuncture for RLS?
Replies: 2
Views: 944

I have read posts where some people say it helps them. It might have for me, but I couldn't get through the sessions! When I was laying in the table with the needles in, my RLS would fire up horribly. So, there I was, not supposed to be moving, and my legs are going nuts. Each time I moved them, whi...
by ViewsAskew
Tue Mar 08, 2005 9:06 pm
Forum: Physical Treatments
Topic: MORE iron and magnesium???
Replies: 5
Views: 4181

I still am amazed when I hear these stories. Ian, good luck - I know what it's like with a doctor that won't listen and isn't up to date but thinks he/she is. Hopefully you won't have to wait too long. Per the magnesium thing, yes, it is supposed to help leg cramps. So is quinine. I read somewhere t...
by ViewsAskew
Tue Mar 08, 2005 3:44 am
Forum: General Topics: RLS/WED
Topic: Starting Out - Links and Information updated 12/13/05
Replies: 29
Views: 13166

New Research Studies

Hey, I just added a new link. Johns Hopkins now has an RLS site! There were several research studies listed on it. If anyone lived near Maryland and you can participate, it would be such a good thing.

Ann
by ViewsAskew
Mon Mar 07, 2005 9:41 pm
Forum: General Topics: RLS/WED
Topic: It's Early, Quality of Life Plea for 2005
Replies: 111
Views: 61285

Thank you, Becat, for sharing your story. I know it will have an incredible impact on everyone who is lucky enough to read it.

Ann
by ViewsAskew
Mon Mar 07, 2005 3:50 am
Forum: General Topics: RLS/WED
Topic: It's Early, Quality of Life Plea for 2005
Replies: 111
Views: 61285

2005 Quality of Life

"It's like an electrical current; maybe like from a cattle prod," I told my nephew. He asked more questions. "Is it like when your leg falls asleep?" "No," I said. I tried to explain again. And again. He wanted to know, but what he really wanted was to have "me" back. The "me" that didn’t need to le...
by ViewsAskew
Mon Mar 07, 2005 3:48 am
Forum: General Topics: RLS/WED
Topic: It's Early, Quality of Life Plea for 2005
Replies: 111
Views: 61285

We Move Questionnaire

Hey all, We Move is still looking for info about our expereinces with RLS. I decided to rewrite my quality of life while doing the questionnaire. Here is what they are looking for: Life in Motion: Patient Questionnaire Today, more than 82 million people in the United States live their lives challeng...
by ViewsAskew
Mon Mar 07, 2005 3:24 am
Forum: Just Joined?
Topic: I am looking for advice
Replies: 24
Views: 9836

CC, the Duragesic is for pain, right? So those of us with painful RLS might find it beneficial. Am I right in assuming that it doesn't stop the twitchy, electrical, creepy-crawly feelings, though? It's always nice to hear that something is working for someone - sometimes those of us most vocal are t...
by ViewsAskew
Mon Mar 07, 2005 3:18 am
Forum: Physical Treatments
Topic: MORE iron and magnesium???
Replies: 5
Views: 4181

You might want to do some general searches on it on the Web; I don't know much about magnesium but seem to recall that you shouldn't take too much, but can't remeber why. Becat and Sara might know. Per the iron, from what I've read, you should not take it without having your blood tested regularly. ...
by ViewsAskew
Sat Mar 05, 2005 4:28 pm
Forum: General Topics: RLS/WED
Topic: Too much press???
Replies: 72
Views: 12502

Drug Holiday and other thoughts

Corrie, such wise thoughts. Less can definitely be more. This is so important. I think the idea of drug holidays NEED to be looked into more. Instead of upping our dose of a drug when it seems not to be working as well, many people are finding that taking a holiday from it for a couple of weeks allo...

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