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by ViewsAskew
Tue Dec 07, 2004 3:27 am
Forum: Just Joined?
Topic: Newbie to the board...AND RLS....
Replies: 9
Views: 2465

OK, I'll bite on number 1. MY theory (and my education doesn't have the word "science" in it anywhere :D ), is that it's related to the neurotransmitters being out of balance. We know that RLS brains have TOO much dopamine. The cells can't uptake it, so the brain keeps thinking we need more. Well, i...
by ViewsAskew
Tue Dec 07, 2004 2:58 am
Forum: Physical Treatments
Topic: newspaper article on rls
Replies: 13
Views: 7736

Well, didn't work for me. . . and there are a whole bunch of RLSers on one of the Yahoo sites that it didn't work for either. I guess it's worth a try because it's free and easy, but I certainly wouldn't want people to get the impression that a certified movement disorder with a know cause in the br...
by ViewsAskew
Tue Dec 07, 2004 2:48 am
Forum: General Topics: RLS/WED
Topic: Sad, weary, and let down
Replies: 63
Views: 14665

Thanks Becat for the care and compassion for me. I will call tomorrow and see if I can get some interim meds. I've already called my primary care. The problem is that the specialist for RLS DOESN"T WANT TO SEE ME, not that I won't see her or give her a chance! She is listed on this website as a spec...
by ViewsAskew
Mon Dec 06, 2004 11:23 pm
Forum: General Topics: RLS/WED
Topic: Sad, weary, and let down
Replies: 63
Views: 14665

Sad, weary, and let down

I'm so sad right now I could cry. In fact, as I type this, I might. I had such high hopes for the new neuro. I waited for months to get the appointment, all the while just trying different drug combos on my own. I say here today and it was less than stellar. She met with me for an hour, which you wo...
by ViewsAskew
Mon Dec 06, 2004 3:39 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: my experience with restless leg syndrome and seizure
Replies: 1
Views: 3034

Hi Amanda, You sound like you've done lots of research. I can only add a little to what you already know. People with renal failure have a high rate of getting RLS, as you've already found out! Doxepin in an older tricylclic drug and they are known to aggravate RLS. Klonipin (clonazapam) has long be...
by ViewsAskew
Mon Dec 06, 2004 4:24 am
Forum: Prescription Medications
Topic: What meds work for a cold?
Replies: 6
Views: 3487

Zicam

The best thing I have found is to start using Zicam at the first symptom of a cold. Here is the US, I've found it at most drugtores. It's made from zinc, I think, and doesn't stop the symptoms, but reduces the time you have the cold. You squirt some in your nasal passages, rub it around, and repeat ...
by ViewsAskew
Fri Dec 03, 2004 11:25 pm
Forum: Help for Relationships
Topic: Sleep Interview with HUBBY
Replies: 4
Views: 4230

Hey, Brady, I don't think it's just a guy thing. It may be whoever is the most likely to be awake and see things. Steve is more than happy to share, and does, but only when he is sleeping less than I. Per the how I feel about my sleep, he usually asks me each morning when he comes down and I'm here ...
by ViewsAskew
Thu Dec 02, 2004 4:21 pm
Forum: General Topics: RLS/WED
Topic: Restless Leg Syndrome and Pregnancy
Replies: 3
Views: 1375

Hi Anji, I'm not awake enough this morning or I'd help you look, but I know I saw other threads about this. Have you tried the Search function at the top of the screen? And if you don't find it here, there are are a couple of other support groups. I know I saw a thread about it recently. Maybe someo...
by ViewsAskew
Thu Dec 02, 2004 5:06 am
Forum: Prescription Medications
Topic: Cymbalta - it works for me !!
Replies: 4
Views: 3739

Good to know that something else works for someone. I'll add it to my list for when I've exhausted everything else. :lol:
by ViewsAskew
Thu Dec 02, 2004 5:04 am
Forum: Just Joined?
Topic: jumping
Replies: 2
Views: 1542

hypnic jerks

When you are FIRST falling asleep, many people have hypnic jerks. They are common and benign. They consist of jerks of major body parts (and you are aware of them) and may include a feeling of falling. They only last a couple of minutes, and then you are in the next stage of sleep. Could this be wha...
by ViewsAskew
Wed Dec 01, 2004 12:30 am
Forum: General Topics: RLS/WED
Topic: Oh, goodie.... leg twitching... a new symptom
Replies: 2
Views: 1480

Too weird

You know, I almost posted the thing about the eyelids, but decided not to. I actually looked up muscle tics and twitches about a month ago because my eyelids had been twitching for a while. Well, since about the time that the drugs stopped working and I stopped sleeping and couldn't get to the new n...
by ViewsAskew
Tue Nov 30, 2004 10:41 am
Forum: General Topics: RLS/WED
Topic: Meds/life/RLS/ just need an ear...Please someone
Replies: 6
Views: 2783

Agreed

Irena. . .well, RLS SUCKS! :( . I am typing this at 4 AM as I am unable to sleep and the RLS is rocketing through my right arm in addition to my legs. For me the are does feel different, not so much painful, but heavy. I move it in order to try and release the heaviness. So much has been written her...
by ViewsAskew
Mon Nov 29, 2004 3:22 am
Forum: Just Joined?
Topic: worsening rls-help
Replies: 6
Views: 2538

Re: worsening rls-help

Yesterday, this happened at the afternoon movies - going to an afternoon vs evening movie makes no difference for me and is not better. What kind of a doctor do you go to for help (I'm in Canada)? Should I bother going to a doctor to get it diagnosed or does it matter? Celia had great advice. I thi...
by ViewsAskew
Mon Nov 29, 2004 3:10 am
Forum: Physical Treatments
Topic: Mirapex
Replies: 6
Views: 4369

Hi JumpyLegs, welcome. You'll find some discussions on Mirapex in the Pharmaceutical Section. I know one of them is called Dopamine Agonists, I remember because I started it! In that thread I list some of the weird side effects I got. I just did a search and also found this one: http://beta.restless...
by ViewsAskew
Sun Nov 28, 2004 9:01 pm
Forum: Just Joined?
Topic: I have had RLS and I am just receiving help
Replies: 3
Views: 1812

Trial and error

The trial and error part is one of the hardest parts for me. It can take several weeks to titrate something high enough to decide it doesn't work. During that time, you can be crazily symptomatic. Then you get to switch! Or when things abruptly stop working. Now that's fun :twisted:. Or keeping my l...

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