Search found 13192 matches

by ViewsAskew
Wed Jun 27, 2018 5:22 pm
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 47
Views: 1724

Re: Methadone and Gabapentin no longer working well

I get tolerance. I just have to stop everything at some point to reset. When I started with methadone, I needed 10 mg. Then 12.5, then 15 - all within a few months. Dr. B thought I just might have been at too low of a dose to start with. But, in retrospect, I do not think so. I regularly get up to 2...
by ViewsAskew
Wed Jun 27, 2018 5:16 pm
Forum: Augmentation
Topic: Brain chemistry or pathways and dopamine agonists
Replies: 5
Views: 347

Re: Brain chemistry or pathways and dopamine agonists

DAWS is an issue at higher doses. As with anything, there are always a few outliers. We have a member who had DAWS as a lower dose, though. I asked Dr. Buchfuhrer about it a few years ago -at the time he'd never seen it in his patients and he always advocated immediately stopping DAs when the dose w...
by ViewsAskew
Wed Jun 27, 2018 5:21 am
Forum: Prescription Medications
Topic: Desperate
Replies: 36
Views: 1026

Re: Desperate

Ann, I am just to afraid the ADs will activate the RLS which is so out of control right now. Meds are not doing what they need too. Getting 4 hours a night and don't want it to go lower than that with an AD as that will give me cause for more depression in itself. Will try to get on another med in ...
by ViewsAskew
Wed Jun 27, 2018 5:17 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 51
Views: 10206

Re: RLS, Depression and Anti-depressants

Ann, I do think if I can get over my terror about the ADs, I think I CAN cope with the situation and can keep my job if I get an electric scooter. I just don't feel I have my sleep stabilized enough to do that right now. I feel just like Beth did with her post on death the answer. On good pain days...
by ViewsAskew
Tue Jun 26, 2018 8:21 pm
Forum: Prescription Medications
Topic: Desperate
Replies: 36
Views: 1026

Re: Desperate

ann . yes i do swim a few times a week as this helps the feet. saw my doc and she referred me to a psychiatrist due to the restless leg issue. oh and i have some freer weights i do. Glad you have access to a pool. I know when my I needed knee surgery, the pool was the only way I could get any exerc...
by ViewsAskew
Tue Jun 26, 2018 8:20 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 397
Views: 91633

Re: Published Research -

Polar Bear wrote:Nerve Decompression Surgery thought to help RLS Symptoms.

https://www.ncbi.nlm.nih.gov/pubmed/28729849


Interesting...and makes me wonder how often neuropathy is comorbid with RLS as well as how often RLS may be mistaken for neuropathy.
by ViewsAskew
Tue Jun 26, 2018 8:18 pm
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 13
Views: 142

Re: What med cocktail works for you??

For more on poor decision making by doctors, an interesting and enlightening read is How Doctors Think. Mutsey67 - I think you will find that we all take such different things that having this info may not help much. It IS that complex - there are no drugs developed for RLS, there appear to be diffe...
by ViewsAskew
Mon Jun 25, 2018 6:52 pm
Forum: Prescription Medications
Topic: What med cocktail works for you??
Replies: 13
Views: 142

Re: What med cocktail works for you??

Mine varies so frequently, not sure it helps to share! Right now I am slowly decreasing methadone to take a 2 month vacation from it. I am in hell, lol. This is voluntary - I do not have to do this. I am one who has tolerance to opioids, however, so taking a break every couple years can reset recept...
by ViewsAskew
Mon Jun 25, 2018 6:04 am
Forum: Prescription Medications
Topic: Desperate
Replies: 36
Views: 1026

Re: Desperate

working out helped my rls and mood immensely. now that i have difficulty walking its seems as if there is no reprieve from the physical pain, rls and depression that has worsened considerably this past year. i think about death ALL the time and i do eat a very clean paleo diet. Oh - peanut - so sor...
by ViewsAskew
Mon Jun 25, 2018 6:02 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 51
Views: 10206

Re: RLS, Depression and Anti-depressants

Let us know how it works out.
by ViewsAskew
Sat Jun 23, 2018 9:07 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 29
Views: 4234

Re: Rate of Ferritin Decline

Bronwen wrote:file:///C:/Users/user/Documents/Health%20-%20RLS%20-%20Iron%20-%20Consensus%20on%20Teatment.pdf

So, no hard and fast rule.
But you certainly see your doc when everything goes pear-shaped and you're plastered on the kitchen ceiling at two in the morning.


Indeed!
by ViewsAskew
Sat Jun 23, 2018 9:06 pm
Forum: Augmentation
Topic: Brain chemistry or pathways and dopamine agonists
Replies: 5
Views: 347

Re: Brain chemistry or pathways and dopamine agonists

I don't think I have heard that. I don't use it because I need it, rather it helps me reduce the opioid and helps reduce some of the opioid side effects. I am find on the opioid without it in terms of the RLS.

Did the person offer any studies?
by ViewsAskew
Tue Jun 19, 2018 9:59 am
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 766

Re: Hot Tub?

Stainless, I also take a very hot bath. Long ago when doing an internship at a state-run mental health facility, I was housed in a wing that used to be used for residents. The showers had thermostats on them, so you could tell what temp your shower was. I routinely took 112-117 degree showers (it wa...

Go to advanced search