Restless Legs Syndrome (RLS) Discussion Board

I started using a tablet computer, which I can carry with one hand and operate with the other. It does almost as much as my laptop and can run any of the e-reader software. I download books from Amazon and can read while walking around the house. The only "obstacle" is our cat and she know...

Beth, thanks for all the great information. The abstract linking iron deficiency and a decrease in myelin is the first time I have seen anything proposing a mechanism for how low iron in the brain has an impact. As for this link following your comment - We are also more sensitive to blunt pressure, ...

(There was a study that found damage to the myelin sheath in WED/RLS - maybe just to its functioning; even if it was physical degeneration of the myelin, that is not cell death, therefore not "neurodegenerative") Beth, could you provide more information about this study on myelin damage a...

Thanks Beth. I have been reading quite a bit about augmentation and the problems that people go through getting off of DAs. It was my sleep doctor who originally prescribed Miraplex. I am fairly confident that he is aware of the problem since they have me on a fairly short revisit schedule for close...

Beth, I am currently being treated with aPAP set for a range to resolve my flow limitations (I have virtually no true apneas). Although I have not had any trouble adapting to PAP therapy(I am an avid scuba diver so a mask on my face and breathing compressed air seems normal), I cannot say that the a...

I found the bruxism/migraine/WED study after my previous post. Here is the link: m In addition there is a new study that looked at the treatment of migraines with pramipexole. The initial results on a very small group looked promising, although they admitted that they could not explain why an AD wou...

I have suffered from migraines for about as many years as WED/RLS. I did an internet search on both, on a whim. I got a number of hits that indicate that there may be a connection and that research may eventually find a common cause. Here is a link to a somewhat recent technical paper that reviewed ...

Yes, my doctor had my ferritin tested at my last visit. The number came back as 43. I am currently taking iron tablets twice a day and it seems to be helping in that the Miraplex was only working for 23 hrs and now I am usually able to get to the next pill with few symptoms. I go back for my followu...

I first started showing symptoms of WED many years ago. My work required me to travel internationally and the 8-24 hr plane rides could be unmitigated torture. It was the outbound trips that were really bad. Return trips were generally not too bad, even though I was usually exhausted from the stress...

I suppose that anyone with any condition needs to get "up to speed" but it seems that you have two conditions that require extra work. Many doctors are not familiar with them, so you have to know more than someone with another condition, say diabetes type II, would have to. You are clearl...

Thank you ladies for the complements. As a newly diagnosed sufferer of both WED and UARS, I have had to come up to speed rather rapidly. Fortunately, both conditions have been responding to treatment and I am starting to catch up on years of lost sleep. It has been wonderful to actually look forward...

I am a tall, thin 60 yr old male who has been diagnosed with WED as well as PLMs at night. I have probably had WED since middle age, but it only started causing major problems about five years ago. During my recent sleep study, they did not find any true apneas nor very much in the way of hypoxeia a...

Thanks for all the comments and suggestions about infusions. Unfortunately, I am still waiting to hear back from the doctor on my ferritin levels. I guess that I need to bug them again tomorrow. They promised me a copy of all my results via snail mail last week, but still nothing. Although I underst...

Ann, thanks for the suggestion to contact Dr B. Unfortunately, he was not able to provide any additional insight into my problem. The majority of his response was: "It is difficult to figure out why the allergies worsen your RLS as that is not a common problem. It is possible that any stress (s...

I have had WED/RLS for more than 15 yrs, but was always able to control my symptoms with iron supplements. I also have had very severe respiratory allergies all my life and I am only able to "live" with a combination of antihistamines (Zyrtec), nasal steroids and a leukotriene inhibitor. A...