Restless Legs Syndrome (RLS) Discussion Board

Thanks to you I am considering now staying on Neurontin because I also am finding that I am getting very effective relief. I am down to 0.5 mg Mirapex and 600 mg Neurontin and doing well. So I want to see what does of Neurontin I need when I get completely off Mirapex in about 2 weeks. thanks for sh...

thanks Steve and Ann. Ann, do you go completely off dopamine agonists on your holiday or do you shift to different DA?

Steve and Ann, were you talking about Horizant or Neurontin. I see that the topic is Horizant but was thinking you were talking about Neurontin. Since I am soon to start shifting to Horizant I am interested in what happens if you take that drug much later than the 5:30 pm time that is recommended.

I used to take Neurontin 2 hours before I wanted to sleep but have recently shifted to 3 hours earlier. Either way, on 600 mg I tend to wake up early, about 5 - 6 am, after 6-7 hours sleep. But then I get groggy after about 30 minutes later and go lay down and get another hour of sleep. The half-lif...

Have you considered just using an opioid only for both your sciatica and RLS? Dr. Buchfuhrer has had quite of few patients on opioids for RLS, some on them continuously for years. He is not afraid to use opioids if you can't get relief from the dopamine agonists and gabapentin drugs. He prefers meth...

I only used Horizant for a short time simply because it did not provide any improvement over the FAR cheaper gabapentin. I asked you about this in another forum. So here is the answer I seek. The other issue I have with Horizant is that YOu need to take this at 5:30 pm with food. That can be a probl...

Rustsmith, what kind of benefit do you get from your 1200 mg of gabapentin? Are your symptoms totally controlled, well controlled or what? I got sticker shock from finding out that Horizant will cost be $65 per month. I have been using Neurontin at 300 mg to supplement Mirapex for over a years with ...

I am transitioning from Mirapex to Horizant (Gabapentin Encarbil) due to augmentation and impulse control problems. However I just learned that Horizant will cost me $65 per month. But it is the only gabapentin drug approved for RLS and is recommended in the Clinical Treatment of RLS book. I am wond...

I long ago passed the point where I needed 0.25 mg of Mirapex. I have been on 1 mg for years, And I have had augmentation for years. But now I an transitioning off Mirapex and onto Gapapentin Encarbil. The drug doesn't cause impulse control issues and augmentation. My plan is to go off Mirapex compl...

Is Dr Buchfuhrer the person who does the Medical Reply on the Southern California RLS Support Group, Patient Letters website? Whomever it is, that person prefers methadone to oxycodone as the opiode to use to come off of DA's. That methadone has a longer half life and one dose should last the night ...

ViewsAskes, I had not hear about the recommendation that no one take more than 0.25 of pramipexole per day. Where can I find this? I am currently on 0.50 mg of Mirapex (pramiprexole) and while the sexual side effects seem to be gone, I may still have augmentation and also I have put on 40 lbs since ...

I would like to share my story about impulse control on dopamine agonists. I have had RLS for 20 years. About 10 years ago I had a prostatectomy. My wife was a physician and she thought that cabergoline, a dopamine agonist drug that is used in Europe for RLS is also used by some to increase libido, ...

My RLS doctor doesn't like benzos, but seems more worried about short lived Xanax than longer lived Lorazepam. My experience was that Xanax worked better with fewer side effects and I didn't develop tolerance. I have always combined a benzo with another drug, either a dopamine agoninst (Requip or Mi...

Ann, do the 50% that have problem getting off Xanax take it only once a day or are they taking it more than that, possibly for anxiety? I am in the 50% that doesn't have problems getting off but take it only at night. I was set to go back on Xanax, using my primary care doctor, when my RLS doctor pr...

Zach. You seem to have a good knowledge of the effects of the various RLS medications. What is your take on Lyrica? I have been taking it for 2 or 3 weeks with good effects. Mainly I like waking up with a clear hear, something that wasn't happening with Lorazepam. I am still taking 50 mg of Ambien w...