Restless Legs Syndrome (RLS) Discussion Board

Keana, I’m so sorry this is happening to you. Your words just made me cry in frustration. I hope you can feel the empathy here and that among the suggestions, you will find something that helps.

doety: Being new to methadone, I didn’t know *what* to expect. (You can find the terrifically practical and comforting support I received on the thread “Methadone users” at page 10.) I believe Zach describes extreme flu-like symptoms as being a consequence of suddenly stopping the medication. As it ...

This discussion is frankly fairly scary. My switch from Mirapex/Ambien to methadone has been going along okay – I’m trying to notice reactions and changes with the thought that if this isn’t for me, I’ll try something else. Now I’m wondering if I should rethink methadone entirely. (regarding withdra...

It was a 5+ hour flight! Flying is usually not a problem because I take whatever is my current RLS medication early enough to forestall symptoms (which inevitably, for me, accompany long bouts of sitting whether in planes, trains, or automobiles…). This particular flight, however, was fraught with m...

Hey all, Way back in January on another thread I asked for help with my methadone emergency – I was far from home and had forgotten my medication. I had been taking 10 mg per day for less than a month with pretty good results. My lack of response to your wonderful support is an inverse measure of my...

Here’s my too careless-for-words problem. I’m almost too embarrassed to admit to this lapse in self-management, but I’m desperate and sure hoping someone can offer a suggestion: I left for a long week-end cross-continent trip to my mom. I ordinarily keep my medication packed in my travel stuff, but ...

I was wondering about this, too in my fourth week of methadone. I’ve learned that I need to take 10 mg. all at once, not split. My symptoms are blessedly gone at night. I don’t start kicking until about 6 a.m., and I’m sleeping pretty well (except for waking up to unstick my tongue from the roof of ...

I know what you mean, Ann, about wanting one’s real life back. I want to fix it and have it stay fixed. If it will help to add to the fund of knowledge, here is my experience with methadone and side effects I’m dealing with so far. I’m lucky, as I mentioned elsewhere, that I don’t have daytime sympt...

Helen you are dealing with so much right now. I've thought of you often and hope you’re finding a solution with your team. My problems are small in comparison, but still I’m mighty confused as I try to work out the right methadone dosage and timing. I stay on the move pretty much all day and avoid m...

When I started to itch a few days ago, it seemed most likely that it was methadone causing it – and, sure enough, I found the answer right here! Somehow it doesn’t seem so bad. It’s not like any other kind of itch I can recall; scratching feels pretty good, and it doesn’t make the itch worse (as wit...

jml – As you’ve noticed from everyone’s experience, nothing seems to work forever -- or what once worked may be combined later with something else. I took only xanax for rls for quite a while and did very well. Later mirapex, too, was fine except for the insomnia which accompanied it – and finally t...

You’ve provided some welcome information. New to discussion boards, I just learned that I have “hijacked the thread.” I’ll get the hang of it – and will conclude by returning the hostage and sharing my own Mirapex experience – I have taken it gratefully for six years, gradually increasing to .250 mg...

Thank you all so much for your experience and articulate discussion. I've been following with enormous interest all weekend having spent four ferocious nights since stopping Mirapex. I have begun Methadone, but took too much the first night and was sick and sleepy the next day. When I cut back, my s...