Search found 7434 matches

by Polar Bear
Thu Feb 08, 2024 2:38 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 905

Welcome to pkstex

8 February 2024 Welcome today to pkstex who has suffered RLS with dystonia for 30+ years. It has dramatically constrained the ability to travel and volunteer. Please post and tell us how you and your doctor have been treating your symptoms. Do you know what your ferritin serum level is, this is impo...
by Polar Bear
Thu Feb 08, 2024 2:31 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 905

Welcome to gsloper

8 February 2023 Welcome today to gsloper who has whole body RLS and needs all the help he can get RLS is pretty awful and whole body RLS is so difficulty to cope with. If you will make a post giving us details of how you have been managing your symptoms, what medications have or have not worked, we ...
by Polar Bear
Thu Feb 08, 2024 2:24 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 905

Welcome to epws

8 February 2024 Welcome to epws who has had RLS for 30 years and has had an assortment of treatments(iron infusions for low ferritin levels, Gabapentin, Pregabilin) each has worked for a little bit- some longer than others. Recently had Botox in the calves and is curious to hear about others experie...
by Polar Bear
Tue Feb 06, 2024 7:06 pm
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 28
Views: 1140

Re: Reversing Restless Leg Syndrome

When you say your iron levels are around 100, make sure this is your Ferritin Serum level. When I tapered from 5mg Requip I did it much slower than most folk. It took me 10 months doing very minimal reductions at a time and I did it without difficulty. However, I also had the support of Pregabalin a...
by Polar Bear
Tue Feb 06, 2024 4:51 pm
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 28
Views: 1140

Re: Reversing Restless Leg Syndrome

I don't believe there is a miracle cure for RLS. I don't believe either that it can be reversed.... my opinion only. However, it may be possible to control the symptoms. Your dosages of Mirapex/pramipexol/requip have been way too high. When I was first started on Requip is around 2007 the leaflet in...
by Polar Bear
Tue Feb 06, 2024 4:47 pm
Forum: Just Joined?
Topic: POSSIBLE MIRACLE CURE FOR RLS?
Replies: 2
Views: 132

Re: POSSIBLE MIRACLE CURE FOR RLS?

I don't believe there is a miracle cure for RLS. I don't believe either that it can be reversed.... my opinion only. However, it may be possible to control the symptoms. Your dosages of Mirapex/pramipexol/requip have been way too high. When I was first started on Requip is around 2007 the leaflet in...
by Polar Bear
Tue Feb 06, 2024 10:30 am
Forum: Just Joined?
Topic: looking for a RLS melbourne, australia
Replies: 2
Views: 96

Re: looking for a RLS melbourne, australia

A GP can be wonderful if you can educate them and they are willing to kearn. The link in my signature would be a good start for guidance. If you provide some information about your mum's treatment perhaps we could advise. Has she had her ferritin serum checked. It would be best to be up around 100. ...
by Polar Bear
Mon Feb 05, 2024 11:00 am
Forum: Just Joined?
Topic: Sorbolene Lotion experience that seems to have worked
Replies: 8
Views: 1264

Re: Sorbolene Lotion experience that seems to have worked

It's excellent that this has continued to work for you.
by Polar Bear
Sun Feb 04, 2024 2:37 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 905

Welcome to Khosro Hekmat

4 February 2024 Welcome today to Khosro Hekmat who has been suffering from RLS for over 15 years. In the beginning, he was able to get the symptoms under control by doing stretching exercises before going to bed. He now has been taking Pramipexole 0.35 mg for 8 years and has also experienced augment...
by Polar Bear
Sun Feb 04, 2024 9:29 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 905

Welcome to judithearvizu

4 February 2024. Welcome to judithearvizu who has severe RLS and can't sleep. Her husband is angry and drs aren't listening. Sleep issues are usually what drives an RLS sufferer to seek help. Many doctors don't know how to properly treat RLS. See the link in my signature which is useful to share wit...
by Polar Bear
Sat Feb 03, 2024 4:09 am
Forum: Just Joined?
Topic: Sorbolene Lotion experience that seems to have worked
Replies: 8
Views: 1264

Re: Sorbolene Lotion experience that seems to have worked

I have no idea why this works so well for you. Sometimes there can be a placebo effect but this usually does not last. We often say here that what works for one does not necessarily work for another - usually referring to medication - but this moisturiser is working for you and long may it continue....
by Polar Bear
Mon Jan 29, 2024 4:10 pm
Forum: Prescription Medications
Topic: Buprenorphine
Replies: 1
Views: 237

Re: Buprenorphine

Subutex (brand name for buprenorphine) is a central nervous system depressant that binds to opioid receptors in the brain that help regulate physical movement, hormones, and mood. Effects on these important functions can factor into a person’s dietary habits, physical activity, and physiology. This ...
by Polar Bear
Mon Jan 22, 2024 4:27 pm
Forum: Just Joined?
Topic: January 2024 - NEW MEMBERS
Replies: 33
Views: 20788

Welcome to Yvonne

Monday 22 January 2024 Welcome to Yvonne whose RLS is having a tremendous affect on quality of life. It is experience throughout the day in legs, arms and torso. We are glad that you have found us. Have you had your Ferritin Serum checked, this should be up around 100 for an RLS sufferer and not acc...
by Polar Bear
Sun Jan 21, 2024 7:01 pm
Forum: Just Joined?
Topic: January 2024 - NEW MEMBERS
Replies: 33
Views: 20788

Welcome to canemba03

Sunday 21 January 2024

Welcome to

canemba03 who is Interested in current therapies for RLS.

As you read through the Forums please feel free to ask questions.
by Polar Bear
Sun Jan 21, 2024 3:02 pm
Forum: Just Joined?
Topic: January 2024 - NEW MEMBERS
Replies: 33
Views: 20788

Welcome to Imm04

Sunday 21 January 2024 Welcome today to Imm04 who has had rls for over 20 years and the symptoms keep getting worse. Imm04 would love to hear from others who are going through the same thing. Are you being prescribed medication by your doctor? I wonder have you been prescribed a DA such as Ropinerol...