Restless Legs Syndrome (RLS) Discussion Board

Honestly, I have gained a lot from the posts on this board. I had joined a fibromyalgia listserv and didn't get near the support or comraderie that I find here.

Elfrieda

OH, Jan. I have heard myself say that so many times. I know my problem isn't as bad as some others I've heard of, but it's my problem and I have to deal with it. It's the same as anyone else. My husband says sometimes that he has a head ache or a backache, but then immediately says he shouldn't comp...

I was just reading over some older posts, still trying to catch up with the myriad of good information. I ran arcoss a post by Lyndarae in which she says, "but in serious cases, it kills the physical,social, and familial lives of all who are unlucky enough to be so plagued." I thought how true! Peop...

Sardsy, I'm curious. Did your cough go away? I had a severe chronic cough a few years ago. (Landed me in the emergency room one time from hurting my ribs; also it caused ulcers on my vocal cords.) Turned out it was caused from reflux. My gastro-guy (the gas man) said reflux (even if you don't feel h...

Jitters,

That is a very funny story. What our poor husbands put up with.

I still think Neurontin was a good addition to my many pills.

Elfrieda

Jumpy, I know I have non-restorative sleep. It's common with fibromyalgia. The problems that are driving me nuts have only been around since last December; everything associated with the FM has been here for years. The Inderal/Elavil incident happened many years ago. I seem to be all right since the...

Sole,

My husband, who works in medical information, says nobody would need a PDR with me around. Just give me the drug and see what happens.

Elfrieda

Several years ago I was prescribed Elavil and Inderal as a prophylactic for migraines. Not a good experience. I don't know which one caused the problem, but I had terrible short-term memory loss. My fingers turned blue under the nails. I felt lost most of the time. I was in graduate school then, and...

Anything that causes drowsiness will likely knock me out. Once I was prescribed Flexeril. One pill of the smallest dose would knock me out for 24 hours. I don't think the neurologist listens to me. In the course of the conversation this afternoon, I told him that I sleep very well. (I fall asleep ea...

and it was great! I really haven't had much confidence in my neurologist. Today, I had to check in by phone on my meds. I told him the Requip wasn't doing any good for me. He said he'd call in a script of clonazepam for me. He also said that I would have to go off Tylenol 3, Fioricet, and Ultracet. ...

No, it's not anxiety or a panic attack. This is the kind of feelings that I have most of the time that my doctor has diagnosed as restless body syndrome/restless leg syndrome. Now you can see why I am confused.

Elfrieda

Hi Gang, Have any of you felt like this? (I'm always curious to compare). Today, I've had the "feeling" in my chest, and I keep envisioning that scene in Alien where the alien bursts forth out of the person's chest. I have felt like that is going to happen at any moment. Most of my feelings have bee...

Sole, My neurologist said I had "Restless Body Syndrome." When I asked him where I'd find information on it, he told me to look up RLS. When I did, all the "official" descriptions didn't match what I felt. Many said legs that were so restless a person couldn't sleep. Not me. My legs are hardly ever ...

I have had full body RLS since 12/03. I started on a low dose of Neurontin at night about two months ago. My rheumatologist prescribed it. I see him because of fibromyalgia that I have had for years. The first day I took Neurontin I was laughing almost hysterically. I do have some mood swings, but I...

I teach writing mostly to freshman and developmental students. And what is your field, Jumpyowl?

Jan, I don't intend to give up anything except maybe all of my health problems.