Wonderful!shinderlider wrote: ↑Sat Dec 16, 2023 11:05 pmWell, I made what is hopefully the last step to be ropinirole free: dose cut from 2mg to 1mg. At the present, keeping the gabapentin dose at 300mg twice a day, knowing it can be increased if necessary. It has not always been easy but I am pleased that I am almost finished.
Search found 14416 matches
- Sun Dec 17, 2023 10:09 pm
- Forum: Augmentation
- Topic: Transitioning
- Replies: 37
- Views: 52040
Re: Transitioning
- Sun Dec 17, 2023 10:08 pm
- Forum: Help for Relationships
- Topic: What Relationships?
- Replies: 54
- Views: 74550
Re: What Relationships?
*gsurpur* I also wonder sometimes, what is normal. What would I be like without rls and without being stuffed full of medications. However it is some of those medications that somewhat control my rls. Coping with chronic medical conditions can be very debilitating and it is easy to become depressed...
- Sun Dec 17, 2023 10:01 pm
- Forum: Physical Treatments
- Topic: New device: NXT 100 ToMAC
- Replies: 5
- Views: 14347
Re: New device: NXT 100 ToMAC
OUCH! That is a lot of money. How frustrating that they denied it.
- Tue Dec 05, 2023 9:10 am
- Forum: Just Joined?
- Topic: Augmentation & DAWS
- Replies: 16
- Views: 35383
Re: Augmentation & DAWS
Hi Ali - What a difficult journey you've had - great that the tumor was benign. Welcome to the board and I hope you find the help you need here. As I understand it, most WED/RLS experts recommend decreasing ropinerole .5 mg every 3-7 days to prevent DAWS. Even if you wanted to be very careful, you c...
- Wed Nov 29, 2023 10:49 pm
- Forum: General Topics: RLS
- Topic: Bariatric Surgery
- Replies: 6
- Views: 15614
Re: Bariatric Surgery
Ann, I am in the process of determining if I am a good candidate and following the Medicare rules which require at least six months of a supervised diet. It will be at least June before a decision is made. In the meantime, I continue my weaning off ropinirole (getting ready to move from 2mg down to...
- Mon Nov 27, 2023 8:33 pm
- Forum: General Topics: RLS
- Topic: Bariatric Surgery
- Replies: 6
- Views: 15614
Re: Bariatric Surgery
HI Sue - did you go ahead with it?
My sister has mild symptoms - she had surgery a few years ago and never mentioned her symptoms being worse. Of course, I don't remember what she had done.
My sister has mild symptoms - she had surgery a few years ago and never mentioned her symptoms being worse. Of course, I don't remember what she had done.
- Mon Nov 27, 2023 8:45 am
- Forum: Prescription Medications
- Topic: Continuous movement vs spasm
- Replies: 4
- Views: 8040
Re: Continuous movement vs spasm
Similar symptom progression: from classic need-to-move twitchiness to, twenty plus years later, sudden energy build-up—bordering on a cramp—in my hip joints releasing within seconds a powerful spastic kick. Happens in only one hip at time but left hip more often than right because I suspect osteoar...
- Mon Nov 27, 2023 8:33 am
- Forum: Physical Treatments
- Topic: Cured
- Replies: 3
- Views: 13375
Re: Cured
At age 51 my RLS is cured. I had a stone stuck in my billiary system-distal common bile duct. MRCP showed dilation in the billiary system. I had an ERCP to remove the stone. I can drink coffee and eat chocolate with zero RLS symptoms. As far as I can tell a stone can disrupt digestion which is why ...
- Mon Oct 16, 2023 5:14 pm
- Forum: Augmentation
- Topic: New-Asked to post about treatments
- Replies: 55
- Views: 78386
Re: New-Asked to post about treatments
I'm back after what seems like a very long forever. I started weaning off of ropinerole in about mid July 2023. I had a false start after trying to start the course without a long acting opioid like Oxycontin. No Oxycontin due to insurance denying coverage. About mid August, the plan was changed to...
- Mon Oct 16, 2023 5:07 pm
- Forum: Prescription Medications
- Topic: Emory not taking new pts?
- Replies: 7
- Views: 9612
Re: Emory not taking new pts?
How frustrating! I moved from one US state to another JUST so I could be by a good doctor. When he retires, quits, or reduces his practice, it will be terrifying.
- Thu Oct 12, 2023 7:19 pm
- Forum: General Topics: RLS
- Topic: Looking for RLS Doctor in Central New York
- Replies: 10
- Views: 9999
Re: Looking for RLS Doctor in Central New York
Was able to get an appointment with a recommended doctor on the RLS.org site, Dr. Durphy, who is a neurologist in movement disorders and specializes in RLS, and I was able to get in with her in May. I am hoping she follows the research of the other doctors on this site. What was the result, Macadwel?
- Thu Oct 12, 2023 4:58 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: REST AND RECHARGE SUPPLEMENT FOR RLS
- Replies: 11
- Views: 17021
Re: REST AND RECHARGE SUPPLEMENT FOR RLS
So true.Polar Bear wrote: ↑Sat Sep 16, 2023 2:19 pmDesperation makes us try anything no matter how weird or silly.
Happily I am now in a better place than in those the early days thanks to our Discussion Board.
- Wed Oct 11, 2023 6:01 am
- Forum: Just Joined?
- Topic: Just re-joined
- Replies: 1
- Views: 6966
- Thu Mar 09, 2023 8:27 am
- Forum: Prescription Medications
- Topic: ER opiates (oxy) vs methadone
- Replies: 6
- Views: 3974
Re: ER opiates (oxy) vs methadone
Our bodies are complex systems and there can be so many variables. Methadone is the preferred approach in the US for a variety of reasons, but it has its own set of problems and that long half life can make withdrawal very tedious. But, Oxy can be abused when someone is in the 7-8 percent of us that...
- Thu Mar 09, 2023 8:20 am
- Forum: Physical Treatments
- Topic: Using tDCS Alternating Current to Stop Symptoms
- Replies: 5
- Views: 11709
Re: Using tDCS Alternating Current to Stop Symptoms
So sorry about the COVID!
Looking forward to more updates about this.
Looking forward to more updates about this.