Restless Legs Syndrome (RLS) Discussion Board

Any news, Steve?

Great news!

Sorry, Frunobulax - not sure how I missed this. Then again, I have no answer anyway!

It seems this is quite the conundrum, though.

How are things going now?

Looks like there they are some disputes to the current research. Reassessment of candidate gene studies for idiopathic restless legs syndrome in a large GWAS dataset of European ancestry https://scholar.google.com/scholar?hl=en&as_sdt=0,21&q=%22restless+legs+syndrome%22&scisbd=1#d=gs_qabs&t=1651529...

Dr. B worked with my GP in rural Illinois, as well as a GP and a neurologist in Chicago. Unfortunately, the GP is retired, the GP in Chicago got cold feet after a year and fired me, as did the neurologist. I'd seen so many doctors by that time (over 30), that I just moved to be close to Dr. B. I rea...

I have also found that the constipation from opioids can be managed with multiple things. I take 17.5 mg methadone right now (goes up and down depending on my iron level*). How much can you increase your veggies, dried plums, beans and/or oatmeal? About few dried plums and other associated high fibe...

Just to say that I managed to educate a PCP and it worked brilliantly. I used the publications from this site and I also used the Clinical Management of Restless Legs Syndrome, Second Edition, (available on Amazon) which ended up covered in pencil notations and stickers. He was so willing he came o...

I take methadone at 4 PM and still fight to go to sleep by 1 AM or so. I had to take is around noon or 1 PM the few times I tried to have a "normal" schedule.

I actually moved to California because I could not find a reasonable doctor in Chicago. It's silly - it's a huge metropolitan area. I live there from 2004 to 20015 and saw over 20 doctors in that time frame. I would find one and they'd refuse to use opioids a year later, etc. I finally decided that ...

Yup - gained 50 lbs here, too.

What both Deb and Steve said is very important.

Hi Catcrazy - only a small number of people can completely stop all medication. More of us can reduce them - I can reduce by about 50%.

Hi Bannia - wish I could help. All I can do is commiserate.

Thank you. I certainly hope so. I have one thing to add: last night I awakened in a sweat and felt shaky so took 1 mg of my Clonazepam and slept well until morning. Today I have energy and feel “normal “ again. My own attempt to taper did not work. I am reminded of a previous post about a member’s ...

I am really looking for a plan, not a prescription I can't get filled. Or give IV iron a try. I'd stay somewhere for a week or whatever to give it a try. At 65 I'm very worried about what this will be like when I'm 80. My neurologist will prescribe anything he is allowed to in Florida. I saw a seco...

Are plane trips something you can do? I flew to California for years before I moved here. When I was walking to Dr Winkleman (he does the opioid study) a few weeks ago, I said I didn't know what I'd do if Dr B retired. He said I could always see him. BUT, no idea if they will take out of state clien...