Restless Legs Syndrome (RLS) Discussion Board

Thank you. I certainly hope so. I have one thing to add: last night I awakened in a sweat and felt shaky so took 1 mg of my Clonazepam and slept well until morning. Today I have energy and feel “normal “ again. My own attempt to taper did not work. I am reminded of a previous post about a member’s ...

I am really looking for a plan, not a prescription I can't get filled. Or give IV iron a try. I'd stay somewhere for a week or whatever to give it a try. At 65 I'm very worried about what this will be like when I'm 80. My neurologist will prescribe anything he is allowed to in Florida. I saw a seco...

Are plane trips something you can do? I flew to California for years before I moved here. When I was walking to Dr Winkleman (he does the opioid study) a few weeks ago, I said I didn't know what I'd do if Dr B retired. He said I could always see him. BUT, no idea if they will take out of state clien...

Wow.

I am so over these doctors. They have no idea how many lives are lain to waste with such proclamations. I hope the nurse is more helpful.

Agreed with Beth!

One comment noted methadone at 200mg. I am suspicious. Recommended max dose for methadone is 40mg. Most patients are at 10mg. You also mentioned building resistance to opioids. Methadone does not trigger the chemical thing that builds resistance. Once a maintenance dose is determined it never needs...

I'm back. It's been a while but II have need of some advice. As part of my follow-up of my sleeve gastrectomy (2 years post op on10/14/21, lost 100 pounds) my provider always orders a boatload of lab tests. 2 of the tests that were abnormal were the pTH and iron. The iron is the one I really have q...

Hi Comeau01. Some people have more of an issue with tolerance than other people. I am one. When mine starts getting worse, it isn't the same each night. Tonight, for example, the symptoms are nasty at 2 AM and I am up and not able to sleep at all. Last night I slept relatively well, with some mild s...

Your post made my day. Thanks.

Isn't this the truth! It's also the willingness to GET the expertise and LISTEN to the experts (including the patient). Doctors that have a holier than thou attitude? I just walk away.

One of our board members uses a TENS to keep her WED/RLS at bay. At first she had to use it nightly, but gradually used it less and less, til it was only now and then. I think she's an exception; most of us have had mixed results or no help from a TENS. But it's certainly worth a try. You should fi...

After my 8th session, I tried weaning from .375 mirapex to .25 but was not successful. I’m going to retry 4-6 weeks after my last session. They say it should work by 8 weeks AFTER it's all in. But I found it takes longer for me. I thought it didn't work when I had one of my first ones. At 6 or 7 we...

It doesn't help the movement symptoms, unfortunately. It can help with sleep. Some of us can tolerate it, some of us cannot.

After my 8th session, I tried weaning from .375 mirapex to .25 but was not successful. I’m going to retry 4-6 weeks after my last session. They say it should work by 8 weeks AFTER it's all in. But I found it takes longer for me. I thought it didn't work when I had one of my first ones. At 6 or 7 we...