Restless Legs Syndrome (RLS) Discussion Board

Wow! Here is some good news! Overview of XP13512 Phase 3 Program in RLS XenoPort also announced today that it has completed an End-of-Phase 2 meeting with the FDA regarding XP13512 as a treatment for RLS. As a result of the meeting, XenoPort has finalized plans for its Phase 3 clinical program for R...

keico, sometimes people only read the board once or twice a week, so it can take a few days for people to answer posts. Sorry that you have been waiting and haven't had a response. As a moderator, I usually check once or twice a week to answer posts that are unanswered. After reading your post, I am...

Hazel, Great minds working at the same time.
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Ann

Welcome, Susie. So glad that some of this is helpful to others. Try this link: m Along with a link to Jill's site, there are many links to information that you can print off and take to your doctor. Let me know exactly what info you're looking for regarding iron, and I'll see if I can locate it for ...

OK, I had a minute so I came back to clarify my earlier post. With fibro and RLS it sure seems that its a chicken and egg thing. Doctors don't really know which comes first - and I'm not sure that anyone has done any kind of study to determine if people with RLS are likely to get fibro or the other ...

If you've ever taken any benzos, you may have noticed that your memory suffered while taking it. Here is some research that found that diazepam does indeed screw up memory function:

http://www.websciences.org/cftemplate/N ... D=20060029

http://www.websciences.org/cftemplate/N ... D=20060026

Seems that Lisuride was shown to be efficacious in mild RLS and in severe RLS while paired with levadopa.

Here is an interesting study, done in Austria. The results are quite interesting. I was so surprised that they found few differences in ferritin, transferrin and free serum iron than in non-RLS controls! But, there was a difference in the transferrin receptor. If that is an easy test, if could possi...

I am sorry you are having trouble understanding this site. And sorry that no one responded to you yet. We don't mean to forget anyone, but sometimes posts seems to slip through the cracks. It sounds like you are very frustrated, and rightly so! RLS is (to me) a horrible feeling, one that I wish I wo...

I sent an email to the system adminstrator today. I hope he can get your problem resolved. In the meantime, please post as a guest.

If anyone else is having these types of problems, PLEASE let us know right away.

Ann

I believe this is legit. Becat is trying to find out. People on one of the Yahoo boards got this, also, but it was not posted directly. But, this brings up an interesting point. Do you, as members, want people contacting you from your email here? I would think you would not, even if it is legit. We ...

I learned something interesting about iron absorption today. People with celiac disease often have absorption problems until they are diagnosed and follow a gluten-free diet. Since many of us have problems with iron, here is another possible reason, as posted by someone on a celiac board: "One more ...

S, some people have successfully used ginger to combat the nausea. Others find that taking it with food helps. Per the weight gain, that is a problem that no one knows how to control, I don't think. It's a side effect of stimulating the neurotransmitters. I gained 50 pounds while on one drug and los...

I'm not sure what you need us to do. Please post here on the board. The reason no one responds personally is so that all readers or members can benefit from the information. Please let us know more about what you are looking for. In the meantime, some of the best advice we have is in this section (N...

One of the nice things about this board is that you can post without logging in. I will let the system adminstrator know you are having problems. In the meantime, just post without logging in. Use the same name as your user name if possible, and sign your post so we know it is you.

Ann