Restless Legs Syndrome (RLS) Discussion Board

Thanks, Polar Bear. My case was accepted by Johns Hopkins and I see one of their neurologists in July. In the meantime I am seeing a rheumatologist and other doctors to try to find an underlying cause for my symptoms that would explain why my symptoms get better at night. All my recent tests came ba...

Sometimes I just have to laugh because this whole situation is so absurd. The new theory is that I've been having thyroid problems for a while. The thyroid problems caused the initial GI tract issues, which caused a magnesium deficiency, which caused (on its own or in combination with the thyroid is...

I saw the neurologist again today and he still isn't being very helpful. He acknowledges that I have a wide range of symptoms, some of which he knows are not caused by neuropathy, but he does not offer a reason for them, and until I pressed him, he offered me no treatment. He keeps trying to convinc...

I've gotten all my test results back from the past two weeks, and every single test was normal. I was most surprised that the testing from the 24-hour urine collection was normal across the board: catecholamines, epinephrine, norepinephrine, dopamine, metanephrine, normetanephrine, and VMA. I was re...

Thanks for your response, Polar Bear. When I had the RLS-like symptoms last year, I had strong urges to move whenever those sensations were present. I have weaker urges to move my feet now when the pain occurs, but nowhere near as compelling as last year. In no way do I think I currently have RLS, b...

Sorry, I wasn't clear. My symptoms (pain etc) get somewhat better when I lay down to go to sleep. (I could sleep through the end of the world, so falling asleep is not a problem for me no matter what.) If I wake up in the middle of the night, the pain I had when I went to sleep is gone. When I wake ...

I'm trying to get a diagnosis for a wide range of symptoms, including something that's RLS-like. When I had three months of restless leg sensations last year, the one thing that made me think it wasn't RLS was that the pain went completely away while I was sleeping. The odd thing is that I have many...

I had six medical appointments this week. I saw an MS specialist, who concurs with the first neurologist that I have non length dependent small fiber neuropathy (SFN) and that I do not have MS. My understanding is that MS and SFN are quite similar symptomatically, but MS damages the central nervous ...

It's time for the latest chapter in my never-ending story! I saw my GP yesterday for an unrelated minor medical issue, and she ended up spending 45 minutes with me going over all my results and what the neurologist said. She disagrees with the neurologist's opinions and thinks that non-length depend...

Thanks to all of you for your responses. Just a quick note to let you know that my skin biopsy showed that I have a mild case of non-length dependent small fiber neuropathy. My neurologist is treating this as somewhat of a diagnosis but she is continuing with additional testing to rule out possible ...

I'm on the brink of an actual diagnosis. I had a brain MRI and the radiologist found two white matter lesions, both consistent with multiple sclerosis. My symptoms have grown and changed significantly since early February, and MS was the most likely explanation for the whole range of them, so the MR...

The B12 reaction was a coincidence. Oh well. I am still experiencing new symptoms, including bouts of muscle twitching in my arms and upper body that are noticeable enough that my GP commented on them. All my bloodwork has come back normal, so the next step is brain and thoracic MRIs with contrast. ...

Thanks, Beth. I saw the neurologist on Monday and she did nerve conduction testing/EMG on my arms. Based on the test results, she has diagnosed me with mild carpal tunnel syndrome in my left arm. This would explain the numbness, tingling, and electric shocks in my left hand. However, we have no idea...

Fibromyalgia has come up, but so far it doesn't sound like a good fit. My pain is deeper and in different places than is typical with fibromyalgia. Lyme disease is a somewhat better fit but still not great. I see the neurologist tomorrow and will talk to her about all the possibilities. Given that m...

My condition has suddenly taken a turn for the worse. The numbness in my left hand is getting considerably worse, the flank pain is getting stronger, and my left heel was so bad yesterday that I could barely walk. I had a long talk with my physical therapist and my symptoms are so atypical, especial...