Restless Legs Syndrome (RLS) Discussion Board

Welcome to jumpylegs5. So sorry you need to be here! I hope the people you talk with here can help you understand the disease better.

Hi Harmony. Thirty years, did you have it when you were a kid? I first noticed it when I was a kid, but I thought it was normal. How do you deal with it?

I guess, while I don't share details of things necessarily, I definitely snap, crackle and pop when other people would filter it. If I hurt, am really tired, had so many weird side-effects that overwhelm me, that ability to filter is even more tenable and flimsy. this exact thing, and sort of what ...

nice

I posted my reply without reading the whole second page. Ann had already given basically the same advice ("I'd also ask the people doing the test if there are ANY drugs you can take. Tell them that you will NOT get a moments peace or rest for days, if not weeks, by doing this, and this can't be...

It is best that she see a doctor, re-assure her that many things besides Alzheimers can cause memory problems, and also that the sooner it's diagnosed, the more can be done for her. I am pretty sure of this because I've been keeping an eye out on things like this because I think my mother is having ...

Randy Tell your doctor in no uncertain terms the truth. That is, you can go without your meds for 5 days but it will cause high levels of stress. If he wants to test adrenal output under stress-free and med-free conditions IT WILL NOT BE POSSIBLE. Once he knows that, let him decide the next step. It...

welcome scottydgolf.
Yes, it's common. Bad for all of us who have to endure it, but I suppose good because at least people research the disease, somewhat, which they might not if it was really rare. And I bet you're surprised to know it's a disease, too! I was.

no no it was a great analogy, wonderful, that's why I used it instead of describing your physical sensations , I love it!
I didn't realize at first that these were new symptoms.

well, don't get too involved with speculation, she hasn't confirmed the presence of a tumor yet. You've had RLS and been chased by an elephant for a long time, can this speculative tumor have been there that long without being detected? ... or is the elephant new. You know, I recall, that was what i...

That's because the people making decisions did not get into those positions because they were good at making decisions. Most ended up there by chance or ambition; our systems do not pick people who are good managers to manage, nor wise people to make decisions. I first understood this when I began t...

yes, I've decided to try it. the study was two people who both improved, Mary's improved. Possibly Ann too. WTF as they say.

amazon (and others) won't ship ribose outside the US

Perhaps it was a mistake to tell the nurse you did well on Ambien. You had mood issues and personality changes while taking it. There are about 6 or 8 drugs in that class, which will all have different side effects, so probably one of them will let you sleep without damaging your mood or personality...

Welcome to srhoud; I hope you can find what you need here. Or at least, some information and some hope.

It hurts.

I guess we just have to accept that we'll never get the opportunity to explain it to some people, and they wouldn;t get it even if we did, and we just have to accept that and move on.
But it hurts.