Restless Legs Syndrome (RLS) Discussion Board

At the RLS patient conference, Dr Earley said that the biggest current problem with iron IV's is the hematologists. Many simply refuse to give iron IV's in the absence of anemia. Apparently the problem is so severe that Dr Earley has become qualified to give the IV's at their clinic. So, it sounds l...

Friday, November 30 Welcome to georgeconnell, whose RLS symptoms have increased in frequency and intensity over last few months. His Dr. claims the problem is due to apnea. He disagrees. If you are taking a dopamine agonist, it is possible that you are experiencing augmentation. So, please post a no...

Friday, November 30

Welcome to

thomastami10, who would like to talk with and ask advice and also share his RLS journey with others who have the same disease.

We look forward to hearing from you. You might start with a message telling us a bit about what you are currently using for your RLS.

Wednesday, November 28 Welcome to sculler, who has been suffering with RLS for 12+ yrs. After years of various limited success drug attempts with his sleep disorder physician and RLS specialist, methadone granted him the best relief, sleeping well and remaining athletically active. Recently due to a...

Gayle, welcome to the group. You will find that many of us are eager to share our experiences and our knowledge of RLS.

So, what have you tried for your RLS over your 40 years and what are you doing to manage it now? And do you have any questions for the group?

Glad to see that you are making some progress. Few of us ever achieve real control of our RLS, we just manage it most of the time. As for Mirapex ER, it doesn't get used much due to the price. It is even more expensive than the Neupro patch or Horizant. Since Neupro also provides dopamine agonist ov...

I have been taking opioids for my RLS for 3 yrs now and during that time I have had issues with my local doctors and pharmacies. Apparently there was a pill mill doctor here about 5 yrs ago, so the town gets extra DEA attention now and the local hospital has anti-opioid policies that make it difficu...

The potential benefit of a sleep study all depends upon what the doctor is hoping to find from the study. If the sole purpose is to determine whether you have sleep apenea or PLMS, then you may not derive much benefit. My last sleep study was done because my doctor wanted to find out whether the DA ...

Here is a link to the full paper https://physoc.onlinelibrary.wiley.com/doi/pdf/10.1113/JP275341 I don't understand most of the testing that was done. But what strikes me is that they seem to have what appears to be a fairly simple, painless test that differentiates RLS from non-RLS test subjects. S...

Friday, November 23 Welcome to benjinlai, who has a history of RLS for more than 10 years. A severe case. Initially with .25 mg of pramipexole, result was poor, about a year increased gradually to 1 mg. This allowed sleep. Recently the medicine begin to lose the power. So, benjinlai wonders what opt...

Wednesday, November 21 Welcome to WRP, who often is unable to sit or even sleep due to the discomfort from RLS. WRP is unable to find over the counter, natural, homeopathic or medically prescribed help to bring comfort and is very interested in learning from others what works for them in dealing wit...

Tuesday, November 20 Welcome to strobee, whose RLS has affected life in numerous ways. strobee is unable to sit and watch TV in the evening without having to stand up and walk around. Sleeping is a complete disaster........about an hour after falling asleep strobee is wakened by RLS and has to get u...

Tuesday, November 20 Welcome to Cinderella, whose RLS has stolen her restful sleep but finds it to be worse during the day rather than the night! It's bad at night too! Please post a note telling us what you are doing to manage your RLS. If you are taking a medication, please tell us what you are ta...

Tuesday, November 20 Welcome to Crazylegs26, who went from having RLS at night, almost daily to having a raging, unstoppable, insanity causing case of all day everyday RLS with it affecting her entire body. She doesn't have health insurance and desperately needs help to end the nightly river dancing...

Quite possibly what you are experiencing is a side effect of some opioids that most of us call "alerting". When I was on methadone, I only took it once a day. My doctor recommended that I take it at bedtime, but I wasn't able to sleep that night. So, I moved the time that I took it to lunc...