Search found 561 matches

by legsbestill
Mon Nov 14, 2016 8:22 pm
Forum: Just Joined?
Topic: No progress yet
Replies: 43
Views: 6851

Re: No progress yet

As I understand it methadone is typically more effective and at lower doses when it comes to rls (not sure about plms) so your doctor sounds as though she is on the right track. I have OxyCodone because it was the one my php was prepared to prescribe - I think there are restrictions on the prescribi...
by legsbestill
Sun Nov 13, 2016 10:57 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: My MM experience
Replies: 9
Views: 3543

Re: My MM experience

I really hope you don't have to make the drive and everything can be sorted with less of a strain for you - also that the 2.5mg will suffice and you get some rest in the meantime.
by legsbestill
Sun Nov 13, 2016 10:54 pm
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 23172

Re: Newly Approved Device - available in US

I found that when I tried foam rolling to relieve rls in my legs it had the effect of transferring symptoms to my trunk and arms - almost as if the symptoms were pushed out of the legs by the foam roller and into other parts of the body - a bit like toothpaste in a tube when you squeeze it with the ...
by legsbestill
Sun Nov 13, 2016 10:47 pm
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 23172

Re: Newly Approved Device - available in US

Yes, that is exactly the same for me PB.
by legsbestill
Sun Nov 13, 2016 10:46 pm
Forum: General Topics: RLS
Topic: Foundation webinar on genetics
Replies: 12
Views: 2142

Re: Foundation webinar on genetics

Btw I hope that you are not badly affected by the earthquake Yankiwi. It looks pretty awful on the news here.
by legsbestill
Sun Nov 13, 2016 10:45 pm
Forum: General Topics: RLS
Topic: Foundation webinar on genetics
Replies: 12
Views: 2142

Re: Foundation webinar on genetics

I feel the same for my children. For now, I encourage them to keep their ferritin levels high but it would be fantastic to think that there might be a cure if they are ever struck down with it. It is also great to be able to tell them that there is hope of a cure. I know that they have struggled wit...
by legsbestill
Sun Nov 13, 2016 10:38 pm
Forum: Prescription Medications
Topic: Safety, driving, work questions
Replies: 6
Views: 1236

Re: Safety, driving, work questions

I was wondering about this exact issue - the impact of my OxyContin on driving - both from a legal perspective and also in terms of whether it actually impacts on my reaction times. Also whether it would have a significance in terms of employment prospects and the attitude of insurance companies if ...
by legsbestill
Sun Nov 13, 2016 10:34 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: ferratin
Replies: 72
Views: 22448

Re: ferratin

Thank you for that StJohnh, it is very useful to know how to take it optimally. I struggle with the concept of an 'empty stomach'. Perhaps I eat too much at meal times but tend to feel quite full even 3 hours after eating so defer taking the iron tablet and then, an hour later, although my stomach n...
by legsbestill
Sun Nov 13, 2016 10:25 pm
Forum: Just Joined?
Topic: No progress yet
Replies: 43
Views: 6851

Re: No progress yet

Btw, leggo, have you been back to your pcp about an opioid? I think you said in one of your posts that you are anxious about taking new drugs for fear of how they will affect you. I often think of that because, again, I can really relate to it - I had completely vacated the marital bed for a variety...
by legsbestill
Sun Nov 13, 2016 10:06 pm
Forum: Just Joined?
Topic: No progress yet
Replies: 43
Views: 6851

Re: No progress yet

Thanks, Leggo, it is so nice to get that affirmation. In my new reality of post-mirapexin rls, I try to feel pleased with smaller achievements but it is hard to make the adjustment. I have the exact problem you describe - I am a morning person but find that I am so tired when I wake up (even if I ha...
by legsbestill
Sun Nov 13, 2016 9:26 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: My MM experience
Replies: 9
Views: 3543

Re: My MM experience

What a nightmare, ViewsAskew; an absolutely dreadful concatanation of events. I really feel for you and hope you manage to get your meds sorted soon. Good luck with the mm experimentation. It is so useful to hear of your experiences. I hope you will continue to post about it.
by legsbestill
Thu Nov 10, 2016 10:33 pm
Forum: General Topics: RLS
Topic: Foundation webinar on genetics
Replies: 12
Views: 2142

Re: Foundation webinar on genetics

A cure!!!! Have been thinking about that all day - I was sure it was a life sentence. I will continue to mess around with my various treatments with renewed hope and positive energy. Am looking forward to seeing the webinar when it is posted. Thank you so much for posting about this Rustsmith.
by legsbestill
Wed Nov 09, 2016 5:47 pm
Forum: Just Joined?
Topic: No progress yet
Replies: 43
Views: 6851

Re: No progress yet

Sorry, went on prolonged discussion re my daily life really as an introduction to say you should be so proud of yourself for holding down a job with these difficulties. Try not to despair, the human spirit is an amazing thing and there is a solution out there for you and for me.
by legsbestill
Wed Nov 09, 2016 5:41 pm
Forum: Just Joined?
Topic: No progress yet
Replies: 43
Views: 6851

Re: No progress yet

Hi leggo, sorry to hear about the tramadol. It sounded so good - obviously too good to last! 30 mg of OxyContin more or less completely deals with my rls symptoms which is bliss. Of course, this condition being what it is, it is not so simple as that. The OxyContin has the effect of 'alerting' me so...
by legsbestill
Tue Nov 08, 2016 10:25 pm
Forum: Just Joined?
Topic: No progress yet
Replies: 43
Views: 6851

Re: No progress yet

I can so relate to your reactions, leggo. I started out feeling quite indignantly that opiates were my entitlement when my sleep consultant refused to prescribe them (she wanted me to try neupro first and like you I was v anxious about various side effects as well as the dangers of augmentation afte...