Restless Legs Syndrome (RLS) Discussion Board

Hello - My RLS doctor, who is amazing, was not comfortable giving me IV iron because my levels were higher than he is used to dealing with. So, I sought out a hematologist and explained my situation to him. My hope was to get IV iron. So, for the past several months he has been monitoring my iron an...

Dr. Earley said RLS completely goes into remission for about 10% of his patients. Some of these patients have been on RLS meds for 20+ years. None of the other doctors reported similar findings; however, Dr. Earley is the only one who reassesses baseline symptoms by advising patients so a 14 day was...

I don’t think there is a lot of research on the effectiveness of IV iron. And, the research that is there is pretty narrow in regards to population size, type of iron and amount. The only reason I bring it up is because I think there are a lot of unknowns with regards to how effect it could be.

Hello, I recently had arthroscopic knee surgery and my RLS has been out of control. It’s not occurring earlier, but it’s much more resistant to medication. My neurologist communicated that this happens and will go away, but I was wondering if anyone else has experienced this. How long did it take to...

I am now having more good nights than bad nights. I'm having 5 and 6 nights in a row of good sleep. I feel that we finally have it set correctly. Since July 28th, only about 4 nights that weren't so good. The best has been the last two weeks. How is the quality of sleep? Very refreshing? Or, medioc...

https://scholar.google.com/scholar?as_ylo=2021&q=restless+legs+syndrome&hl=en&as_sdt=0,47#d=gs_qabs&u=%23p%3Da4P3lxn9K-cJ Conclusions Dipyridamole has significant therapeutic effects on both sensory and motor symptoms of restless legs syndrome and on sleep. Our findings confirm the efficacy of dipyr...

Dr. Ondo had performed a study on this drug to determine if it can help with augmentation. The abstract doesn’t say much, but I was wondering if anyone has any additional insight into this medication and/or it’s use for RLS. https://pubmed.ncbi.nlm.nih.gov/33066723/ https://www.mdsabstracts.org/abst...

I don’t understand the connection between oxalates and RLS. These papers says oxalic acid does not influence iron

https://pubmed.ncbi.nlm.nih.gov/17440529/
https://www.hindawi.com/journals/jnme/2020/7373498/
https://pubmed.ncbi.nlm.nih.gov/2821800/

I’m wondering if it is a TENS or NMES, the electrical current I believe is different as is the rhythm. A proprietary rhythm of the stimulations could make this uniquely effective for RLS. Also they are focusing on a nerve near the calf. I’m very interested to see what the actual protocol is.

https://jcsm.aasm.org/doi/10.5664/jcsm.9404

These results suggest that NPNS could be a promising alternative to pharmacological therapies for RLS and could provide a solution for medication-resistant RLS patients and for medication-naïve RLS patients who are unwilling or unable to take medication.

Has anyone gone on short-term disability due to RLS? I’m wondering how to go about this and would like some help on who to turn to. I don’t have a primary care physician at the moment. I have had a patella tendon injury for several years. It has not healed due to the lack of sleep from RLS. The knee...

https://scholar.google.com/scholar?as_y ... pzQg-S5dkJ

Developing a biomarker for restless leg syndrome using genome wide DNA methylation data

I don’t have access to the full paper. Would love t anyone could give their opinion.

It was not able to control symptoms over the long-term. I provided temporary relief, but it isn’t sufficient enough to fall back asleep for very long. 20-30 minutes max If I have breakthrough symptoms, I can use it for short-term relief until the additional medication is needed. This rarely happens.

Like all things, this turned out to be a dud in the long run. It’s something I use in my toolkit to help manage break through symptoms.

What is it that wakes you up? The RLS or just random awakenings? That is what I am hoping that the latest sleep study will reveal. It isn't simple RLS and I didn't have any PLMS during the study that showed 45% sleep efficiency. I had some mild RLS urges once during the night during this recent stu...