Restless Legs Syndrome (RLS) Discussion Board

Thursday, April 4 Welcome to West_Coast, who was diagnosed and started on gabapentin 4 years ago, after reaching a point where nothing worked (massage, heat etc) and she was awake all night. Now she is chained to taking this medication every night, but even then she has regular problems with symptom...

Wednesday, April 3 Welcome to Tompyro, whose RLS is so impactful on his life. He says that it is unbelievable how many hours sleep he has lost during an episode. He takes Requip 1mg dose. His Dr. doesn’t want increase the dose. It seems that lately his arms are becoming involved after going to bed. ...

Wednesday, April 3 Welcome to jansessions, who is not sleeping. Sleep problems are a major issue for those of us with RLS, but there are treatments that are effective provided that your doctor doesn't try the normal insomnia meds. If you can post a message to let us know what RLS meds you are taking...

I don’t know how to put a link on here To post a link, you need to click the button that says "Full Editor and Preview", which adds a few icons above the white text area. To post a link, click on the two little linked chains near the right side (just to the left of the little flame), this will add ...

Sunday, March 31 Welcome to Kathy demchuk, whose RLS is causing no sleep! She cannot do any functions because if this. One of the first things that drives patients to seek help is sleep and not the movement part. Are you currently taking a medication? Has your doctor done blood tests to check your f...

Since this thread cannot seem to come to a conclusion and since Dr Weinstock is repeatedly cited as "one of the world's greatest exterts on RLS", I decided to use the same tools to investigate him that I would if I saw a citation in my own field of study from someone that I had never heard of before...

My biggest challenges are convincing my Dr. how effective these meds have been but his concern will always be about creating an addict. The next time you see your doctor, provide a copy of this document which was written specifically to educate doctors like yours that opioids are appropriate for RL...

Welcome to the group. If you read through a number of our discussions, you will see that many of us have failed the dopamine agonists through augmentation and that iron therapy and gabapentin/Horizant/Lyrica did not work for us. Most of these members are either taking oxycontin ER, methadone or bupr...

Tuesday, March 26 Welcome to Swamiail, who have been diagnosed with Peripheral Neuropathy and suffers from RLS every night. She also has leg cramping. It is ruining her life. Has your doctor prescribed either gabapentin or Lyrica for the neuropathy and/or RLS. Those meds generally help with both con...

Tuesday, March 26 Welcome to Ragnar, who has chronic RLS that is getting worse as he gets older (64). It is becoming very disrupting as he has 2 - 3 days with RLS all night and even occurring during the day when it gets really bad. The options for medications are not very effective and he has tried ...

Monday, March 25 Welcome to dmarney, who is going through DAWS. So life is a mess! There are two conditions that are frequently referred to as DAWS. The more common and less severe (but still extremely difficult) is withdrawal from any of the dopamine agonist meds, usually due to augmentation. This ...

Possibly due to a wrong target of the interventions. We are drifting off topic, but that was exactly one of the points that the article made. For too long, everyone studied ambloid plaques because that is what Dr Alzheimer first observed. They even observed that post mortem studies found that many ...

Earlier today, I was reading a summary of research into Alzheimers that was intended for the general population. They discussed an inflammation theory for Alzheimers and mentioned how hard it is to get anti-inflammatory agents across the blood-brain barrier. They said that three groups were currentl...

Sorry for the delayed response. Microsoft had my desktop computer tied up for half of the day yesterday doing updates so it took some time to be able to dig my way out so that I could get access to my university library account. I was able to get a full copy of the paper by Weinstock, et al. and fou...

That is wonderful news. You definitely found a keeper with that neuro and hopefully your PM will be willing to switch you to oxy ER since regular oxy is working well for you. As for the description of the feeling, I tell people that language describes a shared experience and that only other RLS pati...